Protracted Benzo withdrawal

Posted by aarniek @aarniek, Oct 30, 2016

Taken of 8mg of Ativan daily in 3 weeks and suffering terribly nearly 4 years now! Unable to walk ,have insane muscle tightness,no memory,tinnius is unbearable,unable to picture things in my mind ! After 45 months it’s worse than ever and 2 neurologists have tried only medications which all made me even worse!

I have been taking Klonzipan for over 30 years, I am taking 1.5 mg per day. i am a totally disabled vet Now the VA is taking off and it has been the only thing that has really worked for me. Any suggestions?
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Welcome to Connect @weathermike1.
Why is the VA taking you off Klonzipan? What treatment is being recommended?

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Have you told them that Klonopin is the only drug that works for you? I don’t understand why after 30 years they would even bother taking you off this drug especially if it works for you. I don’t know how the VA works when it comes to changing doctors. I guess I don’t have any concrete suggestions, but good luck anyway.

Leslie

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I just wanted to post my story
I have been taking Lorazepam for 15 years at least for sleep mostly but also for anxiety. This stuff is nasty if i only knew i would never started using it!
Im taking a total of 2 mg a day now , 1 mg at night for sleep. I guess i am doomed for life

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@ada1957

I just wanted to post my story
I have been taking Lorazepam for 15 years at least for sleep mostly but also for anxiety. This stuff is nasty if i only knew i would never started using it!
Im taking a total of 2 mg a day now , 1 mg at night for sleep. I guess i am doomed for life

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Hello @ada1957. I would like to welcome you to Mayo Clinic Connect.

Please tell us a little more about yourself. Have you been instructed by your provider to taper off of the drug?

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@aarniek

Anyone found anything that helped this brutal condition so you could have any sort of life again? I am on 8 different Benzo withdrawal sites including benzo buddies and found zero help!

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It’s now almost July 2017 and I have gotten no better in fact I took an OTC pill( one) and 4 days later I am having severe symptoms like never before! I have a pool but since 2013,after stopping my Benzo,I have not been able to even get to my pool ,muscle stiffness is still beyond belief!

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Has anything been found in 2017 to help with this insane muscle tightness and panic attacks 4-1/2 years after a 3 week taper from a high dose Benzo ,my condition has not improved and is the worse it’s ever been ! If I didn’t have total help from my wife,I could not have survived this!

Liked by brit

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Your wife is getting her strength from Our Father. She loves you and is there for what ever should happen. Pray to our Lord every time you feel you need help and courage……..you will get it…..of course with your wife’s help. She is your angel.
Your are in my prayers Patti

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I had been a hermit for about 4 years, and being unable to picture things in my mind I attribute to the same anxiety that left me unable to leave the house. Although I was really only a hermit for four years a good part of 25 years I had extreme difficulty leaving the house. Often I had to get high on booze, or benzo’s to just get me out of the door to shop for groceries. This in turn manifested itself in severe addiction which took years for me to over come.

THERE IS HOPE. I RECENTLY HAD KETAMINE TRANSFUSIONS AND MY DEPRESSION AND MY ANXIETY ARE NEARLY GONE. This is a relatively new approach which has not been FDA approved although a doctor can do it off-label. It would take millions of dollars in testing to get it FDA approved and the makers of Ketamine would not find it financially feasible to spend the money for the testing since the drug has been out around fifty years now and it costs very little and therefore the profit would be too small to pay for the testing.

Look online under ketamine and depression and ketamine and anxiety and I have not seen one bad review. I had it two weeks ago and after having suicidal idealization every day for almost twenty years I have had only one day since the treatment where it occurred. My sleep which was usually limited to four hours a night has bumped up to six or seven hours a night and my anxiety is on tenth of what it was.

I strongly advice you to look into this. It has worked wonders for me.

