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Podcast entitled Health Consequences of Hearing Loss

Posted by imallears @imallears, Apr 11, 2019

Hi all,

I watched the above mentioned captioned podcast today and left a comment. It was listed on the daily digest. If you view it I would like feedback on my comments and what you thought about it in general.

Regards from Florida Mary

Interested in more discussions like this? Go to the Hearing Loss Support Group.

dloos | @dloos | May 7 1:40pm
In reply to @sylvermoon8 "I am to have a electronystagmography test. It sounds like what you went through. Did they..." + (show)
@sylvermoon8

I am to have a electronystagmography test. It sounds like what you went through. Did they put water in your ears and position your head in different ways? I was wondering how you are now.

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I see this is a five year old conversation.
I am also in a bind for finding good help even though I have seen well respected ENTs in three counties!
I lost a lot of hearing after a plane flight. I am not deaf, but my hearing is distorted with tinnitus and hyperacusis. I was also told by an ENT that I undoubtedly had nerve damage, and that there was no treatment. I left his office in tears never to return.
I wear hearing aids, and have had balloon inflation to my Eustachian tubes. That procedure made my distorted hearing worse. The hearing aids do very little for me. If I turn up the volume I also turn up the hyperacusis.
I am at my wits end, completely debilitated, and unable to participate in life.
This has been going on for two years. I find my life not worth living any longer.

REPLY
1 reply
Mentor
Julie, Volunteer Mentor | @julieo4 | May 8 11:33am
In reply to @dloos "I see this is a five year old conversation. I am also in a bind for..." + (show)
@dloos

I see this is a five year old conversation.
I am also in a bind for finding good help even though I have seen well respected ENTs in three counties!
I lost a lot of hearing after a plane flight. I am not deaf, but my hearing is distorted with tinnitus and hyperacusis. I was also told by an ENT that I undoubtedly had nerve damage, and that there was no treatment. I left his office in tears never to return.
I wear hearing aids, and have had balloon inflation to my Eustachian tubes. That procedure made my distorted hearing worse. The hearing aids do very little for me. If I turn up the volume I also turn up the hyperacusis.
I am at my wits end, completely debilitated, and unable to participate in life.
This has been going on for two years. I find my life not worth living any longer.

Jump to this post

Oh my goodness. I hope you are able to see through this and get help from a medical person who will give you positive information. The standard thought decades ago was that the auditory nerve was damaged or dying. Cochlear implants, in most instances, have proven that the damage is not in the nerve, but in the cochlea. A cochlear implant bypasses the cochlea and stimulates the auditory nerve which sends the message to the brain. You may want to look into this option.

Did the ENT you say mention cochlear implants?

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1 reply
dloos | @dloos | May 8 12:21pm
In reply to @julieo4 "Oh my goodness. I hope you are able to see through this and get help from..." + (show)
@julieo4

Oh my goodness. I hope you are able to see through this and get help from a medical person who will give you positive information. The standard thought decades ago was that the auditory nerve was damaged or dying. Cochlear implants, in most instances, have proven that the damage is not in the nerve, but in the cochlea. A cochlear implant bypasses the cochlea and stimulates the auditory nerve which sends the message to the brain. You may want to look into this option.

Did the ENT you say mention cochlear implants?

Jump to this post

No, I have not had cochlear implants suggested. Most have recommended SSRI drugs which I do not tolerate well. Plus I feel it is a physical issue, not really psychological. Though of course it has caused depression.

I have quite a lot of hearing, but it is distorted. I have an appointment coming up with my current Audiologist and will ask what he thinks about cochlear implants for me. I am also interested in Lenire. Wondering if that therapy could help me.

I’m trying very hard not to give up, but after two years and nothing working for me, I am very discouraged.

REPLY
1 reply
Mentor
Julie, Volunteer Mentor | @julieo4 | May 8 3:48pm
In reply to @dloos "No, I have not had cochlear implants suggested. Most have recommended SSRI drugs which I do..." + (show)
@dloos

No, I have not had cochlear implants suggested. Most have recommended SSRI drugs which I do not tolerate well. Plus I feel it is a physical issue, not really psychological. Though of course it has caused depression.

I have quite a lot of hearing, but it is distorted. I have an appointment coming up with my current Audiologist and will ask what he thinks about cochlear implants for me. I am also interested in Lenire. Wondering if that therapy could help me.

I’m trying very hard not to give up, but after two years and nothing working for me, I am very discouraged.

Jump to this post

I wish you the best and encourage you not to give up. Hearing loss is very frustrating because it hits us hard in so many ways. Are you familiar with HLAA? The Hearing Loss Assn. of America has chapters in many locations. It promotes peer support, education, information sharing, etc. Just meeting other people who are experiencing what you are experiencing can be a big game changer. Check out HLAA at http://www.hearingloss.org

REPLY
1 reply
dloos | @dloos | May 8 4:31pm
In reply to @julieo4 "I wish you the best and encourage you not to give up. Hearing loss is very..." + (show)
@julieo4

I wish you the best and encourage you not to give up. Hearing loss is very frustrating because it hits us hard in so many ways. Are you familiar with HLAA? The Hearing Loss Assn. of America has chapters in many locations. It promotes peer support, education, information sharing, etc. Just meeting other people who are experiencing what you are experiencing can be a big game changer. Check out HLAA at http://www.hearingloss.org

Jump to this post

Thank you.

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