Mayo Clinic Connect
Postherpetic Neuralgia (Shingles) nerve damage around eye, eyebrow, forehead & scalp (8 years) has anyone had any sucessful treatment other than drugs
Hi @nighthawk50 – I would like to add my welcome to Connect along with @lisalucier and others. I have not had shingles myself but hopefully others will join in and offer some suggestions from personal experience. I did find a few interesting articles that may be helpful.
A new guideline from the American Academy of Neurology evaluates treatments for postherpetic neuralgia.
Neural Ablation and Regeneration in Pain Practice
Liked by Lisa Lucier, Connect Moderator
Hi, @nighthawk50 – welcome to Mayo Clinic Connect. You'll note I merged your post with this discussion, "Postherpetic Neuralgia (Shingles) nerve damage around eye, eyebrow, forehead & scalp" so that you could meet other members talking about postherpetic neuralgia.
I had postherpetic neuralgia after shingles myself, and it was tough. I remember wondering if the itching would ever go away.
Please meet @1977lizzy @joanlee @sjsmall5286 @oranbaughn, as well as @johnbishop. I trust these members will have some helpful input for you on postherpetic neuralgia and on the effectiveness of neural ablation for this condition.
Here is some Mayo Clinic information on postherpetic neuralgia that may be of interest: https://www.mayoclinic.org/diseases-conditions/postherpetic-neuralgia/symptoms-causes/syc-20376588
Will you share a little of your story related to postherpetic neuralgia, @nighthawk50?
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Hello, I had shingles around my right eye, forehead,eyebrow,eye and inside my head. I went on antivirals immediately and has 2 rounds of meds along with visits to the Opthomologist every other day, when my shingles went away it went straight to postneuraligia nerve pain. This all started Oct 28th and I still have nerve pain, shooting pain in my eye along with intense itching. Any suggestions? I’m in LYRICA 2x daily, I have a prescription gel it was a compound with lidocaine in it. I have shingles dermacare cream, shingles rescue and none of this works. I have scratched my face until it bled and pulled my hair out. I’m just made the 6 month mark with no relief.
I have same problem for 9 years!! Try Gabapentin 900 mg. One capsule morning; two at night. Compounded cream with Gabapentin + Lydocaine applied four times daily. I have used large frozen gel packs every night on that side of my face/scalp. Freezing cold helps. Also take stress rx. It requires an enormous attitude adjustment. I've explored neurosurgeries at major medical centers & won't go that route. I'm SO SORRY for anyone with post-herpetic neuralgia.
Hi , I just wanted to share a recent experience regarding my mother’s PHN and itching problem after Shingles in the eye, forehead area. Pain and itching subsided gradually over 4 months, but not completely. She is 88 years old. She tried Aloe Vera gel and within 3 days , both pain and itching have magically vanished.
Liked by marychapman, lioness
@kamala Welcome to connect I don't have Shingles but do believe in alternatives What a good tip Thank you for posting
Wow! What a blessing for your mother. I'll give it a try; my pain/itching has not gotten better in nine years but medications take the edge off.
Liked by lioness
I just wanted to add to this as I had facial shingles earlier this year and developed PHN and have burning, itching and pin prick pain at random intervals. I've found several solutions.
1. Capcaisin cream which contains chillies. This is a burning sensation at first and I use this for extreme times.
2. Tiger Balm. I use the white one but recently learned that they do a red one too. Not tried that but might be similar to the capsaicin cream.
3. Emla numbing cream. Mostly for the itching and non pain times.
All in all I'd say give tiger balm a try.
I have experienced this condition for the last three weeks and just found this site Here it is the fall of 2019 and no one seems to have found an answer to this condition. Evidently there are not enough of us that have the condition to make it worthwhile to research. It is comforting to know that others have experienced the situation.
I have found cold gel packs are about the only help. Gabapentin is still the Rx prescribed. At the age of 85 it looks like i will leave this world taking pain killers and of course "keep scratching".
Liked by Colleen Young, Connect Director, Ethan McConkey, Moderator
@lynellb2 Hi I'm sorry for anyone that has shingles so far I have excapsed this but have you tried to use oatmeal soap it is very smoothing for the itch , I use to have to give patients an oatmeal bath that had this itching all the time. Now they have the soap and Aveeno has a lotion I think its Aveeno . Good luck
When I developed Adhesive Arachnoiditis I realized that I had horrible pain in the same places I had Shingles. I thought I would never have that kind of pain again but the pain of AA is much worse. My family dr said that a lot of his elderly patients like me get PHN pain again. AA is caused from spine surgeries and dyes but it’s strange that the pain follows the same route as my Shingles pain. I take Percocet to no avail. Had bad side effects to nerve meds.
My pain is over the eye and the itching it also there and on the eyelid. I haven't found anything that i can use in the eye for pain and the itching.
Have you tried a CBD salve? Maybe you could use it lightly on the eye area. I have a great salve I use for neuropathy in my feet. Get it at anandahemp.com It is 24 dollars, and they have only one salve. I find this salve works even better than compounding cream my neurologist made for me. Good luck…God Bless. Lori Renee
Thanks for the info on the CBD salve; probably worth a try. What was the compounding cream your neurologist prescribed? The one with ketamine, amiltrypline, and lidocaine?
73-yr-old F in good health. Shingles started 6/27/19 with terrible headache on L which I thought was sinus. Blisters 2-3 days later. Treated with Valycylovir. Extremely ill, threw up first two pills and was basically down for 2 weeks. Crushed the big purple things into applesauce to tolerate. The only thing that relieved the head pain was hydrocodone QID which I used for 5 days. Gel packs wer useful and I heat severa in freezer and used during day and got up for new packs during the night. Wobbly for another 6 weeks and severe eye pain, scratchness. Symptoms abated by end of August but on 8/25, I woke up with blurred vision in L eye but no pain. Appointment in 2 days with ophthalmologist and he said the shingles had come back in the L eye. Treated again with Valycyclovir. Treated again, as first time, with prednisone forte and told to return in a week. In a visit or two he put a plug in the tear duct and almost immediately it was as if I had a terrible cold on the L. Don’t know if it was coincidence or caused by the plug. Had the plug taken out 6 days later and symptoms mostly resolved although I still have congestion on left and faint “sinus” headache. Eye dry so use non preservative eye drops frequently during the day and night. Vision stil blurred and forehead and left side of head in hair is itchy but not as terrible as some previous posters. I think my vision in that eye was 20/40 at last measurement and figure I may be stuck with it. Any advice would be appreciated. Another appointment 11/15 with ophthalmologist. Think highly of Mayo as 3 m3mbers of my family have been treated there with good result. Rochester and Phoenix. Thank you.
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