Post Ablation Recovery – Need Help!!

Posted by rubywitch67 @rubywitch67, Mar 26, 2019

I had my ablation last Wednesday, March 20th, and was discharged home on the 21st.. Apparently all went well. That day, the 21st, AND the following day, aside from being exhausted and sore, I did not experience a single AFIB episode! You ALL know what a joyous feeling THAT is! I began to foolishly hope that I was going to be one of the very lucky ones I have read about on these sites who say after their ablation, they felt like a million bucks, didn’t have a single issue with their recovery and were back at work in 3 days. Who ARE these amazing people? After 3 days I was still trying to climb out of the fog from the general anesthetic! (Actually, there was a bit of a mishap there. Turned out I was extremely intolerant of this particular anesthetic and had a very nasty and frightening “resurfacing” from it. And please note that it was an INTOLERANCE……NOT AN ALLERGIC REACTION. The difference really CAN be life and death) Sorry, I see I am going into far more detail than I intended, I do apologize. My question, my concern, MY FEAR, is that on Saturday, 3 days post op, I woke up feeling what I can only describe as a sort of “vibrating/buzzing” feeling in my chest. It felt nothing like the pounding, chaotic beats that were MY AFIB experience. This sensation lasted consistently, with a few short pauses, from Saturday to now….Tuesday, the 26th. About 30 minutes ago it just stopped and so far, has not returned. I hope it stays gone as it was becoming not only annoying but frightening. Has anybody out there had this same or similar feeling? Does anybody know what It could have been? I’m trying VERY hard to be logical and think that it’s just part of the healing process…..perhaps nerves calming down? Perhaps the inflammation was pushing on “something?) How’s that for a highly medical term? “SOMETHING” LOL Any stories, experiences, odd sensations would really help me out. I don’t see my EP for another 3 weeks, and while they did give me paperwork about what to expect, for those of us with some anxiety issues, the details are pretty skimpy. I am also trying very hard NOT to call the doctors offices and be one of “those” people. I realize to them, this procedure is basically no big deal, but for me, it has been SO much more than I thought. (Well, my bubble just burst…..I have just had some more episodes of things going on in my chest) Should I expect this to be as bad the entire 3 months before they tell me if the ablation worked or not. Right this minute, I’m feeling like I made a huge mistake having this procedure……maybe I should have tried harder to tolerate the antiarrhythmics? Thanks for listening. Being alone and scared is not fun.

Hello Ruby Witch, Don't you think you should go to the doctor and get that buzzing and 'things going on in your chest' checked out? Just to be sure it's normal? Good think the ablation is behind you and you can look forward to feeling well now. Good luck@

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Hi im not sure if this my help but i had ventricular tachcardia not afib yours is more the upper heart where mine was the lower heart. But i have been thru many ablations and i was always told that the ablation alone will bring on arrythmyias but usually only for a few days and the ones i got usually weren't the bad ones that i needed the ablation for. Also at least i believe that worry doesn't help i think it helped bring them on. So after seeing a counselor she taught me some tricks to try and basically tell yourself they are not real. But i know with my drs if i was really concerned it did not bother them to address my concerns. I even had a portal that i could text message them and they would answer any questions i had within a day or so. I hope that helps

Liked by dyannne, catmom777

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@rubywitch67

I have done a lot of reading about the "blanking" period following an AFIB ablation. Much of what I've read has stated that during this time of healing, our AFIB can actually be exacerbated by inflammation and the trauma to the heart and surrounding tissues…..not only by all the poking and prodding, but let's NOT forget the rather massive amount of burns!

