Pseudomanosis: what is your protocol/medications

Posted by meleana808 @meleana808, 8 hours ago

I was diagnosed with pseudo 18mo ago Dr put me on inhale tobramycin, inhaled albuterol & 3% saline (now i do 7%). Twice a day (most days I was able to some days couldn't). Also do airway clearance. I do not have an aerobika. Just the plastic nebulizer tubing supplied by veterans.
In my last two cycles of tobi i had bad ear ringing. Told dr don't want to have that again-so he has stopped Tobi. And has said there is nothing else to use.
I find that hard to believe.
What meds are you on?
Ty

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tevadog | @tevadog | 6 hours ago

I have that. too. My doctor prescribed Cipro at two different times, the last after coughing up blood. It was totally affective. I have brevespi twice a day and ulberteral for emergencies, but now I dont need them as I'm not coughing or producing phlegm, which my doc says is a good sign. Good luck. I've had so many pulmonary doctors treat me many different ways, which .makes me mad. This last guy is totally amazing. He even walked me through a meditation I can do if the hacking cough gets out of control because I panic. I use the nebulizer when I lose my breath.