Prednisone

Posted by e @epvb, Mar 27, 2017

I am currently on 20 mg prednisone after tapering down from 40 mg which I was on for 2 weeks. I have been directed to taper down again next week to 10 mg. I am experiencing terrible headaches lasting days at a time as well as neck pain and insomnia. Has anyone found any relief or remedies for headache/neck pain? Thank you.

@rolph

Definitely not young John! But the skin effect is a strange sort of wrinkling. One of my nurses father has the same effect so it is primarily down to the Prednisone. Certainly be interested in other experiences. I did read somewhere that a cream containing urea will actually hydrate to some extent, as opposed to most creams which seem only to slow down moisture loss due to the barrier they provide. Can't find the reference though I'm afraid.

Jump to this post

Here's a link to some home remedies that might be helpful…

https://www.everydayhealth.com/skin-and-beauty/natural-skin-remedies.aspx

@rexbeer

Hi. Ive just joined this forum. Im 74, man, live in New Zealand. I experience pain from arthritis in a hip and lower back. The pain is ever-present, and been gradually getting worse over about 35 years. My doctor prescribed Prednisone at 2.5mg/day for an allergy (hay fever). I am amazed that it has also reduced the chronic pain, by about 50% – as well as making me feel much more energetic. There are no adverse effects apparent.
So, of course I am thinking how it would improve my life if I could feel like that all the time. This discussion group has been mainly about withdrawing from Prednisone, which is interesting to me. But I would love to hear from anyone who knows about using Prednisone long term, indefinitely, at the very low dose of 2.5mg. Thanks. Rex.

Jump to this post

Hi Rexbeer. I have sarcoidosis a rare autoimmune disease. I come from NZ. My Mother waS aLso from NZ. Her history was arthritis and pain in her hip and lower back, my history at 59 is the same …the arthritis linked to the disease sarcoidosis. It presents the same. I was on Prednisone at higher doses which gave me osteopenia. I am on 2.5 but now getting off altogether. It did help my pain. There is significant history in our family genes certainly over the last 200 years. Kind regards. Lori

@hopeful33250

Hello @epvb and welcome to Mayo Connect. Thanks for posting this discussion on Prednisone. I’m sure that others will reply in the near future. A few more details might be helpful to our Mayo Community in responding to your post. For example, how long have you been taking the Prednisone and what was it being used for? Please share as you are comfortable. We look forward to getting to know you better! Keep in touch and let us know how you are doing. Teresa

Jump to this post

I am on 5mg, for the last 2 weeks, and plan to go down to 4 to-morrow, however, after reading experiences of other people, I may have to go up again. I am preparing myself, hoping for the best, but will not be devastated by the worst. Some people have had to take the drug for many years. So far I am lucky to have to have endured it for 3.5 months. Good Luck to you !

@noosat1

I am on 5mg, for the last 2 weeks, and plan to go down to 4 to-morrow, however, after reading experiences of other people, I may have to go up again. I am preparing myself, hoping for the best, but will not be devastated by the worst. Some people have had to take the drug for many years. So far I am lucky to have to have endured it for 3.5 months. Good Luck to you !

Jump to this post

You have a good attitude and that will be your strength. All of us react differently, so listen to your body because it will let you know if you are tapering too fast. Take your time, and allow your body to adjust itself to the lower dosage.
I hope you reach your goal.

@noosat1

I am on 5mg, for the last 2 weeks, and plan to go down to 4 to-morrow, however, after reading experiences of other people, I may have to go up again. I am preparing myself, hoping for the best, but will not be devastated by the worst. Some people have had to take the drug for many years. So far I am lucky to have to have endured it for 3.5 months. Good Luck to you !

Jump to this post

3.5 months and so low a dose already. Do you have some morning pain and stiffness? I do.

Liked by djanthony

@rogernj67

3.5 months and so low a dose already. Do you have some morning pain and stiffness? I do.

Jump to this post

Yes, I do, also some imbalance. While my coffee is brewing in the French press and the toast browning, I keep moving around. I gradually become more limber. After watching a little of c=span while breakfasting. I get up and move around again, sometimes doing a few flexibility exercises, very mild ones. If I sit too long I become stiff again, so must monitor that. To-morrow I am going down to 4 mg of prednisone. Hopefully it will work. 🙂

@noosat1

Yes, I do, also some imbalance. While my coffee is brewing in the French press and the toast browning, I keep moving around. I gradually become more limber. After watching a little of c=span while breakfasting. I get up and move around again, sometimes doing a few flexibility exercises, very mild ones. If I sit too long I become stiff again, so must monitor that. To-morrow I am going down to 4 mg of prednisone. Hopefully it will work. 🙂

Jump to this post

i Have that imbalance feeling, too. Don’t know why.. Well, hope the 4 mg works. You might be setting a record for getting there so fast. Lol

Liked by Dee

@rosemarya

@epvb, I also want to welcome you to Mayo Connect. As of Dec.9, 2016, I am successfully off prednisone!! So I am going to tell you in all honesty, “I feel your pain”.
I was on 5 mg daily for 7 years. In April I was tapered to half dose (2.5 mg) and my body was aarghhh! – achy, nausea, poor sleep, tired, grouchy, headaches. This surprised me because of the small dosage. After about 10 days I experiences a slight improvement. And after a month I was feeling okay. I did take some Tylenol to relieve the discomfort.
Then, when I was tapered to 0 mg, the symptoms returned:-( But at that time some other medical issues complicated things for me, and I was instructed to resume the 2.5 mg dosage. Finally in early Nov.2016, I was ready to taper again. This time I was advised to try the every other day approach. This worked well for me. After 6 weeks I quit completely.
I think that some people might just need longer for their body to adjust. You might want to talk to your doctor. I want to say that my taper was done with my medical team approval, and my routine labs were carried out to monitor my particular health concerns.

