Post Evenity DEXA numbers

Posted by susanfalcon52 @susanfalcon52, Jun 7 5:48am

So, I have my results after 12 months on Evenity.
Lumbar spine went from-2.5 to -1.8.
Left hip went from-2.0 to -1.8.
For the right hip and right femoral neck,
there are no scores, presumably because they are now titanium.

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nwyatt | @nwyatt | 3 days ago

In reply to @hopefulheart "Great numbers Can I ask what your next step is?" + (show)

I have an appointment with my doctor on monday to discuss that decision. Possibly Fosamax. Reclast side effects scare me a bit. I'd love to go back on Forteo but we'll see.

gammyb | @gammyb | 3 days ago

In reply to @vrgarden "I had my 12th Evenity injections in early June. My osteoporosis dr. ordered a DEXA scan,..." + (show)

I had all twelve injections of Evenity with improvement in all areas on my DEXA scan. My rheumy put me on Reclast a couple of weeks after my last shot. I think it’s a choice your doctor makes with you on what’s best for you with regard to continuing treatment. I’ll be on recast for another 2 years. After that maybe there will be something even better out there. Good luck!

vrgarden | @vrgarden | 3 days ago

In reply to @gammyb "I had all twelve injections of Evenity with improvement in all areas on my DEXA scan...." + (show)

Thanks for the info. How did you do with Reclast? So the plan for you is a total of 3 annual Reclast infusions, then hopefully another med will be available, right?

gammyb | @gammyb | 3 days ago

In reply to @vrgarden "Thanks for the info. How did you do with Reclast? So the plan for you is..." + (show)

I do fine on Reclast, no side effects. I had done 2 years of Reclast before Evenity so I can only have 2 or 3 years more. I understand that you can only be on it for a man of 5 years. Yes, I’m hoping there will be something new on the market to take after that.

windyshores | @windyshores | 2 days ago

Unfortunately, according to various videos, nothing new in the pipeline right now 🙁

We may have new ways to sequence or combine drugs though.

vrgarden | @vrgarden | 2 days ago

In reply to @susanfalcon52 "nwyatt, That is still improvement- you’re going in the right direction! I had 12 months of..." + (show)

How did your Reclast infusion go? Any side effects or smooth sailing?

sunny65 | @sunny65 | 1 day ago

In reply to @beanieone "Notes from my January DEXA state: “Follow-up DEXA recommended at one-year intervals due to OP diagnosis”...." + (show)

I just started Evenity July 2. After 3 days I started having dizziness, nausea and unusual fast heartbeat 98-99. Not sure if this temporary or will continue for a long time. Please let me know about your experience. I been suffering from debilitating back pain every day for almost 4 months now and side effects from Evenity making my life more miserable.

beanieone | @beanieone | 1 day ago

In reply to @sunny65 "I just started Evenity July 2. After 3 days I started having dizziness, nausea and unusual..." + (show)

Hi @sunny65,

I just finished Evenity on June 27 and had no side effects besides those associated with getting a flu shot - redness, swelling, slight pain . . .

I was on Tymlos for 8-1/2 months with pretty much the same symptoms (plus several others) that you describe for Evenity. Half life for Evenity is about 13 days, so the symptoms may settle down around that time. You should at least make it known to your doc that you’re having these issues. I kept a daily diary while on Tymlos so I could give my doc a good description of what was happening.

I am so sorry to hear of your back pain! I, too had debilitating pain while on Tymlos, so I am in your corner! Is your back pain from a fracture or have you not been diagnosed as to why your back hurts?

It can be sometimes difficult to determine how one will react to OP meds (my doc didn’t pay any attention to my debilitating pain) so it can be trial and error.

I hope this gives you some insight about these meds. Please keep me apprised of how things are going for you. I wish you the best and hope things turn around for you . . . and quickly!

Cheers!

gmom14 | @gmom14 | 1 day ago

In reply to @gammyb "I had all twelve injections of Evenity with improvement in all areas on my DEXA scan...." + (show)

@nwyatt I am supposed to begin Evenity ( unless I chicken out!) at the end of the month. After 12 months, it will be followed by Reclast. I have not taken any bone drugs since about 10+ yrs ago. I took Fosamax for about 1 week and felt so terrible that I stopped. Now my numbers are far worse, so I guess there is no more procrastination. Hoping that you have good success with your follow up treatment.