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Hi my son was diagnosed with pogz in 2016 I just wanted to no If anyone here has connections in this field I really would like to no if anyone has any information on it thank you
Hi @lyndacarroll88 and welcome to Connect.
I wanted to introduce you to fellow Connect members @rachelfromnl @lisapraska and @jennsprung as they have mentioned POGZ in the past and may be able to offer you support.
I also wanted to share these discussions as they may be helpful:
White -Sutton Syndrome – https://connect.mayoclinic.org/discussion/white-sutton-syndrome/
Anyone with keutel syndrome – https://connect.mayoclinic.org/discussion/anyone-with-keutel-syndrome/
Back to you @lyndacarroll88 has your son shown any symptoms since this diagnosis?
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