Doctors at the Mayo Clinic, the Cleveland Clinic, UC Berkley and several other top notch hospitals have all said this is perfectly normal and to be expected…..as are some other post ablation symptoms that go hand in hand with our hearts healing process. In the month since my ablation, I have had about 4 or 5 episodes of what I believe are AFIB. They feel pretty much the same but are not as strong, only once have they gone over 100 beats and the episodes do not last as long. (I kept a daily journal of my BP/HR and oximeter readings)

Yesterday, at my one month follow up, I saw my EP's PA (the last time I actually saw and talked to my EP was 3 weeks BEFORE the ablation. I "think" I saw him for a minute in the pre-op area the day of the ablation, but I was a bit groggy and don't actually remember. I stayed overnight in the hospital and thought I would see the surgeon before I was discharged, but it was his PA who talked to me and discharged me) At the one month follow up, my EKG showed I was sinus rhythm but the PA thought it would be a good idea for me to wear an event monitor for 7 days. (?) My totally non-medical gut feeling was that it was a bit early in the game to go that route since it was "normal and expected" to still experience AFIB during the first 3 months while the scar tissue was forming. I just wanted him to tell me it was to be expected and unless it really got out of hand, I just had to buck up and get through this blanking period. Instead, I am now scared to death as in his summary report to me he stated "LINDA HAS NOT PREVIOUSLY BEEN ON ANTIARRHYTHMIC MEDICATION BUT WITH CAD AND PRIOR STENTS, WE WILL PROBABLY NEED TO PLACE HER ON SOTALOL OR DOFETILIDE AFTER A THREE-DAY STAY IN THE HOSPITAL IF ANTIARRHYTMIC THERAPY WAS NEEDED. I BELIEVE WE NEED AN OBJECTIVE RECORDING OF HER HEART RHYTHMS TO IDENTIFY AND QUANTIFY HER ARRHYTHMIAS PRIOR TO STARTING ANTIARRHYTHMIC THERAPY. a ZIO PATCH MONITOR WAS STARTED TODAY FOR 7 DAYS." I am ONLY one month post ablation and he's already talking Sotalol? I DO NOT want to be placed on this medication!!!! Why wouldn't he just discuss a second ablation to locate any gaps or possible areas that had "self-healed?" I've read so many posts where people say their second or even third ablation finally did the trick and they are very happy living AFIB free…..some for many, many years. I feel like my recovery is being rushed. I AM a very anxious person, and now I'm concerned that this possible need for Sotalol is only going to trigger more AFIB. Any and all advice would be incredibly welcome. I know this post is already far too long, but could some of you please tell me what some of your symptoms were during the blanking period. You have no idea how reassuring it would be to know. I am a 67 y/o woman with no support and I am very frightened. Thank you so much.

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Hi, i will start off by saying most of what your experiencing is normal part of the reason ablations are not done back to back is because of the healing. Now realize i had a much more serious arrythimiths of the lower heart calyed Ventricular Tachacardia. Mine i had to be on meds too one of them was solotol. But my episodes were more dangerous and if an episode could not be paced out i had to be shocked back into sinus rhythm so you are doing excellent so far if your AFib episodes can be controlled with just meds. I had a pacemaker with difibulator. I went thru quit a few ablations more towards the end but in the beginning about 11 years ago i had 1 and it got my heart better but a year later my dr said i was still having more small ones than he liked. So i had a second which worked really well and my third was quite awhile after. I do know they usually don't like doing them any closer than 6 months apart. But everyone the first month or so there would be little ones i could feel but got better after that. Now the fact i had a pacemaker also helped because i was monitored all the time. So that for me gave me confidence that the dr could see how well the ablation took. For you the holter will also give them similar information. So try and relax and see what the holter showes. I was on antiarrhythmic meds for about 10 years and it kept my heart going for quite a while.

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I was miserable for a full 4-5 months following my ablation (irregular heartbeat, rapid heartbeat, "strange" sensations, etc.) It finally calmed down on its own and I've been fine ever since. Don't panic and don't give up.

