Post Evenity DEXA numbers

Posted by susanfalcon52 @susanfalcon52, Jun 7 5:48am

So, I have my results after 12 months on Evenity.
Lumbar spine went from-2.5 to -1.8.
Left hip went from-2.0 to -1.8.
For the right hip and right femoral neck,
there are no scores, presumably because they are now titanium.

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@sunny65

Thank you for your opinion @windyshores . Just wanted to give you an update. I just got full results from my visit to neurosurgeon today. He noticed on my MRI that I have an Annular tear and this is the cause of debilitating pain. ( no one else told me this yet ) I guess I just have to find right physical therapy as soon as I can.Maybe acupuncture can help. Surgery is not an option right now.

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@sunny65 Hi, just want to offer what helped me greatly with 45 years of low back and hip intermittent pain. It was low back researcher Stuart McGill and his writings and in particular his book The Back Mechanic that gave me the first real change after 45 years of trying things. It took 2-3 days to feel a difference. His recommended movements and exercises are applied individually and have to be adapted to your unique situation but his discussion of pain and how and why to avoid pain triggers can be used by anyone. Best of luck to you!

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@awfultruth

@sunny65 Hi, just want to offer what helped me greatly with 45 years of low back and hip intermittent pain. It was low back researcher Stuart McGill and his writings and in particular his book The Back Mechanic that gave me the first real change after 45 years of trying things. It took 2-3 days to feel a difference. His recommended movements and exercises are applied individually and have to be adapted to your unique situation but his discussion of pain and how and why to avoid pain triggers can be used by anyone. Best of luck to you!

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Thank you so much for advice. I think that I have that book. Only I am so afraid to do any exercises without therapist advice. I did a lot in the past and so many times ended hurting myself. But I am going to give a second look and study more.

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@sunny65

Thank you so much for advice. I think that I have that book. Only I am so afraid to do any exercises without therapist advice. I did a lot in the past and so many times ended hurting myself. But I am going to give a second look and study more.

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@sunny65 Sounds like you are being careful and I think that is best. I hurt myself many times along the way.
Please note that McGill's discussion of how pain works and how it goes on and on and how to avoid that does not involve exercises. At least not initially. It's about learning to avoid what he calls pain triggers. That is what helped me right away. I had the mind set that I should be able to do this or that movement. They were normal movements that people do and I should be able to do them. Like make a bed or reach way back in a low cabinet or sit on a hard wooden chair, etc etc. Others do that with no problem so I should be able to. This was not exactly conscious but after reading the chapters about this in his book I realized that was how I had been operating my whole life. His approach is to carefully observe what triggers pain and then to figure out work arounds that don't trigger pain. There are no "shoulds" in this like there were in my head. Like I said I could tell a difference in 2-3 days. That was mind blowing (in a wonderful way) for me.
Again, best of luck with whatever you do to help yourself.

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@hopefullibrarian

The pain from a bulging disc must be awful. I'm so sorry to hear that you are dealing with that, and that the steroid injection didn't help. Given that it didn't work, I can't imagine you'd ever get another. That's for the best because steroids can contribute to bone loss.
With a t-score of -4.9, Evenity is a logical choice, and worth a try. I recently had my 5th set of Evenity injections and haven't had any back pain. Some of us have had pains in other places. I'm curious to know if anyone here has had back pain from Evenity.

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I do have increasing back pain which started about 2 weeks after my first Evenity shot. I has become so bad I have started taking tramadol occasionally. I finally stopped after my 11th injection hoping the pain would subside. It's been 5 weeks and still have pain. It's located mid back on the left side right where I had compression fractures. My DEXA is in 2 weeks and I hope I see improvement anyway. Then I have to decide between Fosomax and Reclast, but having read about the side effects from Reclast on this forum, I'm leaning towards Fosomax. Making the decision is so difficult.

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@awfultruth

@sunny65 Sounds like you are being careful and I think that is best. I hurt myself many times along the way.
Please note that McGill's discussion of how pain works and how it goes on and on and how to avoid that does not involve exercises. At least not initially. It's about learning to avoid what he calls pain triggers. That is what helped me right away. I had the mind set that I should be able to do this or that movement. They were normal movements that people do and I should be able to do them. Like make a bed or reach way back in a low cabinet or sit on a hard wooden chair, etc etc. Others do that with no problem so I should be able to. This was not exactly conscious but after reading the chapters about this in his book I realized that was how I had been operating my whole life. His approach is to carefully observe what triggers pain and then to figure out work arounds that don't trigger pain. There are no "shoulds" in this like there were in my head. Like I said I could tell a difference in 2-3 days. That was mind blowing (in a wonderful way) for me.
Again, best of luck with whatever you do to help yourself.

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I took your advice very seriously and been reading McGill book. I agree that the book is very informative.
My situation is very scary. Annular tear is more serious than I thought. My neurosurgeon told that I am not a candidate for any surgery. Probably because of my osteoporosis. That leaves me just with therapy and pain pills. Neither one cure the problem. I am just curious is there anyone had similar issue and were able to heal. The pain is so severe and I am able to function just in the morning. Any advice is greatly appreciated.

