Protracted Benzo withdrawal

Posted by aarniek @aarniek, Oct 30, 2016

Taken of 8mg of Ativan daily in 3 weeks and suffering terribly nearly 4 years now! Unable to walk ,have insane muscle tightness,no memory,tinnius is unbearable,unable to picture things in my mind ! After 45 months it’s worse than ever and 2 neurologists have tried only medications which all made me even worse!

@lesbatts

You can try benzos.org. I’ve noticed that many people that are taken off benzos are doing it way to fast. Look under Dr. Heather Astons manual on Benzos.org she has extensive experience helping people get off from them. I used her method last time I went off benzos and it was a fairly smooth ride.

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If I were a doctor and I’m not aarniek I would say that your muscle problem is probably from your Ativan withdrawal, how long were you on it and how long have you been off? Have you seen a doctor? Hopefully it will abate on it’s own, Take care and keep us up to date.

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@aarniek

Anyone found anything that helped this brutal condition so you could have any sort of life again? I am on 8 different Benzo withdrawal sites including benzo buddies and found zero help!

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Hi, @aarniek, I can give you 2-3 perspectives in suffering from withdrawal. First and foremost – I feel the utmost empathy for you! Benzo withdrawal is horrible. It’s only supposed to be prescribed as temporary in order for a person to use non – med coping skills while realizing you control yourself, a situation doesn’t control you. The doctors forget to enforce that, let alone even say it. Benzos should be temporary! Even with the most severe cases of trauma, the care providers should see to it the patient is being given appropriate therapy to give them their power back. You should have very, VERY slowly been weaned off of them due to seizure potential, let alone FULL BLOWN panic attacks! We become dependent on not having to deal with intense emotions bc we have a pill to mute them to a tolerable level. Once the pull has been discontinued, you have what you had before or worse-nothing.
Your brain has to catch up. Benzos push serotonin and other hormones of of whack and unfortunately it takes time for the brain to catch up.
As a counselor, I suggest (and practice) good sleep hygiene, moderate daily physical activity, meditation, Journaling, aromatherapy, massage, candles, swimming, anything to increase endorphins – the more of these things you do that make you feel physically more healthy, the faster you will get back into synch of whatever normal is for you.
Best,
Suzanne, MEd, CRADC, LPC

Liked by aarniek

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My doctor said pain killers can help in the short term to relax muscles that are tight. No addiction with them. The pain causes you to tense even more so relieving the pain lets the muscles relax and gives time for healing of the muscles so you do not go back to tight muscles.

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@johnhans

My doctor said pain killers can help in the short term to relax muscles that are tight. No addiction with them. The pain causes you to tense even more so relieving the pain lets the muscles relax and gives time for healing of the muscles so you do not go back to tight muscles.

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No Disrespect, I’m an Addictions counselor – painkillers are HIGHLY addictive. I worked with a 28 year old one waiting for a new liver bc of addiction to pills. And it happens overnight. If you take ONLY as prescribed, you’ll be fine. Please, please be careful!

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@aarniek

Anyone found anything that helped this brutal condition so you could have any sort of life again? I am on 8 different Benzo withdrawal sites including benzo buddies and found zero help!

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Live in Florida- waterfront/pool- surely if I could get to my pool I would ! This muscle tightness is so strong that it takes all I have to get to a treadmill next to my chair and do 5 minutes,after which I struggle to sit back down! I have no mental issues and if I sit with my head back in my recliner the tightness is only in my head and neck and tolerable ,but as soon as I stand ,it’s all back and back breaking back! In the early days of withdrawal ,when I could still walk ,my neurologist gave me every muscle relaxer there was and they all made me worse ! Before stopping the Benzo I was swimming and exercising daily . I weigh 136 # so I am thin ,but that has not helped! I really thought I was going to get over this in a year and try to be upbeat,but it’s getting so hard and my wife has her life on hold waiting on me for everything ! Thank you for responding ,it’s appreciated!

Liked by Suzz

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@aarniek

Anyone found anything that helped this brutal condition so you could have any sort of life again? I am on 8 different Benzo withdrawal sites including benzo buddies and found zero help!

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Never, never, never give up! They say the more you move (don’t go rock climbing or nothin’), the muscles loosen and get used to that movement loosening those muscles a little at a time. This develops more stability. Again, I hate it that you’re in pain. We can be sisters in pain. No that sounds horrible. Sisters in recovery! You can private message me if you want to connect by text or whatever. I always have time between clients to help. Have a good weekend!
Suz

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Never took a pain medicine stronger than Ibruprofin ,don’t have and never did have any pain associated with this insane muscle tension except from a chronic tension headache which is tolerable and when I stand my back muscles contract to where I feel my back will break so I sit back down and that’s gone ! No one including my neurologist,seems to have an answer ,but I don’t give up and keep hoping I may find one ! Thanks for responding .

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@aarniek

Never took a pain medicine stronger than Ibruprofin ,don’t have and never did have any pain associated with this insane muscle tension except from a chronic tension headache which is tolerable and when I stand my back muscles contract to where I feel my back will break so I sit back down and that’s gone ! No one including my neurologist,seems to have an answer ,but I don’t give up and keep hoping I may find one ! Thanks for responding .

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I pray you find this course Is highly effective. You’re in my thoughts!

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@aarniek

Anyone found anything that helped this brutal condition so you could have any sort of life again? I am on 8 different Benzo withdrawal sites including benzo buddies and found zero help!

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Guess what ,no pain associated with this insane muscle tightness ! Tension headache is tolerable and the back only hurts when I stand and it varies from severe to tolerable ,so if it’s severe I sit back down and it’s gone ! So as far as exercise I have a treadmill next to my chair and thy to do 5 minutes a day as I have a handle to hold on to ,but the most I have been able to do was a few times 12 minutes ! Probably not a factor ,but I am a thin 135# ! Thank you for responding and in almost 4 years no one not even 2 neurologists have been able to help!

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Did I miss something? What course am I following? Did you suggest something ? Arnie.

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@aarniek

Did I miss something? What course am I following? Did you suggest something ? Arnie.

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I’m sorry, course of treatment, treatment direction.

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@aarniek

Anyone found anything that helped this brutal condition so you could have any sort of life again? I am on 8 different Benzo withdrawal sites including benzo buddies and found zero help!

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Hey @suzz, you’ll notice that I removed your email from the discussion board. We encourage members to use the private message function to share contact information. Private messaging is secure. Posts to the discussion board are public and want to keep members safe and avoid your getting unwanted spam, etc.
Thanks
Colleen
Community Director.

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@aarniek

Anyone found anything that helped this brutal condition so you could have any sort of life again? I am on 8 different Benzo withdrawal sites including benzo buddies and found zero help!

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Yeah I asked about it , sorry !

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@aarniek

Anyone found anything that helped this brutal condition so you could have any sort of life again? I am on 8 different Benzo withdrawal sites including benzo buddies and found zero help!

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No problem, Suzz.

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In the nearly 4,years ,one thing I have found is that there is no treatment,unless someone on here knows of one? My hope is to find something,anything to help make this bearable as now it is not because it’s worsening at a faster rate than ever!

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