Pulsatile tinnitus

Posted by beatricefay @beatricefay, Jun 2, 2018

Started getting heart beat sounds in right ear only. Got an MRA to check the arteries (no results yet). Strangely the sounds start in the evening and continue when I go to bed. I have no idea why it's quiet during the day. Has anyone else had this experience. If my arteries are okay in my brain then I have to look for other causes. Any ideas. I checked medication side effects but that doesn't seem to be the cause. One night I exercised in the evening and I had no sounds, but that didn't work yesterday. I'm perplexed.

@kittyrushing

Thank you! I will try to find one and go from there.

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If my PT gets louder then I’ll go get the cerebral venogram done to check the pressure and vein with a possible stent but that’s when it gets louder

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@aadgloria1401

Did your scans show the fistula and what were your symptoms besides the whooshing, I’m waiting to see the NIR for next steps on cerebral angiogram, they found some mild stenosis of the left transverse sinus but not sure what that’s is

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Hi, sorry for the late reply, this went to junk. The mri showed what they thought was stenosis. Once they did the cerebral angiogram, neurosurgeon Found fistula. I had the embolization about a year ago, unfortunately the noise came back after 4 months. Not nearly as bad though, so haven’t went back to doc yet.

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@aadgloria1401

Did your scans show the fistula and what were your symptoms besides the whooshing, I’m waiting to see the NIR for next steps on cerebral angiogram, they found some mild stenosis of the left transverse sinus but not sure what that’s is

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Forgot to answer your other question, no other symptoms than that. But the whooshing was so loud and constant that it was giving me major anxiety and messing up my sleep.

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@kittyrushing

Thank you! I will try to find one and go from there.

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I went to a neurosurgeon, and he finally recommended a cerebral angiogram. This is how I finally got a diagnosis of DuraL AV fistula.

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@lizm2

I have been dealing with pulsatile tinnitus in my right ear for about a year. After going to my primary, then an ENT, I finally ended up at a neurosurgeon. I had an MRI first which showed narrowing of a vein close to my ear. The neurosurgeon then performed a cerebral angiography and venography. Finally diagnosed with Dural AV Fistula. This is all pretty recent, so good times. I now have to have some kind of procedure where surgeon will block some vessels in my brain to prevent the turbulent blood flow which is causing me to hear blood swooshing in my ear. My point is there always seems to be a cause for this, so don’t give up!

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I had the cerebral angiogram but no venogram , I’m wondering why they did a venogram on you? I was told that the venogram is to check to vein pressure so I didn’t do it

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not sure, it’s all done thru the catheter so I would think he’d check pressures as well. Doc made it sound like that the only way to really know what your dealing with. The MRI showed what they thought was stenosis, but really couldn’t be sure. I didn’t care what they did, I just wanted it to go away! Right now it’s intermittent and not so loud, so I just deal with it.

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@lizm2

not sure, it’s all done thru the catheter so I would think he’d check pressures as well. Doc made it sound like that the only way to really know what your dealing with. The MRI showed what they thought was stenosis, but really couldn’t be sure. I didn’t care what they did, I just wanted it to go away! Right now it’s intermittent and not so loud, so I just deal with it.

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Mine is low to medium daily and I have to play rain music to sleep, I had the cerebral angiogram test done but not to check the pressure of the veins, this was done to rule out a fistula, when my PT gets louder then I’ll have to go and get the venogram done to check the pressure and which vein for a possible stent

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@aadgloria1401

Mine is low to medium daily and I have to play rain music to sleep, I had the cerebral angiogram test done but not to check the pressure of the veins, this was done to rule out a fistula, when my PT gets louder then I’ll have to go and get the venogram done to check the pressure and which vein for a possible stent

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My fistula is a grade 1, so just treating symptoms like PT until it gets worse. Hopefully that doesn’t happen. Good luck to you!

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@lizm2

I have been dealing with pulsatile tinnitus in my right ear for about a year. After going to my primary, then an ENT, I finally ended up at a neurosurgeon. I had an MRI first which showed narrowing of a vein close to my ear. The neurosurgeon then performed a cerebral angiography and venography. Finally diagnosed with Dural AV Fistula. This is all pretty recent, so good times. I now have to have some kind of procedure where surgeon will block some vessels in my brain to prevent the turbulent blood flow which is causing me to hear blood swooshing in my ear. My point is there always seems to be a cause for this, so don’t give up!

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I have this same thing. In my right ear, swooshing! If I hold around my ear i can’t hear it. An that’s what I do at nite, going to bed. I I have had many years now. They all have said the same thing, that it’s Tinnitus. I have gone to several ENTs an tests. They say just live with it. I have not gone to a neurosurgeon. I’m glad I read your note here. Gives me an idea to look at.Thank you.

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I had this for a few years about 8 years ago, had a cerebral angiogram to find out what was going on. Exact thing you describe (doctor could hear it if he put a stethoscope on my head in that area). After the test the doctor said it was an issue where blood was getting backed up instead of flowing properly between veins and arteries. There are two types, one of which puts you at risk for stroke and they can put in a coil of some sort to fix it if that is the case. Mine was not the dangerous type, so I let it go (he could have still put in the coil to stop the annoyance but there was too much risk since it wasn't the dangerous kind). Find someone who will do a cerebral angio to see which type yours is. It went away by itself after a few years.

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Starting having thumping sounds in my right ear. It is like 2-3 thumps, stops and starts every 20 seconds. I notice if I cover my ear completely it stops. I have a MRI scheduled and see an ENT doctor next week. How does everyone cope with the thumping especially trying to sleep?

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