Liked by dyannne, catmom777

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@afrobin

Hello Ruby Witch, Don't you think you should go to the doctor and get that buzzing and 'things going on in your chest' checked out? Just to be sure it's normal? Good think the ablation is behind you and you can look forward to feeling well now. Good luck@

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Hello AFRobin…Like you, I most definitely thought I needed to speak with my doctor or his PA regarding these symptoms, and I did. It took most of the day for them to get back to me and by then I was pretty panicked, but they assured me that ALL the symptoms I was feeling, including the buzzing/vibrating stuff, was normal. Maybe not extremely common, but nothing to be concerned about. The doctor said it was most likely very small nerves that had been irritated, inflamed or even damaged during the process and it was all part of the healing. He said these feelings would probably only last a couple of days, and he was right. On the third day, they stopped and have not returned. I am now one month post-ablation and have VERY minimal symptoms that feel more like muscle spams than AFIB for which I am incredibly grateful. My recovery seems to be going well and I am trying to be as optimistic as I can.

Liked by dyannne

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@danab

Hi im not sure if this my help but i had ventricular tachcardia not afib yours is more the upper heart where mine was the lower heart. But i have been thru many ablations and i was always told that the ablation alone will bring on arrythmyias but usually only for a few days and the ones i got usually weren't the bad ones that i needed the ablation for. Also at least i believe that worry doesn't help i think it helped bring them on. So after seeing a counselor she taught me some tricks to try and basically tell yourself they are not real. But i know with my drs if i was really concerned it did not bother them to address my concerns. I even had a portal that i could text message them and they would answer any questions i had within a day or so. I hope that helps

Jump to this post

Hi danab……….wow! Your type of arrhythmia is pretty scary but it sounds like they've got a good handle on it. Your words meant a lot to me because you are so calm and I really need to learn how to do that. That I have panic disorder makes it harder, but when you can still reach out to other people who are afraid, you give me courage. Thank you so much and I hope your heart is soon 100% better!

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@aparr

I was miserable for a full 4-5 months following my ablation (irregular heartbeat, rapid heartbeat, "strange" sensations, etc.) It finally calmed down on its own and I've been fine ever since. Don't panic and don't give up.

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Hi aparr…….did you have an ablation? If you did, can you tell me what your blanking period was like…..symptom wise? I am just now one month post ablation and can feel my heart and chest (and yes….throat) starting to calm down. I would just like some idea of what to expect from the next 2 months until the "verdict" comes in? Thanks so much for writing!

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@rubywitch67

Hi aparr…….did you have an ablation? If you did, can you tell me what your blanking period was like…..symptom wise? I am just now one month post ablation and can feel my heart and chest (and yes….throat) starting to calm down. I would just like some idea of what to expect from the next 2 months until the "verdict" comes in? Thanks so much for writing!

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Yes I did. I had episodes of afib and episodes of rapid heartbeat off and on (mostly on) for months. I honestly thought it was worse than before the ablation. But it eventually settled down to a normal rhythm and reasonable rating heart rate.

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I'm sorry your recovery went on so long and I sure hope mine doesn't! What did your doctor say about the length of your recovery? Did he talk about putting you on antiarrhythmics during that time? Was there any talk about a second ablation in time? At my one month post ablation, the PA now has me wearing an event monitor for a week, which I will send back this Monday. He also talked quite a bit about Sotalol and THAT totally freaked me out!!!! I'm only one month post ablation, had 4 or 5 fairly minor episodes of AFIB during those first 4 weeks which were nothing compared to before…….and now I'm wearing a monitor and will run away before I ever take Sotalol. He never listened to my heart nor did he check my groin sites. I lost quite a bit of trust in him that day. I feel like I'm being pushed to recovery way too fast!!!! Unless there WAS something really wrong, I wanted to be told that things were going forward fine, to just relax and take it easy and he'd see me in another month. Now I'm wondering if I should get another opinion! If this monitor shows anything, he'll probably suggest I have a heart transplant. I'm trying to be funny, but I'm not finding this PA very funny at all.

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@rubywitch67

Hi danab……….wow! Your type of arrhythmia is pretty scary but it sounds like they've got a good handle on it. Your words meant a lot to me because you are so calm and I really need to learn how to do that. That I have panic disorder makes it harder, but when you can still reach out to other people who are afraid, you give me courage. Thank you so much and I hope your heart is soon 100% better!