Liked by aarniek, brit

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@weathermike1

I have been taking Klonzipan for over 30 years, I am taking 1.5 mg per day. i am a totally disabled vet Now the VA is taking off and it has been the only thing that has really worked for me. Any suggestions?
/

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It is unclear to me whether your doctor is taking you off of the drug or if it is no longer paying for much of the prescription. If it is the later you are lucky as the generic would cost about fifty cents a milligram if I am correct and hopefully that is something you can afford. If the doctor is taking you off of it than tell us what the new therapy is going to be. For anxiety I find Lyrica works wonders. I take 150 mg 3x a day. The problem here is unless medicare pays for it or one of your type b insurance pays for it, it will cost a fortune. About $6.00 a pill Best of luck to you nd thanks for your service to our Country.

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@seeker619

I had been a hermit for about 4 years, and being unable to picture things in my mind I attribute to the same anxiety that left me unable to leave the house. Although I was really only a hermit for four years a good part of 25 years I had extreme difficulty leaving the house. Often I had to get high on booze, or benzo’s to just get me out of the door to shop for groceries. This in turn manifested itself in severe addiction which took years for me to over come.

THERE IS HOPE. I RECENTLY HAD KETAMINE TRANSFUSIONS AND MY DEPRESSION AND MY ANXIETY ARE NEARLY GONE. This is a relatively new approach which has not been FDA approved although a doctor can do it off-label. It would take millions of dollars in testing to get it FDA approved and the makers of Ketamine would not find it financially feasible to spend the money for the testing since the drug has been out around fifty years now and it costs very little and therefore the profit would be too small to pay for the testing.

Look online under ketamine and depression and ketamine and anxiety and I have not seen one bad review. I had it two weeks ago and after having suicidal idealization every day for almost twenty years I have had only one day since the treatment where it occurred. My sleep which was usually limited to four hours a night has bumped up to six or seven hours a night and my anxiety is on tenth of what it was.

I strongly advice you to look into this. It has worked wonders for me.

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I nave been off since 2-2013 and have worsened each year,now can barely move as when I try to stand my back,leg and shoulder muscles contract so hard I am forced to sit back down !Mind is messed up,lost cognitive abilities and all mid and long term memory ,wondering if I will survive? I will look into what you did but everything I have tried made me worse!

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I have never heard of that drug. Tell me more. I have depression and anxiety on a daily basis and it is really getting to me. I go back to my doctor in about 3 weeks so would love to hear from you so I can explain it to him. Right now I am on Diasapam. It does help some but overall I still have the same problems.
Please let me know what you think. I will be checking my mails and waiting on your reply.
God Bless Patti

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@aarniek

Anyone found anything that helped this brutal condition so you could have any sort of life again? I am on 8 different Benzo withdrawal sites including benzo buddies and found zero help!

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My neurologist said the tight muscles cause them to get stronger and it’s why my tightness keeps getting worse!

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@kanaazpereira

Welcome to Connect, @aarniek. Sorry to hear of all that you are going through, but please don’t despair because you have found a great place to get support and information.
@sallycanuck, @lesbatts, @lauriedr, @66693777, @wolfer1975, @seeker619, could you provide your insight into benzodiazepines, and weaning off the drug?

aarniek, I would also recommend that you check out the following discussion threads where tapering off benzodiazepines has been discussed by many other members
http://mayocl.in/2dT2tMG
Feel free to ask other members questions, and also explain a little more about yourself. The exchange of information may help others as well.

@aarniek, could you tell us why your doctor prescribed Ativan?

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Originally I was given 30 tablets in a hospital due to a throat infection,and he than give me them( my neurologist) for 9 years.

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I was prescribed benzos for 30 years, began a slow 2 year withdrawal on my own, and have now been completely off of them for 4 years. I still experience extreme groin and other joint pain and at times my brain gets foggy and shuts off if something happens that makes me anxious. That being said I know I am healing, but at a very slow pace, which has effected my life tremendously. I am a professional and am only able to work several days a week, but am so angry toward the medical community for letting this continue to happen. C

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