Pulsatile tinnitus

Posted by beatricefay @beatricefay, Jun 2, 2018

Started getting heart beat sounds in right ear only. Got an MRA to check the arteries (no results yet). Strangely the sounds start in the evening and continue when I go to bed. I have no idea why it's quiet during the day. Has anyone else had this experience. If my arteries are okay in my brain then I have to look for other causes. Any ideas. I checked medication side effects but that doesn't seem to be the cause. One night I exercised in the evening and I had no sounds, but that didn't work yesterday. I'm perplexed.

@moomoo21

Starting having thumping sounds in my right ear. It is like 2-3 thumps, stops and starts every 20 seconds. I notice if I cover my ear completely it stops. I have a MRI scheduled and see an ENT doctor next week. How does everyone cope with the thumping especially trying to sleep?

Jump to this post

Hi, @moomoo21 – glad to see you've recently joined Mayo Clinic Connect. Welcome. That must be frustrating to have thumping sounds in your ear, stopping and starting.

I moved your post here as I thought that other members in this conversation might have some thoughts for you on what the thumping sounds in your ear might be and how they cope, especially trying to sleep. Please meet @feckert52 @beatricefay @aadgloria1401 @lizm2 and others. @lioness also may have some thoughts for you.

How has your sleep been, dealing with this sound in your ear?

REPLY
@lisalucier

Hi, @moomoo21 – glad to see you've recently joined Mayo Clinic Connect. Welcome. That must be frustrating to have thumping sounds in your ear, stopping and starting.

I moved your post here as I thought that other members in this conversation might have some thoughts for you on what the thumping sounds in your ear might be and how they cope, especially trying to sleep. Please meet @feckert52 @beatricefay @aadgloria1401 @lizm2 and others. @lioness also may have some thoughts for you.

How has your sleep been, dealing with this sound in your ear?

Jump to this post

Hello, I understand. The best description I have for mine while my head is on the pillow is a pick axe hitting an anvil.

REPLY
@moomoo21

Starting having thumping sounds in my right ear. It is like 2-3 thumps, stops and starts every 20 seconds. I notice if I cover my ear completely it stops. I have a MRI scheduled and see an ENT doctor next week. How does everyone cope with the thumping especially trying to sleep?

Jump to this post

Hi @moomoo21, did you have your appointment yet? If you’ve read other posts, than you already know that pulsatile tinnitus sounds similar to what you may have. I also started with an MRI and an ENT. Ended up at neurosurgeon. I did not cope well with the noise when I was trying to sleep, that’s what finally drove me to the doc. Have you noticed if the thumping in time
With your heartbeat?

REPLY

I hear heart beats in both ears and have been to a cardiologist and an otolaryngologist. Have you had a test to determine if a blood vessel in your brain is the culprit? How do you know if you need to have it?

REPLY
@kittyrushing

I hear heart beats in both ears and have been to a cardiologist and an otolaryngologist. Have you had a test to determine if a blood vessel in your brain is the culprit? How do you know if you need to have it?

Jump to this post

@kittyrushing i had a head mri which showed some kind of issue with a vein in the outside covering of my brain close to my right ear. At this point the ENT referred me to a neurosurgeon. He automatically recommended a cerebral angiogram to see the cause of the pulsatile tinnitus. Diagnosed with a dural av fistula. Getting ready to go have another angiogram to make sure nothing has changed.

REPLY
@beatricefay

Thanks for your reply. I was feeling very alone with this problem. It's interesting that you have a diagnosis. I'll have to look into it for myself. Is there any treatment?

Jump to this post

Hi
I have had pilsatile tinnitus for almost a year in my right ear. Been to PCP and ENT and both have no clue why this suddenly started. I had facial shingles two months later on the same side as the tinnitus but no one can give me a definitive answer as to if that was the cause. Trying to get into a neurosurgeon. You are not alone but I wish none of us had to suffer this terribly exacerbating condition. Good luck in your pursuit of a cure and let us know if you make any headway.

