Prolia treatment for osteoporosis

Posted by Veruska @veriska, Mar 7, 2017

I received the results from my bone test and they have recommended I start Prolia. I have read the side effects and I am concerned. Has anyone use this drug and if so what side effects have you experienced. Thank you

My endocrinologist prescribes it for me.

REPLY

I am not sure how to post on this site. I have been on Prolia for 7 years. I am 63. I was put on it after 2 years of Boniva because my hip reading went to -2.8 at age 57. I have never had any side effects and my bone density readings are normal or osteopenia. Has anyone out there had success with Prolia? I am told that after 10 years I should stop but the consequences seem dire. Has anyone successfully weaned off of Prolia? Has anyone used Strontium Citrate for that? I do weight bearing exercises, take calcium. I only hear horror stories. I understand that the bone density tests aren't giving the true structure of the bones when on Prolia. Any replies would be greatly appreciated. Thank you.

REPLY

I thought Prolia had not been around for very long. I thought it was a newly prescribed drug, but you said you hv been on it for 7 yrs. So you had Osteopenia when you were put on Boniva ? Am I understanding that after Boniva even tho you were in Osteopenia status, you were put on Prolia at that time? Or are you writing that after having been on Prolia you status went to Osteopenia?

REPLY
@dlm1215

Hi again…I also had a gastric by pass 20 yrs ago, hysterectomy, have inflammatory RA, Sjogren’s, and nobody has suggested I find the cause of my dilemma… you all seem very educated about your needs and research must have helped… I just hope I find the right path before I have a fracture…I am not sure where to start but does anyone feel it necessary to go to endocrinologist or an osteoporosis clinic….

Jump to this post

@dlm1215
I highly recommend a consult with an endocrinologist. My internist described endocrinologists as the IT team of the body. They are incredibly smart and have to know how all the body systems work together. If you have not seen one yet why not ask for a referral?

I don't think you will be disappointed.

Liked by Dee, lioness, swim4ever

REPLY
@susan30

I thought Prolia had not been around for very long. I thought it was a newly prescribed drug, but you said you hv been on it for 7 yrs. So you had Osteopenia when you were put on Boniva ? Am I understanding that after Boniva even tho you were in Osteopenia status, you were put on Prolia at that time? Or are you writing that after having been on Prolia you status went to Osteopenia?

Jump to this post

Prolia was approved by the FDA in 2010.

Liked by Dee

REPLY
@marib

I am making the decision today. Prolia or Reclast. I am concerned about the listed side effects. Please tell me your experiences with either. Thank you.

Jump to this post

I, too, need to make that decision in the next week. Prolia or Reclast? Fosamax , after 2 years, resulted in gastritis. Any advice is appreciated.

Liked by Dee

REPLY
@ldawn

I, too, need to make that decision in the next week. Prolia or Reclast? Fosamax , after 2 years, resulted in gastritis. Any advice is appreciated.

Jump to this post

On May 15, I repeat the bone density test after one full year on Prolia. I chose not to treat my osteoporosis until now (big mistake). Unable to tolerate bisphosphanates and unwilling to take Forteo. No side effects from Prolia so far. If there has been improvement will have another injection on that day. (I am 64, but was diagnosed with osteoporosis at least eight years ago).

Liked by Dee, ldawn

REPLY

I have been on Prolia for two years. After first year, bone density showed improvement. Will have another bone density next year. I have had no side effects so far. I am 59 years old and was diagnosed with osteoporosis approximately 9 years ago after having a ankle stress fracture.

REPLY

Has anyone been on Reclast? How was is for you?

Liked by Dee

REPLY

@quiteachiver75 I AM HAVING MY THIRD PROLIA THIS WEEK HAD NO SIDE EFFECTS

REPLY
@ldawn

Has anyone been on Reclast? How was is for you?

Jump to this post

I was on Reclast for six years, that was the max allowed then. I didn’t have any side effects at all. During that time my bone scans remained the same; at least there was no decline. Now after three years of no meds at all I will be seeing an Endocrinologist in early May. Hopefully there will be no decline. I am positive because I had two ankle injuries last year with no bone breaks.

REPLY

Glad to hear that. Did you change your diet or exercise?

Liked by Dee

REPLY

I HAVE BEEN ON PROLIA FOR A YEAR WITH ABSOLUTELY NO SIDE EFFECTS….PLUS I AM TAKING CARE OF MY HUSBAND WHO HAS ALS…..WE ARE BOTH IN OUR 80'S……I THINK PROLIA SURELY HELPS SOMEONE WITH POOR BONE DENSITY…………JAN

REPLY
@ldawn

I, too, need to make that decision in the next week. Prolia or Reclast? Fosamax , after 2 years, resulted in gastritis. Any advice is appreciated.

Jump to this post

To date I have had 3 Prolia injections. I have had no negative effects. Since it is expensive it is best if you check with your insurance people to verify that they will cover the cost.

REPLY

There is a copay card thru Prolia, check into this.

REPLY
Please login or register to post a reply.