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Are you a caregiver for someone with Progressive Supranuclear Palsy?
Are you a caregiver for or do you know someone diagnosed with PSP? Can you please share what have been the main milestones or issues with your patient/loved one during the process, since there is not much information out there for us?
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I’m sorry that you’re having to deal with this disease. It’s a tough disease. My answer to your question is the recommendation is to look into the July online course for newly diagnosed patients and caregivers offered by CurePSP. You can find it (if you ignore all of the fund-raising) on their website.
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1 ReactionI just checked their website. The next series of educational/support sessions I referred to, starts July 28.
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1 ReactionYes, it is very hard to be a caregiver for a loved one with this illness. I did not know about this group/site. I will certainly look into it. Thank you so much.