Small Fiber Polyneuropathy

Posted by amber3212 @amber3212, Sep 29, 2018

Has anyone here been diagnosed with Small Fiber Polyneuropathy? Who do you go to find the underlying cause?

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@amber3212 Find a Neurologist who has knowledge of SFN. They should do a (painful) Electromyography (EMG) test to see if you have any Neuropathy in your Large Fibers, then they should also do a Skin Punch Biopsy which takes a core of the cells to check for evidence of SFN-this is the gold standard test. Then they progress on to investigate if you have an underlying cause that can be treated, so bloodwork, imaging genetic testing may all be in the mix. Autoimmune diseases can be a cause, so if you can treat that you could see symptom improvement. I believe about 40% of cases are considered Idiopathic, meaning they don't know why you have it. This was my DX. I hope this helps

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