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Post Doxycycline Effects - Any help out there for it?

Posted by tennisguynri @tennisguynri, Jun 6 2:57pm

2 months ago given doxycycline probably for no reason but doc gave it to me, and I was stupid enough to take it. The post side effects neurological have been profound yet even my heart doctors and GI doctors at Mayo don't want to recognize it. I've been in out of er 3x in 5 weeks and vitals are good, and yet Mayo just releases me though I've lost 15 pounds unintentionally, have no appetite and panic attacks I've never had before. Doxy is a bad drug and I was not wanted about it.

If anyone knows any specialist in Phoenix or elsewhere that would be helpful as Mayo has not taken it seriously even though I decline. My family has even begged for mayo to try to help and they say vitals are ok, yet this is neurotoxicity and they won't help. I've always loved Mayo but now it seems they are just not doing what they used to do which Is help with complex issues. I hope someone at Mayo will listen.

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Colleen Young, Connect Director | @colleenyoung | Jun 7 10:30am

@tennisguynri, this must be very disconcerting. Doxycycline is not typically known for causing neurotoxicity, although there are known drug interactions with other medications. I'm sure this has been investigated.

- Doxycycline (subgingival route) https://www.mayoclinic.org/drugs-supplements/doxycycline-subgingival-route/description/drg-20063596

Clearly something is going on. Have other causes of the neurotoxicity been investigated like Lyme disease or something that might not be related to taking doxycycline?

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tennisguynri | @tennisguynri | Jun 7 11:15am
In reply to @colleenyoung "@tennisguynri, this must be very disconcerting. Doxycycline is not typically known for causing neurotoxicity, although there..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

@tennisguynri, this must be very disconcerting. Doxycycline is not typically known for causing neurotoxicity, although there are known drug interactions with other medications. I'm sure this has been investigated.

- Doxycycline (subgingival route) https://www.mayoclinic.org/drugs-supplements/doxycycline-subgingival-route/description/drg-20063596

Clearly something is going on. Have other causes of the neurotoxicity been investigated like Lyme disease or something that might not be related to taking doxycycline?

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@colleenyoung I've been trying to find care at Mayo Phoenix, and though I have heart doctor there and GI doc, they keep telling me my primary has to refer me to a dept at Mayo, yet my primary says why is Mayo not just getting me to the right department to look further into things. It has been frustrating. I think doxy has messed.my gut health up, but Mayo does not really have tests for microbiome. So it is hard, and I emailed patient advocate as well just to ask to be seen by correct department but have not gotten anywhere..

I was fine before Doxy, and now it messed me up. Not sure what dept can look into activated viruses etc like lyme like you mentioned. Just trying to get Mayo Phoenix to listen as I've lost 15 pounds and have no appetite after doxy.

Thank you again for helping me navigate what this drug did to me.

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Colleen Young, Connect Director | @colleenyoung | Jun 7 12:33pm
In reply to @tennisguynri "@colleenyoung I've been trying to find care at Mayo Phoenix, and though I have heart doctor..." + (show)
Profile picture for tennisguynri @tennisguynri

@colleenyoung I've been trying to find care at Mayo Phoenix, and though I have heart doctor there and GI doc, they keep telling me my primary has to refer me to a dept at Mayo, yet my primary says why is Mayo not just getting me to the right department to look further into things. It has been frustrating. I think doxy has messed.my gut health up, but Mayo does not really have tests for microbiome. So it is hard, and I emailed patient advocate as well just to ask to be seen by correct department but have not gotten anywhere..

I was fine before Doxy, and now it messed me up. Not sure what dept can look into activated viruses etc like lyme like you mentioned. Just trying to get Mayo Phoenix to listen as I've lost 15 pounds and have no appetite after doxy.

Thank you again for helping me navigate what this drug did to me.

Jump to this post

@tennisguynri, it sounds like Mayo would like to have a physician's assessment and referral to direct you to the right specialist. I hope your primary care physician will make the referral for you.

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