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amber3212
@amber3212

Posts: 7
Joined: Mar 05, 2018

Polyneuropathy

Posted by @amber3212, Sat, Sep 29 4:21pm

Has anyone here been diagnosed with Small Fiber Polyneuropathy? Who do you go to find the underlying cause?

REPLY

Hello @amber3212, I have idiopathic small fiber peripheral neuropathy and my neurologist thought it may be hereditary. I think the reality is as much as I would like to know the cause it is just not to be for me. I hope someone can provide an answer for you. I did a little research on causes and did find an interesting article that just adds a little more clarity.

Small-Fiber Polyneuropathy Could be the Answer Some Fibromyalgia Patients are Seeking
http://nationalpainreport.com/small-fiber-polyneuropathy-could-be-the-answer-some-fibromyalgia-patients-are-seeking-8835911.html

Does anyone else in your family have small fiber polyneuropathy?

John

@johnbishop

Hello @amber3212, I have idiopathic small fiber peripheral neuropathy and my neurologist thought it may be hereditary. I think the reality is as much as I would like to know the cause it is just not to be for me. I hope someone can provide an answer for you. I did a little research on causes and did find an interesting article that just adds a little more clarity.

Small-Fiber Polyneuropathy Could be the Answer Some Fibromyalgia Patients are Seeking
http://nationalpainreport.com/small-fiber-polyneuropathy-could-be-the-answer-some-fibromyalgia-patients-are-seeking-8835911.html

Does anyone else in your family have small fiber polyneuropathy?

John

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Interesting! Thanks a bunch. I'm writing this for Momma 🙂 she just got diagnosed with SPFN. shes on several medications and also has RA. I'm on the lookout for a functional medicine doctor I'm STL, MO to start weaning her off her meds and approach this the natural way 🙂

@amber3212 thank you for being an advocate for your Mom. The medications and their side effects can be challenging. I like the natural way when possible myself. What got me started thinking that way was a book by Dr Terry Wahls – The Wahls Protocol. She has a really amazing story of getting rid of her symptoms of MS and going from a wheelchair to riding a bike by changing what she ate. Here's a link to her story – https://terrywahls.com/about/about-terry-wahls/. She also has a lot of interesting YouTube videos and some TED Talks that are quite good.

I found something that has helped me and some others but I don't know if it will work for your mom. Here is a link to the post where I shared my story on Connect: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985

John

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