Anyone have antibody mediated rejection years after liver transplant?

Hi @mst123
What is the treatment recommendation of your son's transplant center?
Did they increase his immune suppression meds to begin to calm the rejection process?

I had rejection in 2009. They changed my meds and everything is still ok.

Hi Rachel 😊
It's a pleasure to meet you. I am so happy to hear that all is well! Did you have a liver transplant? How long after your transplant did you experience rejection and what were the symptoms?

Also I am 38 years post transplant and still doing pretty good. Old age might be the problem. LOL

Yes I had a liver transplant in 1987. I had my rejection 22 years after my transplant. I only found out after having bloodwork. I really didn’t have symptoms other than being a little tired. It was caught early so that helped.

@rachel5239
That's all wonderful news!! I am just curious. What immune suppression med did they change to after they saw rejection in your blood work? Did they increase your dosage or actually change medications? I love to hear the details of the success stories! 😊

@mst123, I'm 16 years post transplant, and have not had a similar experience to your son's current situation. It sounds as if your son is not a Mayo patient and that you are looking to get a second opinion/appointment at Mayo Arizona.
I received my transplant at Mayo Rochester, and I can honestly say that whoever is assigned as your son's doctor will be working alongside a whole department of specialists. At Mayo a patient might be assigned a particular doctor, but this doctor is in comminucation with a whole team of specialists who each is available to share input as a diagnosis or treatment is being considered. So, with that in mind, I am going to suggest that you begin the process of making an appointment: Depending on which device your are logged in on, you will see a blue "Request an Appointment" link. There you can enter as a new patient. a returning patient, or Iif your doctor will make the appointment referral, there is a place for that. You can complete your request on line or scroll down the page for Phone contact information. A coordinator will follow up and help you with your son's possible appointment.

I hope that you have read the messages that others have already shared about their experience. Do you have any questions that you want to ask anyone of these members?

I was on 5mg of prednisone and program. They added imuran. I evidently helped because I haven’t had any problems since.

I also am at Mayo in Rochester. I have never had a doctor that I didn’t like and feel comfortable with. They always listen to my concerns and make the best decision they can. I am also 38 years post transplant.

That would be Tacrolimus.