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@bjgrace

Hi, I had my fifth injection of Evenity 2 weeks ago. I had a few side effects initially... burning in my spine, some tiredness and some joint pain. However those side effects seem to have decreased or gone. I also started taking magnesium which may be helping with the joint pain. I have had a number of fractures in my Thoracic and it seemed to me that the shots affected that area with burning after about 10-14 days of having the shot for about a day or two.
I take the shots in the belly and only have a slight bit of tenderness for a couple of hours. At this stage, I would say the side effects have leveled off.
Also, I will say that I was very hungry the first couple of months on Evenity which is unusual for me but that has also leveled off. I see now that weight gain has been included as one of the side effects (which was not there when I started the medication).
Hopefully this helps.

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bjgrace, Thank you for sharing that your were "...very hungry the first couple of months on Evenity which is unusual for me." and "...weight gain has been included as one of the side effects (which was not there when I started the medication)." I'm glad they added it to the list. when I told my endocrinologist about the hunger, she gave the typical response that it's not one of the Evenity side effects--and she's one of the better doctors for OP.
I meet with her in a couple of weeks, and will be delighted to share the now "fact" that it is indeed a side effect. 🙂

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@hopefullibrarian

bjgrace, Thank you for sharing that your were "...very hungry the first couple of months on Evenity which is unusual for me." and "...weight gain has been included as one of the side effects (which was not there when I started the medication)." I'm glad they added it to the list. when I told my endocrinologist about the hunger, she gave the typical response that it's not one of the Evenity side effects--and she's one of the better doctors for OP.
I meet with her in a couple of weeks, and will be delighted to share the now "fact" that it is indeed a side effect. 🙂

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I've been in additional contact with my Endo, she hasn't yet admitted that the hunger is from Evenity, but she did acknowledge that the tingling and pain I've been having in my ankles and wrist is a known side effect. I consider her acknowledgement progress. She recommended I get some blood tests just eliminate other possible causes. I had my blood calcium and B vitamins tested. Turns out my B12 is off the charts. The reference range is 193-986. Mine is 1933. That can also cause the tingling and pain. I've been supplementing with B12 for several years. Needless, to say, after getting that score, I stopped taking it immediately.

Moral of the story--in the case of the tingling and pain, I may have been wrong. Having said that, I still think the hunger is from Evenity.

Tomorrow, I get my 6th set of Evenity injections, so I hope the problem has been the B12, and not Evenity. Fingers crossed!

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@hopefullibrarian

I've been in additional contact with my Endo, she hasn't yet admitted that the hunger is from Evenity, but she did acknowledge that the tingling and pain I've been having in my ankles and wrist is a known side effect. I consider her acknowledgement progress. She recommended I get some blood tests just eliminate other possible causes. I had my blood calcium and B vitamins tested. Turns out my B12 is off the charts. The reference range is 193-986. Mine is 1933. That can also cause the tingling and pain. I've been supplementing with B12 for several years. Needless, to say, after getting that score, I stopped taking it immediately.

Moral of the story--in the case of the tingling and pain, I may have been wrong. Having said that, I still think the hunger is from Evenity.

Tomorrow, I get my 6th set of Evenity injections, so I hope the problem has been the B12, and not Evenity. Fingers crossed!

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@hopefullibrarian I thought our bodies flushed out B12 that was beyond what was needed. I am posting info from the Mayo site below, which you have no doubt seen. Have you been taking high doses daily? It seems high doses can raise levels- I didn't know that! I did have tingling/burning from Evenity. I guess if you stop taking B12 you will find out whether it is the vitamin or Evenity!

When taken at appropriate doses, vitamin B-12 supplements are generally considered safe. While the recommended daily amount of vitamin B-12 for adults is 2.4 micrograms, higher doses have been found to be safe. Your body absorbs only as much as it needs, and any excess passes through your urine.

High doses of vitamin B-12, such as those used to treat a deficiency, might cause:

Headache
Nausea and vomiting
Diarrhea
Fatigue or weakness
Tingling sensation in hands and feet

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@windyshores

@hopefullibrarian I thought our bodies flushed out B12 that was beyond what was needed. I am posting info from the Mayo site below, which you have no doubt seen. Have you been taking high doses daily? It seems high doses can raise levels- I didn't know that! I did have tingling/burning from Evenity. I guess if you stop taking B12 you will find out whether it is the vitamin or Evenity!

When taken at appropriate doses, vitamin B-12 supplements are generally considered safe. While the recommended daily amount of vitamin B-12 for adults is 2.4 micrograms, higher doses have been found to be safe. Your body absorbs only as much as it needs, and any excess passes through your urine.

High doses of vitamin B-12, such as those used to treat a deficiency, might cause:

Headache
Nausea and vomiting
Diarrhea
Fatigue or weakness
Tingling sensation in hands and feet

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My body failed to read what the "experts' claim. I can only take a B12 supplement once a week (and that is at half standard dosage) or my levels also go off the chart. Another effect of high level is that I was beginning to think I may have colon cancer. Thankfully that cleared up when I stopped taking it. I now monitor every 6 months so I do not slip into the deficient range again.

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@normahorn

My body failed to read what the "experts' claim. I can only take a B12 supplement once a week (and that is at half standard dosage) or my levels also go off the chart. Another effect of high level is that I was beginning to think I may have colon cancer. Thankfully that cleared up when I stopped taking it. I now monitor every 6 months so I do not slip into the deficient range again.

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@normahorn fortunately I have an immediate reaction to higher dose B12. I found a gummy and take small bites! I have anemia and sometimes feel caught between a rock and a hard place.

I am really glad that this issue is being posted. Supplements tend to have very high doses.

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