1. < Osteoporosis & Bone Health

Prolia treatment for osteoporosis: What is your experience?

Posted by Veruska @veriska, Mar 7, 2017

I received the results from my bone test and they have recommended I start Prolia. I have read the side effects and I am concerned. Has anyone use this drug and if so what side effects have you experienced. Thank you

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swim4ever | @swim4ever | Jan 13, 2019
In reply to @dracena "I agree with you, I will never take another Prolia injection." + (show)
@dracena

I agree with you, I will never take another Prolia injection.

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Did you have to win yourself off it and how many injections did you have before you stop taking it

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dracena | @dracena | Jan 13, 2019

I had one injection and will never do that again. I could not get up from the sofa, had no strength in my legs, had trouble walking more than a few steps. It took me several months to get back to a somewhat normal walk. Before taking Prolia I was walking 2 miles a day but Prolia ended that.

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swim4ever | @swim4ever | Jan 13, 2019

Thank you so much for letting me know did you stop on your own or did you have the doctor put you on something else right after you stop taking prolia? I'm so sorry to hear that you're not feeling well

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oneof6 | @oneof6 | Jan 13, 2019
In reply to @modernart "Hi Recently, my doctor told me to start Prolia and I like your sel found sideffects..." + (show)
@modernart

Hi Recently, my doctor told me to start Prolia and I like your sel found sideffects and high cost so I decide to take Fosomax which does have side effects but it is les expensive. I will not be taking this medication for too long as I’ve increased my exercises, vegetable consumption , timing my calcium supplements for better absorption. Additionally, I taking more Vit k which helps direct calcium into the bones. I’ve cut out coffee, and considerably reduced my alcohol consumption to 1/2 glass of wine with dinner. I also have appts with Rehab MD and a Feldenkrais class. Whatever I can do on my own I’ll be glad to do. I am very concern and looking forward to doing better. I can’t undergo the Bone density or another 24months so I’ll see how much my t-score is then. No one in this community has given any positive reports on these medications . It would be very hopeful for me to read a positive report. I would like to know how much of Vit D , Magnesium, and VitK. MY PCP didn’t say much to me other than “Don’t fall” and go to the gym more often. I was very disappointed in him or his lack of support and knowledge. He didn’t even refer me for Physical Therapy or Rehab.

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I have not met any Drs. that know anything about Prolia. You would think Orthopedic surgeons would know something but they don’t!

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1 reply
lioness | @lioness | Jan 13, 2019
In reply to @oneof6 "I have not met any Drs. that know anything about Prolia. You would think Orthopedic surgeons..." + (show)
@oneof6

I have not met any Drs. that know anything about Prolia. You would think Orthopedic surgeons would know something but they don’t!

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@oneof6 you are so right ,read all the post here and side effects some people have to live with

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twocents | @twocents | Jan 13, 2019

I’ve chosen not to go on Prolia like many of the rest of you. After reading all the side affects and what people
Have said on here it sounds horrible. I have been going to a physical therapist who has been a wealth of information. So much more than any of my doctors. So along with my PT’s expertise and watching my diet I have chosen to tackle this challenge with what my gut tells me. Best of luck to all of you!

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1 reply
swim4ever | @swim4ever | Jan 13, 2019

I was going for physical therapy but once they found out that I had osteoporosis and arthritis they told me there was nothing else they could do

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1 reply
lioness | @lioness | Jan 13, 2019
In reply to @twocents "I’ve chosen not to go on Prolia like many of the rest of you. After reading..." + (show)
@twocents

I’ve chosen not to go on Prolia like many of the rest of you. After reading all the side affects and what people
Have said on here it sounds horrible. I have been going to a physical therapist who has been a wealth of information. So much more than any of my doctors. So along with my PT’s expertise and watching my diet I have chosen to tackle this challenge with what my gut tells me. Best of luck to all of you!

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@twocents Good for you My girlfriend went this route along with the bone vitamins 10 yrs ago she is doing 👍

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swim4ever | @swim4ever | Jan 13, 2019

What vitamins is she taking

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lioness | @lioness | Jan 13, 2019
In reply to @swim4ever "I was going for physical therapy but once they found out that I had osteoporosis and..." + (show)
@swim4ever

I was going for physical therapy but once they found out that I had osteoporosis and arthritis they told me there was nothing else they could do

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@swim4ever That's rediculus Go to another P.T.group or go on your own to a gym at the gym where my girlfriend went to there are therapist there who helped her pick the right machines plus she takes a complete Vitamin-Mineral every day and swims or water aerobics I should say ,be your own advocate ,you know your body better then anyone ,Don't let anyone tell you ,you can't sorry I got on my soapbox but that isnt right what she said.

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