Veruska
@veriska
@veriska
Posts: 6
Joined: Jul 07, 2016
Prolia treatment for osteoporosis
I received the results from my bone test and they have recommended I start Prolia. I have read the side effects and I am concerned. Has anyone use this drug and if so what side effects have you experienced. Thank you
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susan30
@susan30
@susan30
Posts: 29
Joined: Feb 03, 2019
mabel343, the doctor honestly told me NOTHING. His nurse called after my scan and told me they want me to take Prolia and for me to start taking vitamin D and calcium. Not one more word! I am going to cancel my appointment. My total T- score was 2.5 (I think…I don't even know how to read this report). No fractures. I requested membership this morning to a couple of support groups. Waiting to hear back from them. Thank you for your input.
Please tell us how to find these support groups you are waiting to hear from. I also would definitely like to join. From Susan Vallejo
Please tell us how to find these support groups you are waiting to hear from. I also would definitely like to join. From Susan Vallejo
@susan30 There are support groups on Facebook. I just typed the word 'Prolia' in the Facebook search field and several groups popped up. You have to answer a couple of questions and wait to get accepted into the private group. It didn't take but about an hour for both of my requests to be approved. Then just read through posts, ask questions, encourage someone else with your experiences, etc. Also search 'Osteoporosis' and you will find several groups there as well.
A T-score of -2.5 or lower qualifies as osteoporosis. A T-score of -1.0 to -2.5 signifies osteopenia, meaning below-normal bone density without full osteoporosis, so looks like you are right on the line. In addition to Calcium and D, I take Magnesium, Vitamin K2-4 and Boron. all important for calcium absorption. I couldn't find K2-4 on the shelf at the drugstore, but it was available on Amazon. Did you join "Osteoporosis: Myths & Facts" on Facebook? Just relax for now and absorb as much information as you can. It can be confusing, but in time you will be able to make some sense of it all.. There are also good sources of exercises for osteoporosis on YouTube, particularly a couple of physical therapists who not only know what they are doing, but they are also funny.
@mabel343 Thanks for all the additional info. I have not joined the group you mentioned but will do that shortly.
twocents
@twocents
@twocents
Posts: 33
Joined: Oct 28, 2018
mabel343, the doctor honestly told me NOTHING. His nurse called after my scan and told me they want me to take Prolia and for me to start taking vitamin D and calcium. Not one more word! I am going to cancel my appointment. My total T- score was 2.5 (I think…I don't even know how to read this report). No fractures. I requested membership this morning to a couple of support groups. Waiting to hear back from them. Thank you for your input.
@cubbysgirl what support groups did you subscribe to? I’d like to do that. I went to a PT that specializes in osteoporosis. She has been a wealth of information!
twocents
@twocents
@twocents
Posts: 33
Joined: Oct 28, 2018
@susan30 There are support groups on Facebook. I just typed the word 'Prolia' in the Facebook search field and several groups popped up. You have to answer a couple of questions and wait to get accepted into the private group. It didn't take but about an hour for both of my requests to be approved. Then just read through posts, ask questions, encourage someone else with your experiences, etc. Also search 'Osteoporosis' and you will find several groups there as well.
@cubbysgirl thanks for the info. I should have read this before I asked you this same question earlier.
user_chf56161a
@user_chf56161a
@user_chf56161a
Posts: 65
Joined: Jul 08, 2018
I had no side effects. I got a shot every six months.
It did me no good. My Dexascan is worse. 6 years on Prolia. The Drs are testing me to why I don’t absorb vitamin D. Best of luck.
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susan30
@susan30
@susan30
Posts: 29
Joined: Feb 03, 2019
I had no side effects. I got a shot every six months.
It did me no good. My Dexascan is worse. 6 years on Prolia. The Drs are testing me to why I don’t absorb vitamin D. Best of luck.
What was your T-score when you had your 1st Prolia ?….and T-score after 6 yrs ?
I'm troubled about taking Prolia….so many have had problems & yet many claim its helped their bone density.
