Postherpetic Neuralgia (Shingles) nerve damage around eye, eyebrow, forehead & scalp (8 years) has anyone had any sucessful treatment other than drugs
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I am a 55 year old female and I am just getting over shingles, I have/had in my left eye area, My issue is I get a very hurtful burning, my eye waters & closes down, Its like my left side is having a seizure. It has me in tears for at least a minute , This happens to me about 4 times a day , ,
I am on Gabapentin 600 mg, But I can only take that at night because it knocks me out. I am also on oxycodone 30 mg every 4 hours .OTC meds also put me to sleep.
This happened to me while I was driving, I had to pull over till it passed. Is this happening to anyone else?
What can I do to stop this?
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@sjsmall5286 You may wish to join members talking about trigeminal neuralgia in this discussion group:
– Trigeminal Neuralgia* https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-2273cc/
My compound was prescribed by anesthesiologist originally. Now my primary care doc orders it. It comes in a pump tube. The only breakdown I have is Keta/Gaba/Top/Mel/Lido/Prilo. If I can find the specific amounts, I will post. I had the strength increased after the first tube & it works well.
Thank you for your reply. The amount for each ingredient will be very important. If you can possibly get that for me I will appreciate it. Thanks again.
I would also like to have "The amount for each ingredient will be very important"
Hi, @oranbaughn – wondering how things are going with the postherpetic neuralgia?
Looking for help with PHN
Does spinal cord stimulation relieve PHN pain? I had a very mild case of shingles in 1999 but the discomfort continued for months after, just a feeling of a binding around my rib cage. (I can't wear anything tight around my back muscle area) After about ten months of this discomfort I saw that a local hospital advertised a trial treatment so I signed up. After the first set of injections on half of my back, I went from a discomfort level of 3 – 4 to a pain level of 7 – 8. I was assured that this was just temporary, so I agreed to go ahead with the injections on the other half of my back. That was almost ten years ago and my pain level has never decreased. I have tried all the drugs that two different neurologist have prescribed most of which just mad me "Looney". The only one that has helped at all is Lyrica, but at times that doesn't work either. The only blessed thing about this is I don't hurt when I am sleeping. My back feels like I have a severe sunburn, but the strange thing about it is, a heating pad is the only relief I can get. I don't have anyone to put the patches on my back and I'm not sure how much help they would be. Any advice would be appreciated. JoanLee
Hello @joanlee, you may notice I moved you discussion and combined it with another one titled, "postherpetic neuralgia (shingles) nerve damage around eye, eyebrow, forehead & scalp." I did this so the members already discussing this topic would see your message and so that you could see the conversation that was already taking place. If you are replying by email, click VIEW & REPLY to see where your post is in the new discussion.
To add to my old posted info, I've seen a new neurologist & increased my Gabapentin to 300mg morning & 600mg bedtime. Plus, the compounded topical cream on face. I tried acupuncture with no effect. After 9 years of this, drugs are only things that help and that is Not total relief.
How effective is nerve ablation for postherpetic neuralgia?
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