Diagnosing Prostatitis: urine vs prostate culture

Posted by normandhebert @normandhebert, Jun 12 11:09pm

I am beginning this discussion in the hopes of saving other men the nightmare I went through. I am a healthy fit 60-year-old with no health concerns, however, I was diagnosed with prostatitis in January 2022. Began with severe testicular pain and was rushed to emergency room crying uncontrollably due to pain. Pelvic CT, testicular exam Etc ruled out all other conditions and I was diagnosed with prostatitis and sent home with Percocet. To make a 5-month long very painful story short. I went thru Four USELESS urologists, four more testicular exams, 2 digital rectal exams, five urinalyses which all showed no bacteria or stds, 4 wks of levofloxacin, 3 weeks of doxycycline, and 10 weeks of percocet and gabapentin use to manage the pain, along with depression, weight gain etc. FINALLY my own research led me to ask my new urologist about using a semen sample to test for bacteria in the prostate. BINGO, from one sample he identified the bacteria and put me on a specific antibiotic called Suprax (Cefexime) for 2 weeks and the symptoms cleared. Had my first urologist or even the ER doctor suggested testing a semen sample they would have saved me 5 months of the worst nightmare of my life. I hope my post helps other men to avoid what I went through.

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Hello @normandhebert
The same scenario happened to my 65 year old brother. It wasn't until he went to a Mayo Clinic urologist, who did a prostrate culture to properly diagnose the infection. All our local urologists the urine culture to identify the infection, which leads to an incorrect diagnosis. Thank you so much for taking the time to alert others about this problem. You are very kind to sound the alarm and protect others from the pain and unnecessary suffering. Unfortunately, it sounds like your experience is way to common. I can't believe that the local specialists are unaware of the need for a prostate culture. This is crazy to me. Where did you go to get properly diagnosed?

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@hello1234

Hello @normandhebert
The same scenario happened to my 65 year old brother. It wasn't until he went to a Mayo Clinic urologist, who did a prostrate culture to properly diagnose the infection. All our local urologists the urine culture to identify the infection, which leads to an incorrect diagnosis. Thank you so much for taking the time to alert others about this problem. You are very kind to sound the alarm and protect others from the pain and unnecessary suffering. Unfortunately, it sounds like your experience is way to common. I can't believe that the local specialists are unaware of the need for a prostate culture. This is crazy to me. Where did you go to get properly diagnosed?

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Good morning. Thanks for your reply. I went to Ryan powers, very young and cocky, Dr Kaplan, the same, Dr Agins, all useless, just did urine test, testicular exam and d r e and sent me on my way. Not one of them explained what prostatitis is, how you get it or anything. Finally went to Dr. M. Michael Hayyeri in phoenix. Very kind man. He sat down with me in no hurry and asked me to explain what was going on. When I said, you mean the entire last 4 months? He said, absolutely. He listened attentively and then proceeded to tell me what prostatitis was, how they believe it is acquired although in my case we have no clue because I have never had a UTI in my life, how it is treated and specifically why it is so difficult to treat. I must say that although all the young women in his office are extremely friendly, the office does not seem to be run very well. That being said I would highly recommend him because he is the only one who took the time to listen, and properly diagnose my condition, and he will be my urologist from now on.

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@normandhebert

Good morning. Thanks for your reply. I went to Ryan powers, very young and cocky, Dr Kaplan, the same, Dr Agins, all useless, just did urine test, testicular exam and d r e and sent me on my way. Not one of them explained what prostatitis is, how you get it or anything. Finally went to Dr. M. Michael Hayyeri in phoenix. Very kind man. He sat down with me in no hurry and asked me to explain what was going on. When I said, you mean the entire last 4 months? He said, absolutely. He listened attentively and then proceeded to tell me what prostatitis was, how they believe it is acquired although in my case we have no clue because I have never had a UTI in my life, how it is treated and specifically why it is so difficult to treat. I must say that although all the young women in his office are extremely friendly, the office does not seem to be run very well. That being said I would highly recommend him because he is the only one who took the time to listen, and properly diagnose my condition, and he will be my urologist from now on.

Jump to this post

Excellent information @normandhebert
Thank you so much for taking the time to educate everyone on this platform. You may save someone from a lot of unnecessary pain and suffering by providing the appropriate diagnostic test name. Now everyone in the group is aware of this test and when to request it. Excellent heads-up. Have a wonderful day 😊

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@normandhebert, thanks for starting this discussion. I also added it to the Men's Health group (https://connect.mayoclinic.org/group/mens-health-1/) so more men would see it.

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