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Tapering off of Prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Feb 28 5:49am | Replies (313)

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@rexbeer

Hi. Ive just joined this forum. Im 74, man, live in New Zealand. I experience pain from arthritis in a hip and lower back. The pain is ever-present, and been gradually getting worse over about 35 years. My doctor prescribed Prednisone at 2.5mg/day for an allergy (hay fever). I am amazed that it has also reduced the chronic pain, by about 50% - as well as making me feel much more energetic. There are no adverse effects apparent.
So, of course I am thinking how it would improve my life if I could feel like that all the time. This discussion group has been mainly about withdrawing from Prednisone, which is interesting to me. But I would love to hear from anyone who knows about using Prednisone long term, indefinitely, at the very low dose of 2.5mg. Thanks. Rex.

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Replies to "Hi. Ive just joined this forum. Im 74, man, live in New Zealand. I experience pain..."

Hi Rexbeer. I have sarcoidosis a rare autoimmune disease. I come from NZ. My Mother waS aLso from NZ. Her history was arthritis and pain in her hip and lower back, my history at 59 is the same ...the arthritis linked to the disease sarcoidosis. It presents the same. I was on Prednisone at higher doses which gave me osteopenia. I am on 2.5 but now getting off altogether. It did help my pain. There is significant history in our family genes certainly over the last 200 years. Kind regards. Lori

I am certainly not an expert although I've been down to 7 with a relapse a couple of times, and as high as 60 once. My doctor is trying to get me down to 2 or 3 mg, but I just don't make it down that far. He said that I'll likely always have to be on a low dose. He's concerned about long term use because of bone weakness. I have lost a bit of bone, so I'm on calcium, Vit. D, and I'm doing more weight bearing exercises. You seem to be tolerating it well so that's great for you. There is a medication that I could take, but I don't want any more meds. Pred is a miracle drug, and we do feel much better on it. No doubt. The good part for me is that I had very good bone strength for a woman my age (84), so the small amount of bone loss wasn't huge. I would assume that you are doing remarkably well with 2.5 mg. Good for you.