My hip is -2.9
lioness
@lioness
@lioness
Posts: 7227
Joined: Jan 09, 2018
@susan30 You are right a lot of people hate what it has done to them but on the other hand it has helped some All the post on here are,nt in favor but its your decision My friend had osteoporosis but had one shot of a different med for her bones she had a bad reaction so didn't take anymore instead she went for the weight training swimming Vit D3 at the time her endocrinologist put her on 50,000 mg her D was so low but now she takes 10,000mg , calcium and magnesium and her osterporosis is under control . But in the long end its up to you what you want to do.
susan30
@susan30
@susan30
Posts: 29
Joined: Feb 03, 2019
@susan30 You are right a lot of people hate what it has done to them but on the other hand it has helped some All the post on here are,nt in favor but its your decision My friend had osteoporosis but had one shot of a different med for her bones she had a bad reaction so didn't take anymore instead she went for the weight training swimming Vit D3 at the time her endocrinologist put her on 50,000 mg her D was so low but now she takes 10,000mg , calcium and magnesium and her osterporosis is under control . But in the long end its up to you what you want to do.
Thx for your comments ….. Diagnosed 2 mos ago with Osteoporosis. GP dr suggested Prolia.
Have taken calcium w mag / zinc/ D3 for years. I started taking Algae Cal (4 gel caps a day) ordered out of Vanc BC (has boron & K2 in it). Has good reviews re helping building bone density.
I also have microscopic lymphocytic colitis diagnosed 1 yr ago – gastro doc put me on Budesonide 8 wks on / 8 off. Then switched me to Azathioprine at the lowest dose. In my research I read those RXs thin bone density. I'm off the Azathioprine by choice. Those 2 RX's calm the bad diarrhea that comes with Colitis. Up until taking those RXs I had pretty strong bones. I'm in ND so only 2 Endocrinologists are in the state 400 miles away from me so I'm looking to go to Billings MT to meet with an Endo dr there & get their opinion how to cope with Colitis & my diagnosis of Osteoporosis. They fight against each other if I stay on Budesonide & try to build bone density at the same time….grrrr
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lioness
@lioness
@lioness
Posts: 7227
Joined: Jan 09, 2018
Thx for your comments ….. Diagnosed 2 mos ago with Osteoporosis. GP dr suggested Prolia.
Have taken calcium w mag / zinc/ D3 for years. I started taking Algae Cal (4 gel caps a day) ordered out of Vanc BC (has boron & K2 in it). Has good reviews re helping building bone density.
I also have microscopic lymphocytic colitis diagnosed 1 yr ago – gastro doc put me on Budesonide 8 wks on / 8 off. Then switched me to Azathioprine at the lowest dose. In my research I read those RXs thin bone density. I'm off the Azathioprine by choice. Those 2 RX's calm the bad diarrhea that comes with Colitis. Up until taking those RXs I had pretty strong bones. I'm in ND so only 2 Endocrinologists are in the state 400 miles away from me so I'm looking to go to Billings MT to meet with an Endo dr there & get their opinion how to cope with Colitis & my diagnosis of Osteoporosis. They fight against each other if I stay on Budesonide & try to build bone density at the same time….grrrr
@susan30 Sounds like a smart move . You are your own advocate and sounds like you are good . We know our bodies better then anyone so keep advocating. Going to the endo is a good choice.
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TERESA LOGAN
@quiteachiver75
@quiteachiver75
Posts: 115
Joined: Nov 30, 2018
What was your T-score when you had your 1st Prolia ?….and T-score after 6 yrs ?
I'm troubled about taking Prolia….so many have had problems & yet many claim its helped their bone density.
My hip is -2.9
I have had three injections of Prolia with no side effects my bones are very good. Good luck
Liked by Teresa, Volunteer Mentor
Teresa, Volunteer Mentor
@hopeful33250
@hopeful33250
Posts: 9939
Joined: Mar 28, 2016
I had no side effects. I got a shot every six months.
It did me no good. My Dexascan is worse. 6 years on Prolia. The Drs are testing me to why I don’t absorb vitamin D. Best of luck.
@user_chf56161a
I am interested in knowing what types of tests are being done to determine why you don't absorb Vitamin D?
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@mabel343
A T-score of -2.5 or lower qualifies as osteoporosis. A T-score of -1.0 to -2.5 signifies osteopenia, meaning below-normal bone density without full osteoporosis, so looks like you are right on the line. In addition to Calcium and D, I take Magnesium, Vitamin K2-4 and Boron. all important for calcium absorption. I couldn't find K2-4 on the shelf at the drugstore, but it was available on Amazon. Did you join "Osteoporosis: Myths & Facts" on Facebook? Just relax for now and absorb as much information as you can. It can be confusing, but in time you will be able to make some sense of it all.. There are also good sources of exercises for osteoporosis on YouTube, particularly a couple of physical therapists who not only know what they are doing, but they are also funny.