REPLY

I have had a small, constant ringing in my ears for the last two years. It started about the same time as a I had a huge subarachnoid cyst that needed surgery. Is there any possibility these two conditions may be connected; i.e. the tinnitus might be the ongoing result of the damage caused by the cyst. This cyst also led to the development of Transient Epileptic Amnesia, although the cyst problem itself is gone.

REPLY

I have similar occurrences with pulse in the ear in the evenings and even more so at bed time.PCP has no idea what is causing this so am seeing a vascular surgeon next week.Did you ever get relief?

REPLY
@sarniaalward

I have similar occurrences with pulse in the ear in the evenings and even more so at bed time.PCP has no idea what is causing this so am seeing a vascular surgeon next week.Did you ever get relief?

Jump to this post

Hi I have that happened to me also in the evenings and it almost hurt and the jumping in the air so when you go to the vascular surgeon would you let me know what he tells you thank you so much

REPLY

Posted by Kitty Rushing. It has been six months since I last posted about my pulsatile tinnitus and nothing has changed. I still have it and my heart beat pounds in my head 24 hours a day. I have now had an mra and another kind of scan. I have received the same advice from my internist, cardiologist, and two otolaryngologists: “So sorry. You will just have to accept it.” It began 2/3 years ago with a swooshing sound when I quit taking a daily .81 aspirin after 30 years. It soon became a Heartbeat. On a doctor’s advice, I have been back on the aspirin for a year or two but the pounding continues, especially at night. I also was prescribed Losartan and Metoprolol for high blood pressure although I did not have high blood pressure but the pounding does seem to be a little slower. I am sure that every cause for this condition is different but Thanks for letting me vent.

REPLY
@kittyrushing

Posted by Kitty Rushing. It has been six months since I last posted about my pulsatile tinnitus and nothing has changed. I still have it and my heart beat pounds in my head 24 hours a day. I have now had an mra and another kind of scan. I have received the same advice from my internist, cardiologist, and two otolaryngologists: “So sorry. You will just have to accept it.” It began 2/3 years ago with a swooshing sound when I quit taking a daily .81 aspirin after 30 years. It soon became a Heartbeat. On a doctor’s advice, I have been back on the aspirin for a year or two but the pounding continues, especially at night. I also was prescribed Losartan and Metoprolol for high blood pressure although I did not have high blood pressure but the pounding does seem to be a little slower. I am sure that every cause for this condition is different but Thanks for letting me vent.

Jump to this post

I completely sympathize with you. I have had the thumping/whoosh sound for years with no relief. It comes and goes, sometimes several times a day or night. I try very hard to ignore it which isn't an easy thing to do. No doctor has been able to offer any way to relieve it and I've heard many different theories about the cause. My theory: no one knows why it happens. Mine does not coincide with my heart beat, I thought it did but aft careful testing, it clearly does not.
If you ever find a solution please come to this board and I will do the same. In the meantime I am wishing you relief.

REPLY
@kittyrushing

Posted by Kitty Rushing. It has been six months since I last posted about my pulsatile tinnitus and nothing has changed. I still have it and my heart beat pounds in my head 24 hours a day. I have now had an mra and another kind of scan. I have received the same advice from my internist, cardiologist, and two otolaryngologists: “So sorry. You will just have to accept it.” It began 2/3 years ago with a swooshing sound when I quit taking a daily .81 aspirin after 30 years. It soon became a Heartbeat. On a doctor’s advice, I have been back on the aspirin for a year or two but the pounding continues, especially at night. I also was prescribed Losartan and Metoprolol for high blood pressure although I did not have high blood pressure but the pounding does seem to be a little slower. I am sure that every cause for this condition is different but Thanks for letting me vent.

Jump to this post

Mine is gone. Go see a vascular surgeon. You may have an AV DURAL FISTULA. It can be repaired!!

REPLY
Please sign in or register to post a reply.
  Request Appointment