Post op AFIB & anti coagulation drug

Posted by ernie4040 @ernie4040, Aug 23, 2023

I developed Afib within 3 days of total knee replacement, then a second AFib incident at day 7 post op and then finally at day 40 post op. I am currently 4 months without afib. I use a 6 Lead Kardiamobile device to run 2 ecg's per day and use an apple 8 watch for backup. I have been taking 10 mg eliquos since the Afib began. Do I just keep taking the drug for the rest of my life?
Unless I get a WATCHMAN device installed in the Left atrial appendage then I have to stay on Eliquos for the rest of my life. This is the information I have received from two different cardiologists. I think the doctors are concerned about being held responsible if I stopped anti coagulation on their advice and God forbid had a stroke. There is nothing in the medical literature that guides the doctors on the length of time to prescribe anti coagulation when the issue is post op afib vs persistent afib or random AFIB.

The watchman is a device that alleviates the blood clots by stopping the flow of blood in and out of this place called the left atrial appendage. It is this blood flow that is the usual cause of Afib associated blood clots . Stop the blood flow and there is no need for anti coagulation. But if we assume the Afib was post op afib and if 4 months free of AFib and if I continue to monitor myself do I really need to take the eliquos. So long as I monitor myself and would go back on the eliquos if the Afib came back I think I am okay stopping the drug.
I am fairly certain the Afib was directly related to the surgery. There is no evidence to suggest otherwise
I had an echocardiogram completed and except for mold lvh my heart is normally in size and function. I excessive 6 days per week on am indoor cycle for 10 years. I have no problem with that. Before I walked 2 to 3 miles per day for 20 years until bad back and knees put me on a bike only. I do have hypertension controlled by meds and I am 68 years old. Have others has post op AFib? As we age it is not that uncommon for knee and hip replacements surgery and especially not uncommon at all after cardiac surgery

Two cardiologists are unwilling to say I can reduce of stop to anti coagulation despite my AFib being related to total knee replacement surgery

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

I agree, as many of you have stated, that it is important to do your homework, research evidence-based, trustworthy resources and to ask questions. A good cardiiologist will work WITH you so that you can share in treatment decision making. There are many factors to consider and your doctor can help make sense of the risks and benefits of each treatment option available to YOU, and relevant to your current medical status as well as medical history.

Questioning and discussing a recommended course of treatment is not only the right of the patient, it is good practice. It helps inform the physician of your preferences and goals. If a physician isn't willing to take the time to discuss, consider options and include you in the decision making, it's time for a second opinion.

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Here is more information about "shared decision making" and "minimally disruptive healthcare" that I think the group will appreciate. It is supported by physicians, the kind I think you're in search of, and frankly are the kind I want on my team.

- Shared decision-making as a method of care By Dr. Victor Montori, et al. https://ebm.bmj.com/content/28/4/213
- Is healthcare careful? Is it kind? by Dr. John Mandrola https://minimallydisruptivemedicine.org/2015/01/26/repost-is-healthcare-careful-is-it-kind-by-dr-john-mandrola/

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@ernie4040, if you'd like to consider a third opinion with Mayo Clinic experts, you can request an appointment here: http://mayocl.in/1mtmR63

I can understand the reluctance to be on medication forever. It sounds like you are reviewing your options carefully, researching evidence-based resources available to you, and with input from health professionals. I imagine your cardiologists are encouraged about your healthy lifestyle goals and diligence in self-monitoring.

I wonder if 4 months is not long enough to know if the afib is persistent or not. What is your follow-up schedule with you cardiologist to reassess treatment vs Watchman vs monitoring alone?

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@shoshin

Amen--& I couldn't agree more! As a rule, I aim to avoid interaction & involvement with practitioners of American interventional cardiology & its shill, the American Heart Association.

To be fair, there is a small but vibrant group of American physicians organized under the rubric of "Medical Conservatism," led--ironically, by John Mandrola, who is an E.P. cardiologist. He is also a researcher & Medscape's chief editor for its cardiology forum & has his own Medscape column, entitled "Trials and Fibrillations with Dr. John Mandrola" (see: https://www.medscape.com/index/section_10325_0).

In one of his columns (2017), entitled "Seven Reasons New Data on Watchman Are Not Persuasive," he reviewed new (post-approval) surveillance (clinical) data on the safety & efficacy of the Watchman implantable device (see: https://www.medscape.com/viewarticle/888355). In keeping with his Medical Conservatism ethic, Dr. Mandrola noted--& I quote that..."if you infer noninferiority based on the risk-difference margin, you must also admit that Watchman is up to nearly fivefold worse than warfarin."

If I were ever left with no other alternative (a situation that, frankly, seems to me to be worse than death) & had the avail myself of American interventional cardiology, I would only accept diagnosis & treatment from Dr. Mandrola (even though I do not live anywhere near Louisville, KY, where Dr. Mandrola practices) or one of his colleagues in the Medical Conservatism movement (here's their manifesto: https://www.amjmed.com/article/S0002-9343(19)30167-6/fulltext).

