← Return to Testing Positive and Negative after MAC Treatment

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terryb1 (@128128terry11t)

Testing Positive and Negative after MAC Treatment

MAC & Bronchiectasis | Last Active: Oct 17, 2019 | Replies (18)

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@heathert

@windwalker I am going off the meds in 2 months and my specialist is insistant on just going off without taking anything else to stop the MAI to return. I am not happy about about this so will write to her using your wordings above. I guess I would take something different to you having MAI not MAC

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Replies to "@windwalker I am going off the meds in 2 months and my specialist is insistant on..."

@heathert I have had both MAI and MAC. Drs always just told me I had mac; and I was shocked when I requested ALL hard copies of my sputem lab reports going back to 2005, and saw the MAI diagnosis in one of my years of illness. You all have heard me time and again say "GET HARD COPIES OF YOUR LAB REPORTS". It is important in so many ways.

@heathert It doesn't matter if you had mac or mai. Neither are curable; and the cause for getting it in the first place is either faulty genes, bronchiectasis, gerd, lung damage, or low immune system (low IGg), etc. Antibiotics do not erase those things. That is why mac re-occurrance is probable. That is why my dr wants me on 10 day a month antibiotics probably for life. We must all bear in mind, a negative sputem test does not neccessarly mean that it is gone, it means it is at an undetectable level. I am not saying my treatment is the way to go for everybody, but it is food for thought. (& mac-free since 2014, or at least undetectable level.)