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@rubywitch67 hi ruby, actually my story did get worse and i dont want to frighten you but the arrythmias did get worse and just last year i got a heart transplant. But understand i wanted to realize that ablations do work but in my case the heart was just to damaged and i personally know a Afib person who is still doing very well. I personally have never heard of someone having to have to get a heart transplant with afib. I just wanted you to nor worry about the healing process. But i will mention that during my darkest time about 3 years ago my faith in Jesus got me thru along with the prayers of my church family and friends. So thate is my story condensed version my full bio is on my personal page i can post it here if you like.

Liked by Soliloquized

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Fantastic! All's well that ends well!

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TMI, keep it simple!

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tedkramer…….if your response of "TMI" was directed at my post, why didn't you just skip over it? I realize it was long, but I was very frightened and thought the more information I gave, the easier it would be for someone to address my most salient concerns. I am incredibly grateful to those members who replied and offered support and advice and shared their stories with me. I see, tedkramer, that you have been a member since 2015. Perhaps I should feel honored that in those 3 1/2 years, your one and only post has been to me. Thanks for the advice.

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@rubywitch67

I have done a lot of reading about the "blanking" period following an AFIB ablation. Much of what I've read has stated that during this time of healing, our AFIB can actually be exacerbated by inflammation and the trauma to the heart and surrounding tissues…..not only by all the poking and prodding, but let's NOT forget the rather massive amount of burns!

Doctors at the Mayo Clinic, the Cleveland Clinic, UC Berkley and several other top notch hospitals have all said this is perfectly normal and to be expected…..as are some other post ablation symptoms that go hand in hand with our hearts healing process. In the month since my ablation, I have had about 4 or 5 episodes of what I believe are AFIB. They feel pretty much the same but are not as strong, only once have they gone over 100 beats and the episodes do not last as long. (I kept a daily journal of my BP/HR and oximeter readings)

Yesterday, at my one month follow up, I saw my EP's PA (the last time I actually saw and talked to my EP was 3 weeks BEFORE the ablation. I "think" I saw him for a minute in the pre-op area the day of the ablation, but I was a bit groggy and don't actually remember. I stayed overnight in the hospital and thought I would see the surgeon before I was discharged, but it was his PA who talked to me and discharged me) At the one month follow up, my EKG showed I was sinus rhythm but the PA thought it would be a good idea for me to wear an event monitor for 7 days. (?) My totally non-medical gut feeling was that it was a bit early in the game to go that route since it was "normal and expected" to still experience AFIB during the first 3 months while the scar tissue was forming. I just wanted him to tell me it was to be expected and unless it really got out of hand, I just had to buck up and get through this blanking period. Instead, I am now scared to death as in his summary report to me he stated "LINDA HAS NOT PREVIOUSLY BEEN ON ANTIARRHYTHMIC MEDICATION BUT WITH CAD AND PRIOR STENTS, WE WILL PROBABLY NEED TO PLACE HER ON SOTALOL OR DOFETILIDE AFTER A THREE-DAY STAY IN THE HOSPITAL IF ANTIARRHYTMIC THERAPY WAS NEEDED. I BELIEVE WE NEED AN OBJECTIVE RECORDING OF HER HEART RHYTHMS TO IDENTIFY AND QUANTIFY HER ARRHYTHMIAS PRIOR TO STARTING ANTIARRHYTHMIC THERAPY. a ZIO PATCH MONITOR WAS STARTED TODAY FOR 7 DAYS." I am ONLY one month post ablation and he's already talking Sotalol? I DO NOT want to be placed on this medication!!!! Why wouldn't he just discuss a second ablation to locate any gaps or possible areas that had "self-healed?" I've read so many posts where people say their second or even third ablation finally did the trick and they are very happy living AFIB free…..some for many, many years. I feel like my recovery is being rushed. I AM a very anxious person, and now I'm concerned that this possible need for Sotalol is only going to trigger more AFIB. Any and all advice would be incredibly welcome. I know this post is already far too long, but could some of you please tell me what some of your symptoms were during the blanking period. You have no idea how reassuring it would be to know. I am a 67 y/o woman with no support and I am very frightened. Thank you so much.

