1. < Osteoporosis & Bone Health

Post Evenity DEXA numbers

Posted by susanfalcon52 @susanfalcon52, Jun 7 5:48am

So, I have my results after 12 months on Evenity.
Lumbar spine went from-2.5 to -1.8.
Left hip went from-2.0 to -1.8.
For the right hip and right femoral neck,
there are no scores, presumably because they are now titanium.

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laurensb | @laurensb | 3 days ago
In reply to @susanfalcon52 "laurensb, Those are great improvements! Except for arms - I didn’t know they measured forearms? That..." + (show)
@susanfalcon52

laurensb,
Those are great improvements! Except for arms - I didn’t know they measured forearms? That never comes up on my dexa.

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My endocrinologist started ordering forearms a few years ago. More information the better!

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laurensb | @laurensb | 3 days ago
In reply to @juanitalinda "@laurensb Just curious. Did you do weight bearing exercises during your treatment? I'm asking because my..." + (show)
@juanitalinda

@laurensb

Just curious. Did you do weight bearing exercises during your treatment?
I'm asking because my first physical therapist gave me a bunch of strength building exercises that targeted legs and spine. However, when I went to a second physical therapist she insisted I add exercises to target my arms and wrist, since they also suffer osteoporotic fractures.

However, I do agree with @ans. My broken shoulder was nowhere near as painful or debilitating as the broken femur and spinal fracture.

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I do weight bearing exercises - elliptical machine daily and twice a week leg exercises with weights and twice a week arms and torso with weights but I was doing all that before the Evenity. At your comment I looked up some forearm exercises and a number of them I have been doing already. Thanks for the input since I can add a few more to my routine.

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laurensb | @laurensb | 3 days ago
In reply to @healthseeker77 "@susanfalcon52, Congratulations on your excellent DEXA scores improvement. Have your doctors recommended follow up medications for..." + (show)
@healthseeker77

@susanfalcon52,

Congratulations on your excellent DEXA scores improvement. Have your doctors recommended follow up medications for you?

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Appointment next week so we will see what he recommends. I have done about 5 years of alendronate and raloxifin so we'll see.

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sbcher | @sbcher | 3 days ago

Congratulations! So happy for you!

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candy209 | @candy209 | 3 days ago
In reply to @ans "@susanfalcon52 @laurensb and all - So what I take from , at least your values ,..." + (show)
@ans

@susanfalcon52 @laurensb and all - So what I take from , at least your values , was that Evenity didn’t help in your arm , in fact decreases were appreciated. I would be curious if people taking Tymlos and Forteo - if any have had before and after BMD results of their arms and or legs - what those numbers might show????- Arm and leg bones are cortical in nature ( hard). Spine and hip have a mixture , soft areas and some cortical as those parts of our skeleton are more flexible for bending twisting etc…you get the idea .

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I read somewhere that tymlos can do the same thing. Might have been Dr Mc Cormick that mentioned that to me. I can’t remember.

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karensm | @karensm | 3 days ago
In reply to @laurensb "Just finished my year on Evenity and had these T-score results compared to 18 months ago:..." + (show)
@laurensb

Just finished my year on Evenity and had these T-score results compared to 18 months ago:
AP Spine was -1.2; now -0.2
Femoral Neck was -3.0; now -2.8
Total Hip was -2.1; now -1.7
Total Forearm was -2.2; now -2.4
1/3 Forearm was -2.2; now -2.3
UD Forearm was -1.5; now -2.1

Surprised about the forearm numbers getting worse!

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How did you get those all those scores - My insurance only pays 1 times 2 years.

It seems a very good ideal , so that you know what is working and what is not
working.

Thank you

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1 reply
njhornung | @normahorn | 2 days ago
In reply to @hopefullibrarian "@normahorn and @windyshores, Do you have your homocysteine level tested regularly? It can be one indicator..." + (show)
@hopefullibrarian

@normahorn and @windyshores, Do you have your homocysteine level tested regularly? It can be one indicator of B12 deficiency. A B12 deficiency often, though not always, leads to high homocysteine levels (hyperhomocysteinemia), and one of the complications of hyperhomocysteinemia is osteoporosis. I had mine tested recently, and it was smack dab in the middle of the normal reference range.
https://www.healthline.com/health/homocysteine-levels#complications

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What is the normal range? I saw one place that said 5-50 umoles/L while the lab that reported mine level said < 10.4. I tested at 9.6 umole/L.

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1 reply
hopefullibrarian | @hopefullibrarian | 2 days ago
In reply to @normahorn "What is the normal range? I saw one place that said 5-50 umoles/L while the lab..." + (show)
@normahorn

What is the normal range? I saw one place that said 5-50 umoles/L while the lab that reported mine level said < 10.4. I tested at 9.6 umole/L.

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My lab gave the normal range for homocysteine (Hcy) as 0-15 umol/L. Whereas, Dr. McCormick, in his book Great Bones (p. 165) says, "Levels higher than 8umol/L can contribute to inflammation." He goes on to say, "When levels go above 15 umol/L, bone mineral density declines, creating a two-and-a-half-fold increase in fracture risk. Females with Hcy higher than 18 umol/L may have twice the risk of fracturing a hip..."

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njhornung | @normahorn | 2 days ago

Does he provide a source for his information? A published study or other peer reviewed reference?

This time my search said normal rage is 5-15. (Do not trust AI).

I modified my search to be for HCY and osteoporosis and found a few abstracts. Another rabbit hole for people to go down.

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laurensb | @laurensb | 1 day ago
In reply to @karensm "How did you get those all those scores - My insurance only pays 1 times 2..." + (show)
@karensm

How did you get those all those scores - My insurance only pays 1 times 2 years.

It seems a very good ideal , so that you know what is working and what is not
working.

Thank you

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I get a bone density once a year since the osteoporosis diagnosis.

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