Pulsatile tinnitus

Posted by beatricefay @beatricefay, Jun 2, 2018

Started getting heart beat sounds in right ear only. Got an MRA to check the arteries (no results yet). Strangely the sounds start in the evening and continue when I go to bed. I have no idea why it's quiet during the day. Has anyone else had this experience. If my arteries are okay in my brain then I have to look for other causes. Any ideas. I checked medication side effects but that doesn't seem to be the cause. One night I exercised in the evening and I had no sounds, but that didn't work yesterday. I'm perplexed.

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Hello @sarniaalward, @mamachama, welcome to Mayo Clinic Connect.
@sarniaalward, how did you doctor's appointment go? Would you mind sharing what you learned about your pulsatile tinnitus?
@mamachama, what were your symptoms? Were they like what other members' have described, or more? What treatment option did the vascular surgeon suggest for your dural arteriovenous fistula (dAVF)?

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@kittyrushing

Posted by Kitty Rushing. It has been six months since I last posted about my pulsatile tinnitus and nothing has changed. I still have it and my heart beat pounds in my head 24 hours a day. I have now had an mra and another kind of scan. I have received the same advice from my internist, cardiologist, and two otolaryngologists: “So sorry. You will just have to accept it.” It began 2/3 years ago with a swooshing sound when I quit taking a daily .81 aspirin after 30 years. It soon became a Heartbeat. On a doctor’s advice, I have been back on the aspirin for a year or two but the pounding continues, especially at night. I also was prescribed Losartan and Metoprolol for high blood pressure although I did not have high blood pressure but the pounding does seem to be a little slower. I am sure that every cause for this condition is different but Thanks for letting me vent.

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I’ve had pulsatile tinnitus for 10 years. Use http://www.whooshers.com for up-to-date medical info. and support.
There are a few MDs who are very knowledgeable about p.t. and you can find them using that site.
There’s a Facebook group, but I don’t use Facebook, so don’t know much about it. Most of us have found ways to deal with it, including me. Start with the Whooshers site. Hope this helped! Lisa

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@mslw

I’ve had pulsatile tinnitus for 10 years. Use http://www.whooshers.com for up-to-date medical info. and support.
There are a few MDs who are very knowledgeable about p.t. and you can find them using that site.
There’s a Facebook group, but I don’t use Facebook, so don’t know much about it. Most of us have found ways to deal with it, including me. Start with the Whooshers site. Hope this helped! Lisa

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Am going to wooshers as soon as i end this reply. Thank you so much.

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@mslw

I’ve had pulsatile tinnitus for 10 years. Use http://www.whooshers.com for up-to-date medical info. and support.
There are a few MDs who are very knowledgeable about p.t. and you can find them using that site.
There’s a Facebook group, but I don’t use Facebook, so don’t know much about it. Most of us have found ways to deal with it, including me. Start with the Whooshers site. Hope this helped! Lisa

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Thank you, Lisa.. I will take your advice!

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@morninglory

I completely sympathize with you. I have had the thumping/whoosh sound for years with no relief. It comes and goes, sometimes several times a day or night. I try very hard to ignore it which isn't an easy thing to do. No doctor has been able to offer any way to relieve it and I've heard many different theories about the cause. My theory: no one knows why it happens. Mine does not coincide with my heart beat, I thought it did but aft careful testing, it clearly does not.
If you ever find a solution please come to this board and I will do the same. In the meantime I am wishing you relief.

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Thank you, Morning Glory! If I am successful, I will let you know how I finally got rid of the constant heartbeat! I will come to this board. Good luck to you!

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@kittyrushing

Thank you, Morning Glory! If I am successful, I will let you know how I finally got rid of the constant heartbeat! I will come to this board. Good luck to you!

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Am so very glad that I read the msg. about Wooshers….. just came from that page and feel like I'm not alone with this problem. No one that I know has ever\ experienced it. All with this problem should visit Wooshers…..so relieved to know there are even some that have been cured.

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@julinguyen

Hello @sarniaalward, @mamachama, welcome to Mayo Clinic Connect.
@sarniaalward, how did you doctor's appointment go? Would you mind sharing what you learned about your pulsatile tinnitus?
@mamachama, what were your symptoms? Were they like what other members' have described, or more? What treatment option did the vascular surgeon suggest for your dural arteriovenous fistula (dAVF)?

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Hi,
For entire year, every second of the day I heard whooshing in my ear to my heart beat. Found a neurosurgeon in NYC who did an MRV & MRA. Found lots of vascular congestion due to the fact my jugular had been sutured closed due to complications from a procedure years ago. Also indicated what appeared to be the fistula. Went back for angiogram of head to fully confirm. The morning of the angiogram the whooshing stoped and the angiogram indicated the jugular had opened up and the fistula was gone ( spontaneous regression). Hope that helps. Try to find a neurosurgeon that is familiar with fistulas and the repair. Hope that helps!

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@mamachama

Hi,
For entire year, every second of the day I heard whooshing in my ear to my heart beat. Found a neurosurgeon in NYC who did an MRV & MRA. Found lots of vascular congestion due to the fact my jugular had been sutured closed due to complications from a procedure years ago. Also indicated what appeared to be the fistula. Went back for angiogram of head to fully confirm. The morning of the angiogram the whooshing stoped and the angiogram indicated the jugular had opened up and the fistula was gone ( spontaneous regression). Hope that helps. Try to find a neurosurgeon that is familiar with fistulas and the repair. Hope that helps!

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Thank you for your info and I am truly very happy for you to have found relief

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@kittyrushing

Thank you, Morning Glory! If I am successful, I will let you know how I finally got rid of the constant heartbeat! I will come to this board. Good luck to you!

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OOPOS, I meant Whooshers.

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@morninglory

OOPOS, I meant Whooshers.

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Thank you, Morning Glory!

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@mslw

I’ve had pulsatile tinnitus for 10 years. Use http://www.whooshers.com for up-to-date medical info. and support.
There are a few MDs who are very knowledgeable about p.t. and you can find them using that site.
There’s a Facebook group, but I don’t use Facebook, so don’t know much about it. Most of us have found ways to deal with it, including me. Start with the Whooshers site. Hope this helped! Lisa

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Thank you for the Whooshers .com onformation. It gives one hope. At the moment, my blood pressure is quite high and I have an appointment with my cardiologist in 4 days and my internist im two weeks and I will be discussing with both the possibilities I have learned from Whooshers . . . most particularly their plan for me to just accept the situation! I cannot accept the constant pounding, which does coincide with my heart beat. Makes you worry about running on the treadmill!!!!

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@jamienolson

Hi @tlcnurse1, Welcome to Mayo Clinic Connect.
Here is some information that Mayo Clinic has out on Tinnitus- https://www.mayoclinic.org/diseases-conditions/tinnitus/symptoms-causes/syc-20350156. Have you mentioned your symptoms to your physician? @beatricefay – do you notice your pulsatile tinnitus all day long?

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How do you get a check for Menieres disease what is the test from ent

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