Polyneuropathy

Posted by amber3212 @amber3212, Sep 29, 2018

Has anyone here been diagnosed with Small Fiber Polyneuropathy? Who do you go to find the underlying cause?

Interested in more discussions like this? Go to the Autoimmune Diseases group.

Hello @amber3212, I have idiopathic small fiber peripheral neuropathy and my neurologist thought it may be hereditary. I think the reality is as much as I would like to know the cause it is just not to be for me. I hope someone can provide an answer for you. I did a little research on causes and did find an interesting article that just adds a little more clarity.

Small-Fiber Polyneuropathy Could be the Answer Some Fibromyalgia Patients are Seeking
http://nationalpainreport.com/small-fiber-polyneuropathy-could-be-the-answer-some-fibromyalgia-patients-are-seeking-8835911.html

Does anyone else in your family have small fiber polyneuropathy?

John

REPLY
@johnbishop

Hello @amber3212, I have idiopathic small fiber peripheral neuropathy and my neurologist thought it may be hereditary. I think the reality is as much as I would like to know the cause it is just not to be for me. I hope someone can provide an answer for you. I did a little research on causes and did find an interesting article that just adds a little more clarity.

Small-Fiber Polyneuropathy Could be the Answer Some Fibromyalgia Patients are Seeking
http://nationalpainreport.com/small-fiber-polyneuropathy-could-be-the-answer-some-fibromyalgia-patients-are-seeking-8835911.html

Does anyone else in your family have small fiber polyneuropathy?

John

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Interesting! Thanks a bunch. I'm writing this for Momma 🙂 she just got diagnosed with SPFN. shes on several medications and also has RA. I'm on the lookout for a functional medicine doctor I'm STL, MO to start weaning her off her meds and approach this the natural way 🙂

REPLY

@amber3212 thank you for being an advocate for your Mom. The medications and their side effects can be challenging. I like the natural way when possible myself. What got me started thinking that way was a book by Dr Terry Wahls – The Wahls Protocol. She has a really amazing story of getting rid of her symptoms of MS and going from a wheelchair to riding a bike by changing what she ate. Here's a link to her story – https://terrywahls.com/about/about-terry-wahls/. She also has a lot of interesting YouTube videos and some TED Talks that are quite good.

I found something that has helped me and some others but I don't know if it will work for your mom. Here is a link to the post where I shared my story on Connect: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985

John

REPLY
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