1. < Transplants
Profile picture for mst123

Anyone have antibody mediated rejection years after liver transplant?

Posted by mst123 @mst123, Aug 4, 2025

25 years after liver transplant, my son has developed liver fibrosis/ scarring, apparently due to AMR ( antibody mediated rejection). Has anyone had experience with this? I am hoping to find out which hepatologists at Mayo Arizona are most experienced in this area. Thank you!

Interested in more discussions like this? Go to the Transplants Support Group.

Profile picture for hello1234
hello1234 | @hello1234 | Aug 6, 2025

Thank you @rachel5239 😊 it's wonderful (and comforting!) to hear that a small adjustment in your immune suppression meds handled the rejection. Congrats on 38 years and still going strong! I am sure you never expected to deal with rejection after 22 years post transplant, but it turned out to be just a bump in the road. Thanks so much for answering my questions about your rejection experience with a very positive outcome.

REPLY
Profile picture for mst123
mst123 | @mst123 | Aug 7, 2025
In reply to @rachel5239 "That would be Tacrolimus." + (show)
Profile picture for rachel5239 @rachel5239

That would be Tacrolimus.

Jump to this post

Thanks Rachel.
Do you know if yours was antibody-mediated rejection, or the cell mediated rejection?

Sent from AT&T Yahoo Mail on Android

REPLY
1 reply
Profile picture for mst123
mst123 | @mst123 | Aug 7, 2025
In reply to @rosemarya "@mst123, I'm 16 years post transplant, and have not had a similar experience to your son's..." + (show)
Profile picture for Rosemary, Volunteer Mentor @rosemarya

@mst123, I'm 16 years post transplant, and have not had a similar experience to your son's current situation. It sounds as if your son is not a Mayo patient and that you are looking to get a second opinion/appointment at Mayo Arizona.
I received my transplant at Mayo Rochester, and I can honestly say that whoever is assigned as your son's doctor will be working alongside a whole department of specialists. At Mayo a patient might be assigned a particular doctor, but this doctor is in comminucation with a whole team of specialists who each is available to share input as a diagnosis or treatment is being considered. So, with that in mind, I am going to suggest that you begin the process of making an appointment: Depending on which device your are logged in on, you will see a blue "Request an Appointment" link. There you can enter as a new patient. a returning patient, or Iif your doctor will make the appointment referral, there is a place for that. You can complete your request on line or scroll down the page for Phone contact information. A coordinator will follow up and help you with your son's possible appointment.

I hope that you have read the messages that others have already shared about their experience. Do you have any questions that you want to ask anyone of these members?

Jump to this post

Thanks, Rosemary. Your note has been very helpful!

REPLY
Profile picture for rachel5239
rachel5239 | @rachel5239 | Aug 7, 2025
In reply to @mst123 "Thanks Rachel. Do you know if yours was antibody-mediated rejection, or the cell mediated rejection? Sent..." + (show)
Profile picture for mst123 @mst123

Thanks Rachel.
Do you know if yours was antibody-mediated rejection, or the cell mediated rejection?

Sent from AT&T Yahoo Mail on Android

Jump to this post

They told me my prograf levels got too low. No idea how that happened. I had an autoimmune chronic liver disease. They told me my disease was back. It was pretty scary. They ended up adding one more medication and I haven’t had any trouble since. I am 38 years post transplant and I can’t complain about how I feel. I am now 73 years old. Happy I have made it this far but can’t help thinking how much longer can this go on??

REPLY
Please sign in or register to post a reply.