Pseudomanosis: what is your protocol/medications

Posted by meleana808 @meleana808, May 13 9:36am

I was diagnosed with pseudo 18mo ago Dr put me on inhale tobramycin, inhaled albuterol & 3% saline (now i do 7%). Twice a day (most days I was able to some days couldn't). Also do airway clearance. I do not have an aerobika. Just the plastic nebulizer tubing supplied by veterans.
In my last two cycles of tobi i had bad ear ringing. Told dr don't want to have that again-so he has stopped Tobi. And has said there is nothing else to use.
I find that hard to believe.
What meds are you on?
Ty

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@tevadog

Yes and yes. I have BE and mac and Psuedomonisis but it's under control. It's so hard to lose any weight especially at age 77 with pain that hinders my walking plus shortness of breath. Would a pulmonologist recommend weightloss meds? I'm sure my pain is weight.

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If you are interested in weight loss, the first place to start is your primary provider. It will probably require a physical, some blood tests and a med evaluation to see if you are a candidate. But the drugs are not a cure-all. You will still need to commit to lifestyle changes like diet (not dieting) and exercise to succeed.

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I have also been prescribed gentomycin inhaled in the nebulizer.

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@tevadog

Cipro is a miracle med for my bloody phlegm and other related mac and Psuedomonisis. I'm sorry you suffer from all your issues.

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I’ve used Cipro and levoquin during bad exacerbations over the years. It worked great. I will caution that it can affect your tendons. Once in a yoga class I was stretching and pointing my toes and they went into a cramp like a charlie horse. When my toes finally relaxed I had nerve damage and one toe sits higher than the others and doesn’t bend the way it used to. Also periodically my Achilles heel would ache a lot and I did worry about that tendon as well. Just something to keep an eye on.

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