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Primary Orthostatic Tremor

Brain & Nervous System | Last Active: Jul 29, 2023 | Replies (29)

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@colleenyoung

Hi @helenstamas, welcome to Mayo Clinic Connect. Might it have been this discussion that you read a couple of years ago?
- Monthly shaking episodes that continue to progress https://connect.mayoclinic.org/discussion/monthly-shaking-episodes-that-continues-to-progress/

I'm glad that you started this new discussion specifically about orthostatic tremor. For people who may not be familiar with OT, here's a great explanation:
https://newsnetwork.mayoclinic.org/discussion/orthostatic-tremor-significantly-affects-quality-of-life/

Helen, can you share a bit more about yourself? When were you diagnosed with orthostatic tremor? Did it take a while before your were diagnosed? What aspects of the condition have worsened for you over time?

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Replies to "Hi @helenstamas, welcome to Mayo Clinic Connect. Might it have been this discussion that you read..."

Hi,
Is there anymore information about the thiamine(how much I should be taking for Orthostatic tremors) or injections? I have an appointment at the Mayo Clinic in October 2023. Thank God I finally got the appointment!