Here is what Mayo Clinic has to say about coming off prednisone.
http://www.mayoclinic.org/prednisone-withdrawal/expert-answers/faq-20057923

I hope I have been able to give you some answers. Let me know how you are doing.
Rosemary

Jump to this post

Rosemary: That was wonderful advice you gave epvb. Thank you so much as it helps me also. And I am sure others. My heart goes out to all other suffers of Autoimmune illness.

@grammlyn

Rosemary: That was wonderful advice you gave epvb. Thank you so much as it helps me also. And I am sure others. My heart goes out to all other suffers of Autoimmune illness.

Jump to this post

Rosemary’s post was so helpful and gives hope. I’m tapering down from 20mg … over three months I am now at 8mgs. Told the rheumatologist that I wanted to hasten the tapering and she said OK, fortnightly until you reach 7mg, which will be next Tuesday. After that she wants me to go four weekly tapering, 1mg at a time. Just wondering what Rosemary’s condition was, are we talking PMR, which is my condition.

@jules11

Rosemary’s post was so helpful and gives hope. I’m tapering down from 20mg … over three months I am now at 8mgs. Told the rheumatologist that I wanted to hasten the tapering and she said OK, fortnightly until you reach 7mg, which will be next Tuesday. After that she wants me to go four weekly tapering, 1mg at a time. Just wondering what Rosemary’s condition was, are we talking PMR, which is my condition.

Jump to this post

@jules11, I do not have PMR. I took prednisone (5 mg) after organ transplant for around 6 years. I was surprised that even at that small dose that I felt side effects. I do not know what the effects are or if they might be different due to PMR. I do not know what your individual tapering will be like, I only intended to share how I managed my taper.
I did experience pain, headaches, stiffness, tiredness. But because I understood the reason for those discomforts, I was able to accept the temporary discomfort. I also found out that the prednisone must have been masking a kind of asthma that occurs during activity and humid weather. But I have that under control now.
Sending you strength and patience.

@rosemarya

@jules11, I do not have PMR. I took prednisone (5 mg) after organ transplant for around 6 years. I was surprised that even at that small dose that I felt side effects. I do not know what the effects are or if they might be different due to PMR. I do not know what your individual tapering will be like, I only intended to share how I managed my taper.
I did experience pain, headaches, stiffness, tiredness. But because I understood the reason for those discomforts, I was able to accept the temporary discomfort. I also found out that the prednisone must have been masking a kind of asthma that occurs during activity and humid weather. But I have that under control now.
Sending you strength and patience.

Jump to this post

Thank you Rosemary, much appreciated.

Liked by Dee, becsbuddy

@rosemarya

@jules11, I do not have PMR. I took prednisone (5 mg) after organ transplant for around 6 years. I was surprised that even at that small dose that I felt side effects. I do not know what the effects are or if they might be different due to PMR. I do not know what your individual tapering will be like, I only intended to share how I managed my taper.
I did experience pain, headaches, stiffness, tiredness. But because I understood the reason for those discomforts, I was able to accept the temporary discomfort. I also found out that the prednisone must have been masking a kind of asthma that occurs during activity and humid weather. But I have that under control now.
Sending you strength and patience.

Jump to this post

Thanks Rosemary, I had the very same experience tapering in the low doses of Pred. Thanks so much, Zenk

@epvb I was put on prednisone about three weeks ago. I had a reaction to a new high blood pressure med and then they said l had bronchitis. I had difficulty with breathing, saw throat and a headache. The headache finally got better but not the breathing or sore throat. I went to the hospital and the er doctor was shocked. I had 50mg of prednisone for being horse and breathing issues. So he said discontinue the prednisone. I asked him should l take the high blood pressure medication and he said no. I don't want to irritate AE and hepatic encephalopathy. And l got better. And l am still off my high blood medicine even though l wondering why. Because l been taking high blood pressure meds since 1998. And l was having tachycardia from taking the prednisone. And l remember when my son was young and he was always on it. But know one ever tell me the effects it has on you. I just thought he was being bad and like to get in trouble. It was the med because you get hyper. Good luck

I noticed in all the very good advice you have received that no one mentioned that we are all different, that is to say in basic health and the way our bodies respond to medication or lack thereof. Some tell me I am tapering too fast from 20mg from middle of December to now 4 mg. I admit to the character flaw of impatience, however, I am willing to go back up if I need to So far I have had some slight negative reactions when I do another taper (after 6mg I am doing .5 at a time) I am down to 4mg. When I taper I expect to get some kind of reaction for a couple of days, but can deal with it. I do sometimes sleep poorly, but that is an almost lifelong problem of occasional insomnia. I am very careful not to attribute every discomfit/pain to PMR or tapering too fast. Night before last had a dreadful night, but last night slept like an innocent babe.

@noosat1 are you tapering through your rheumatologist’s advice, or on your own? How long have you had PMR and what kind of reaction do you get when you taper? Thanks for answering…

Please login or register to post a reply.