Testing Positive and Negative after MAC Treatment

Posted by terryb1 @128128terry11t, Sep 27, 2019

Right after I stopped taking the drugs (was on for 2 years having had 5 negative sputum in a row), I tested positive. I now seem to test intermittently positive. I was wondering if there are others who test sometimes positive and sometimes negative AFTER finishing treatment. For now not taking any meds as doctor is concerned with symptoms and not exclusively with sputum results. Would like to hear from others who are testing sometimes positive and sometimes negative AFTER finishing treatment. So comforting to know that we are not on this journey alone. Always appreciate the feedback.

@windwalker

@heathert I have had both MAI and MAC. Drs always just told me I had mac; and I was shocked when I requested ALL hard copies of my sputem lab reports going back to 2005, and saw the MAI diagnosis in one of my years of illness. You all have heard me time and again say "GET HARD COPIES OF YOUR LAB REPORTS". It is important in so many ways.

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@windwalker So true!

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@windwalker

@rmason Are you having CT scans evety two years to make sure that there is no silent lung damage happening?

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@windwalker -I haven’t even been diagnosed for two years yet-I did have a second CT scan before I completed the year of antibiotics and the pulmonologist thought there was some improvement-I will definitely keep track of that!

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@windwalker

@heathert It doesn't matter if you had mac or mai. Neither are curable; and the cause for getting it in the first place is either faulty genes, bronchiectasis, gerd, lung damage, or low immune system (low IGg), etc. Antibiotics do not erase those things. That is why mac re-occurrance is probable. That is why my dr wants me on 10 day a month antibiotics probably for life. We must all bear in mind, a negative sputem test does not neccessarly mean that it is gone, it means it is at an undetectable level. I am not saying my treatment is the way to go for everybody, but it is food for thought. (& mac-free since 2014, or at least undetectable level.)

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@windwalker Terri, what antibiotics do you take 10 days/month? Thank you!

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