Primary Orthostatic Tremor

Posted by helenstamas @helenstamas, Aug 10 5:20pm

A couple of years ago I was on this website and the topic was Orthostatic Tremor. because I had it I would like to communicate with someone who has the same condition. Also I would like to know if the condition worsens over time. Suddenly, mine has.

Hi @helenstamas, welcome to Mayo Clinic Connect. Might it have been this discussion that you read a couple of years ago?
– Monthly shaking episodes that continue to progress https://connect.mayoclinic.org/discussion/monthly-shaking-episodes-that-continues-to-progress/

I'm glad that you started this new discussion specifically about orthostatic tremor. For people who may not be familiar with OT, here's a great explanation:
https://newsnetwork.mayoclinic.org/discussion/orthostatic-tremor-significantly-affects-quality-of-life/
Helen, can you share a bit more about yourself? When were you diagnosed with orthostatic tremor? Did it take a while before your were diagnosed? What aspects of the condition have worsened for you over time?

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My tremors have worsened in the standing position just recently. Walking is a little worse just recently The date 2015 or 2016 when it was diagnosed. The symptoms were present before that. GABAPENTIN was tried no good. CLONAZEPAM
side effects are very bad so Have been on PANNITONE for years now. I think it does nothing for me. My neurologist has no other meds . I have investigated everything by way of the computer, Mayo Clinic INFO ETC. The diagnosis did not take long. My age is85

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