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Thanks for tip on Dr. Mandrola article. I’m a new heart patient at 71 that had no previous heart, hypertension, cholesterol, etc, etc. Didn’t even have a Cardiologist. After a PVC during vein ablation I was told to see a Cardiologist before doing the second leg. After 6 visit culminating in an arteriorgram I have a 40% blockage in my D1 artery as it branches off of the LAD. All the Cardiologist did is change my statin that my Internist prescribed as precautionary 20 years ago to a brand he like better - Crestor. He sent me home, instructed me to lose 40 lbs and check on my snoring, come back in 3 months. After I got over the fear of having a heart attack, I’m fine. In the gym 3-4 days a week. Losing weight, 20 lbs so far. Seems like the Crestor hurts my joints worse than my previous statin but could be the treadmill activity too. I agree that we should all educate ourselves on what our Doc is telling us. Seems to be a bit of uncertainty about many of these heart ailments.

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@shoshin

Amen--& I couldn't agree more! As a rule, I aim to avoid interaction & involvement with practitioners of American interventional cardiology & its shill, the American Heart Association.

To be fair, there is a small but vibrant group of American physicians organized under the rubric of "Medical Conservatism," led--ironically, by John Mandrola, who is an E.P. cardiologist. He is also a researcher & Medscape's chief editor for its cardiology forum & has his own Medscape column, entitled "Trials and Fibrillations with Dr. John Mandrola" (see: https://www.medscape.com/index/section_10325_0).

In one of his columns (2017), entitled "Seven Reasons New Data on Watchman Are Not Persuasive," he reviewed new (post-approval) surveillance (clinical) data on the safety & efficacy of the Watchman implantable device (see: https://www.medscape.com/viewarticle/888355). In keeping with his Medical Conservatism ethic, Dr. Mandrola noted--& I quote that..."if you infer noninferiority based on the risk-difference margin, you must also admit that Watchman is up to nearly fivefold worse than warfarin."

If I were ever left with no other alternative (a situation that, frankly, seems to me to be worse than death) & had the avail myself of American interventional cardiology, I would only accept diagnosis & treatment from Dr. Mandrola (even though I do not live anywhere near Louisville, KY, where Dr. Mandrola practices) or one of his colleagues in the Medical Conservatism movement (here's their manifesto: https://www.amjmed.com/article/S0002-9343(19)30167-6/fulltext).

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In our area the Hospitals executives push procedures like the watchman because that is what makes them the most money. They do not care about you or I as patients. Once the device is in and they have been paid, it is "So long sucker." Their advertisements state: "We do the most Watchmans." Etc. The unassuming patient in thus convinced that it must be good since they do so many of them. This also happened with stents in our area until a few cardiologist got caught and one sent to prison.

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@ezekio

Cardiologists are generally full of crap. I've been dealing with them for 11 years and had I not taken the initiative to research the medications they were trying to give me I would be dead right now. This is a conclusion I've reached after taking medication prescribed by one cardiologist or another and ended up in the ER with congestive heart failure or was given medications that conflicted and caused heavy uncontrollable bleeding after a surgery. This of course is not true of all cardiologists but enough for me to take pause and research any medications they suggest using. I will not tell you you can stop taking a blood thinner but do some research. If you are not in AFIB then why take one?
Drugs. com is a good source for just the facts info about any drug. The Mayo clinic is also a very reliable source. And last but not least a good pharmacist knows everything or knows where to find the information about any legal drug out there.
Why is that heart chamber there if it needs no blood. A watchman seems like a device invented by somebody wanting to make some easy money.
I came off blood thinners several years ago as they caused excessive bleeding, (nose bleeds, hemorrhoids bleeding, cuts won't stop bleeding....) I found out the reason is I eat foods that are natural anticoagulants such as vinegar, garlic, etc. etc. (check online for a complete list). I don't remember where online but it's easy to find.
In there defense, Cardiologists are in an era where medications are the solution they are taught in medical school. Anyway I guess this turned into a rant, but I feel better. I would just encourage you to take the initiative and do some of your own research and find your own workable solution to your issue. Remember the number 3 cause of death in the U.S, is PREVENTABLE medical mistakes made by medical professionals. Number 2 and 1 is Heart Disease and Cancer.

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When you came off blood thinners, did you wean off or just stop.

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@bama921

When you came off blood thinners, did you wean off or just stop.

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When giving my experiences and malady's with medicines and doctors I just want to reiterate that my metabolism and situation is probably a bit different than yours, as you're condition and response to different medications is also unique to you.
I quit cold turkey as my nose and hemorrhoidal bleeding was a bit out of hand. I also ate lots of vegetables, (that I had been eating before, that contained vitamin K), such as spinach, cabbage, etc. It still took awhile for the bleeding to settle down. I had to have my left nostril cauterized in the emergency room as the bleeding would not stop. The problem was the Cardiologists would not listen and insisted I be on a blood thinner or I would have a stroke. It is doubtful I would have had a stroke, but that is me. Everybody reacts to medications slightly different. You also have too, (well you don't have too but might be a good idea) consider the half life of the medications you are taking. If your not careful your body ends up with more of the medicine being retained in your body than the amount of the dose you are taking. My point being, the more knowledge you have about your condition and the medications you are taking, the better chance you have of avoiding one of the mental or physical problems described in this forum. All Cardiologists are not created equal.

