Prolia treatment for osteoporosis

Posted by Veruska @veriska, Mar 7, 2017

I received the results from my bone test and they have recommended I start Prolia. I have read the side effects and I am concerned. Has anyone use this drug and if so what side effects have you experienced. Thank you

I had two shots and I want to go off it. Any suggestions?

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@swim4ever: From what I understand, getting off Prolia is not that easy without risk. I would consult your physician, or find one who understands your isssues. Despite all our suggestions here, few if any of us are doctors, and so take the advice with caution.

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@swim4ever

I had two shots and I want to go off it. Any suggestions?

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I had 3 shots and went off of it. I haven’t met a Dr. yet Who is knowledgable about this drug. I’d rather take the risk than live my life with horrible lower back and hip pain that I never had before the shot. The orthopedic surgeons say my hip and lumbar spine look great on MRI. 🤷‍♀️🤷‍♀️🤷‍♀️That’s just my experience. Look at all the other posts in this forum. Good luck to you.

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Has anyone started prolia who is currently getting immunotherapy? Just want to know if side effects of taking both meds. I have lots of joint pain from immunotherapy and was reading prolia causes joint pain as well. Not sure I can endure much more joint psin!

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@oneof6

I had 3 shots and went off of it. I haven’t met a Dr. yet Who is knowledgable about this drug. I’d rather take the risk than live my life with horrible lower back and hip pain that I never had before the shot. The orthopedic surgeons say my hip and lumbar spine look great on MRI. 🤷‍♀️🤷‍♀️🤷‍♀️That’s just my experience. Look at all the other posts in this forum. Good luck to you.

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Did you go on another drug after stopping Prolia? My fourth shot was due a month ago, and I have decided I just can't continue with it. With the potential for rebound fractures, I feel trapped. With most medications, I review the potential side effects and experience none of them. With Prolia, I can tick off quite a few on the list. Just recently I have started experiencing jaw pain, which is really scaring me.

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I'm not getting another shot and I'm going to monitor my calcium and D levels. I'm starting some light weights to add to my routine. Im going for an herbal evaluation today to check on everything I put into my body meaning vitamins and herbs .

Liked by lioness

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I have been getting prolia shots for 5 years along
with 50,000 mg of vitamin D a week. My DexScan is worse! It’s now -3.1 and they can’t revise my surgery because my bones are too soft. I had the surgery Nov 14th it has failed because my bones aren’t strong enough to hold hardware. So 5 years of Prolia did me no good at all.

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Im so sorry to hear this. I hope and pray something will work out for you

Liked by user_chf56161a

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@jaleen

I appreciate your response and that of others in the group about the efficacy of Forteo and Prolia, but I am disappointed that no one mention how much improvement (% according to a dexa-scan) they have made. I have 3 friends who had the 2-year treatment with Forteo. Results were 0%, 2% and 5% improvement. I don't happen to think that small amount of improvement is worth the risks involved with Forteo and the user reviews I've read are not at all reassuring as some reported horrendous pain and disability after starting the treatment. About Prolia, same thing – small improvement (2 %) that hardly compensates for the risks involved. A doctor in Canada even told a traveling companion of mine  - "Don't you DARE go on Prolia – it's very hard on the system."

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I have been on Prolia shots twice a year for 5 yrs. The DexScan is worse I’m at -3.1 I’ll be seeing encronoligist hopefully soon.

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I have had one shot of Prolia. Not sure I want to continue because my osteoarthritis pain is getting worse and seems to be spreading to more parts of my body. I don't know if Prolia is contributing to the joint and muscle pain, which is a side effect. I also don't get that it can cause increased fractures when the drug is supposed to be strengthening your bones. I probably need to force myself to exercise instead.

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Before you continue more shots, I suggest doing as much research as you can on the drug you have been given. Any new health issues that you are now experiencing may or may not be related to Prolia, but there are so many, many side-effects from the osteoporosis drugs on the market that everyone taking them needs to find out as much as they can about them….and I highly suggest you also read and search out sources where people who have actually used these drugs share their experience with them.

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I have stopped it and Im not taking any more

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I have been on Prolia for four years . Inject it myself – retired nurse – . Better for me than the oral medications that made my heartburn worse.

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@mabel343

Did you go on another drug after stopping Prolia? My fourth shot was due a month ago, and I have decided I just can't continue with it. With the potential for rebound fractures, I feel trapped. With most medications, I review the potential side effects and experience none of them. With Prolia, I can tick off quite a few on the list. Just recently I have started experiencing jaw pain, which is really scaring me.

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@mabel343 I’m not worried about going off. One Dr. said keep taking lots of calcium and Vitamin D and try not to fall! Exercise to improve balance and hope for the best. This drug has not been used long enough in my opinion. I ask every Dr. I see including orthopedic surgeons and no one seems to know much about it. My joint pain is going away very slowly except for hips and lower back. Only you know your body and what’s normal for you. So you have to use your best judgment.👍🏻👍🏻👍🏻

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@veriska

I want to thank everyone for your reply. It helps with my decision. I am at -2.9. Has anyone started Prolia at or above that degree?

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I'm at -2.9 for my hip & since I'm in rural N. Dakota I hv only a GP Dr & he suggested Prolia . I'm a bit afraid because even tho there are many good reviews, there are also reviews that sound awful. I have Microscopic Colitis & am taking the steroid med Budesonide 8 wks on & 8 wks off. My gastro dr says even tho I'm on Budesonide, that its ok to take the Prolia injection. I'm just wondering if I will see bone density increase bec of the steroid Budesonide. Its going to be a wait & see on my Dexascan in 1 yr from now. Today Feb 18, 2019 I'm scheduled for my Prolia injection.

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