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I tried Sotalol, and am now on Amiodorone. Neither stopped my A-fib. I had an ablation last week and knew going into it I would be on a rhythm medication for at least two months post op. Having had 12 cardioversions in a 20 month period, I have no problem taking a medication that may boost the results of the ablation to prevent the persistent A-fib. You should know that those medications are administered in the hospital, for five doses, to prevent any bad outcomes from the drugs. Think of it as a mini vacation and catch up on book reading, correspondence, or whatever you enjoy.

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@rubywitch67

I have done a lot of reading about the "blanking" period following an AFIB ablation. Much of what I've read has stated that during this time of healing, our AFIB can actually be exacerbated by inflammation and the trauma to the heart and surrounding tissues…..not only by all the poking and prodding, but let's NOT forget the rather massive amount of burns!

Doctors at the Mayo Clinic, the Cleveland Clinic, UC Berkley and several other top notch hospitals have all said this is perfectly normal and to be expected…..as are some other post ablation symptoms that go hand in hand with our hearts healing process. In the month since my ablation, I have had about 4 or 5 episodes of what I believe are AFIB. They feel pretty much the same but are not as strong, only once have they gone over 100 beats and the episodes do not last as long. (I kept a daily journal of my BP/HR and oximeter readings)

Yesterday, at my one month follow up, I saw my EP's PA (the last time I actually saw and talked to my EP was 3 weeks BEFORE the ablation. I "think" I saw him for a minute in the pre-op area the day of the ablation, but I was a bit groggy and don't actually remember. I stayed overnight in the hospital and thought I would see the surgeon before I was discharged, but it was his PA who talked to me and discharged me) At the one month follow up, my EKG showed I was sinus rhythm but the PA thought it would be a good idea for me to wear an event monitor for 7 days. (?) My totally non-medical gut feeling was that it was a bit early in the game to go that route since it was "normal and expected" to still experience AFIB during the first 3 months while the scar tissue was forming. I just wanted him to tell me it was to be expected and unless it really got out of hand, I just had to buck up and get through this blanking period. Instead, I am now scared to death as in his summary report to me he stated "LINDA HAS NOT PREVIOUSLY BEEN ON ANTIARRHYTHMIC MEDICATION BUT WITH CAD AND PRIOR STENTS, WE WILL PROBABLY NEED TO PLACE HER ON SOTALOL OR DOFETILIDE AFTER A THREE-DAY STAY IN THE HOSPITAL IF ANTIARRHYTMIC THERAPY WAS NEEDED. I BELIEVE WE NEED AN OBJECTIVE RECORDING OF HER HEART RHYTHMS TO IDENTIFY AND QUANTIFY HER ARRHYTHMIAS PRIOR TO STARTING ANTIARRHYTHMIC THERAPY. a ZIO PATCH MONITOR WAS STARTED TODAY FOR 7 DAYS." I am ONLY one month post ablation and he's already talking Sotalol? I DO NOT want to be placed on this medication!!!! Why wouldn't he just discuss a second ablation to locate any gaps or possible areas that had "self-healed?" I've read so many posts where people say their second or even third ablation finally did the trick and they are very happy living AFIB free…..some for many, many years. I feel like my recovery is being rushed. I AM a very anxious person, and now I'm concerned that this possible need for Sotalol is only going to trigger more AFIB. Any and all advice would be incredibly welcome. I know this post is already far too long, but could some of you please tell me what some of your symptoms were during the blanking period. You have no idea how reassuring it would be to know. I am a 67 y/o woman with no support and I am very frightened. Thank you so much.

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12 cardiofversions in 20 months!!! What a positive attitude you have!

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