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@bama921

When you came off blood thinners, did you wean off or just stop.

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I am 79, I got off of Eliquis after four months by wearing a heart monitor for 30 days to be sure AFIB was gone after a successful ablation. Weaned off of it in about a week. That was almost a year ago. Numbers are great and feeling good. Best to you.

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@windyshores

I have sporadic "paroxysmal" afib and declined anticoagulation. One cardiologist pressured me to take one and 5 years later, when, at that point, I was having it once/year, he admitted that "we overmedicate." Another cardiologist told me, while I was in the hospital with afib, that I could "go home and forget it happened." Guess which doc I now use?

That said, for the most part, my afib has been a year apart (now two with one short episode last year) and the longest episode was 7 hours, and they did an echo to make sure I had no clots at the time. Some of my episodes are only an hour or two. I am always in the ER or even ICU because my heart rate goes up to 180+ and bp down. They use diltiazem in a drip.

The CHADS scores provide a sort of recipe for docs and I believe that they feel afraid of liability if they don't follow it. Your frequency is more than mine but it may be slowing down. And I don't know how long it lasts.

I read a great study on sort term anti-coagulation for one month after any episode lasting more than 5 (?) hours (sorry I forget the duration). I ask for short term anticoagulation every time I go in the hospital. I hope someday it goes into practice because anticoagulation has risks too.

Hard decision. Maybe, if you go 6 months without any afib, you can find a doc who will let you go off, or of course, you can decline the meds, but I cannot say anything pro or con, only what I do. I also don't know if you have to wean off of them because stroke risk might go up when you stop, if afib is going on. I don't know that but it is a question to ask.

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My understanding is that
paroxysmal Afib can be very dangerous when unmedicated or unprotected a watchman device. See in my case unless it happens again my afib resolved itself because it was only related to the stress / anesthesia associated with total knee replacement.
Senator John Fettermanwas elected in 2022. You may remember he was guy who had a stroke. He has ignored doctors instructions to anticoagulate after having afib. I'm sure he isn't you since your Afib is so infrequent and you have already gone 5 years with no problem. Still I wanted to bring him to your attention

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@colleenyoung

@ernie4040, if you'd like to consider a third opinion with Mayo Clinic experts, you can request an appointment here: http://mayocl.in/1mtmR63

I can understand the reluctance to be on medication forever. It sounds like you are reviewing your options carefully, researching evidence-based resources available to you, and with input from health professionals. I imagine your cardiologists are encouraged about your healthy lifestyle goals and diligence in self-monitoring.

I wonder if 4 months is not long enough to know if the afib is persistent or not. What is your follow-up schedule with you cardiologist to reassess treatment vs Watchman vs monitoring alone?

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Thank you for reading and replying to my message. I appreciate your taking the time to reply to me and offering me a opportunity to make an appointment @ mayo. Problem is I live in Rhode Island. Truth is I saw 2 cardiologists associated with respected organizations including Boston based Massachusetts General hospital. Actually three cardiologists if I count the doctor who advised me to have watchman installed. Such a fancy name for what is really a plug. i could not get them to respond to the post op nature of my Afib. I am still using 5 mg Eliquos and monitoring myself with Apple 8 watch and Kardia device. If I have any evidence of even 1 incident of Afib I would quicky up the dose to 10 mg. I figure 5 mg is a compromise designed to give me some protection from blood clotting if AFib returned and bleeding. And then like I said I would quickly go back up to 10 mg per day.

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@ernie4040

My understanding is that
paroxysmal Afib can be very dangerous when unmedicated or unprotected a watchman device. See in my case unless it happens again my afib resolved itself because it was only related to the stress / anesthesia associated with total knee replacement.
Senator John Fettermanwas elected in 2022. You may remember he was guy who had a stroke. He has ignored doctors instructions to anticoagulate after having afib. I'm sure he isn't you since your Afib is so infrequent and you have already gone 5 years with no problem. Still I wanted to bring him to your attention

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@ernie4040 both my cardiologists now agree I should not (and never should have been) anticoagulated. At this point I have gone 28 months without a problem. Knock on wood. I am not opposed to it when needed.

If an episode lasts less than 5 hours, it is less risky, I was told. And for a 7 hour episode, I had an echocardiogram to check for clots. Not fool proof but helpful. Most of my episodes are about 2-3 hours. They are dramatic with heart rate 180+ , shortness of breath, chest pain, etc.

I don't eat after 5 and if I get a certain feeling in my chest I take GasX rather than a heart med. Everyone is different. I am not at all saying the everyone should follow my path. Only that I had to think for myself a bit rather than follow the first doc's opinion (which has changed).

It seems most people with afib do need blood thinners. But remember those come with risks too , including stroke.

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