'PINK SLIME' Data Base

Dear Connect Members,

Remember the poll I started about who has the ‘pink slime’ AKA Methylobacterium in their bathrooms? I have been in contact with Joseph Falkinham, a NTM reseacher and professor at Virginia Tech. He is very interested in starting a data base for where this particular bacterium is located throughout the U.S. and Canada. I have noted the locales from those of you who have already responded. Am encouraging any others with the pinkish/orange bacteria to report it back here to me. I don’t know about you, but I am excited to be a part of important research.
Please include your state and county name when submitting. Thank you in advance for helping with this poll. See e-mail below from Dr. Falkinham – Terri M.

“Dear Terri:

The source of mycobacteria in homes and buildings is the municipal water from a utility. It enters the treatment plant from the source water, usually adhering to soil particulates. The mycobacteria are disinfectant-resistant and are the few survivors of disinfection (e.g., chlorine) and have no competitors that have been killed off.

When that water reaches our homes, the mycobacteria grow in the water heaters and then are circulated throughout the house. We are currently finishing up work showing the impact of the water heater on mycobacterial numbers. Thus, the critical control point for mycobacteria might be the water heater.

I would certainly appreaciate knowing where the “Connect” group has found pink slime. You have given me an idea….I can use the NTM Foundation data base to get an idea of pink slime across the US and Canada.

Best,
Joe”

@brigby

@windwalker Hi Teri, We live in Fresno, CA, and we have an orange residue in our sinks, our refrigerator ice dispenser tray (outside the fridge).

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@brigby Hi Brenda. Supposedly, if you have the pink bacteria in your bathroom at home, then you do not have avium mycobacterium lurking in your pipes. The pink bacteria outranks the mac variety. This is according to Dr. Joseph Faulkinham who is a microbiologist at Virginia Tech University. I have been collecting statistics on mac patient's occupations too, so I am glad that you mentioned that you are a teacher. I have found that the majority of mac patients have worked as nurses or in the medical field (I would say about 80%). Second to them is teachers. The correlation that I see between the two is that both occupations expose you to many people and their germs year after year. The other correlation I see is that hospitals and schools use commercial cleaning products. It is possible they are creating super bugs.. These are just my observations from reading so many posts here over the years.

Liked by pfists, Brenda R.

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@windwalker

@brigby Hi Brenda. Supposedly, if you have the pink bacteria in your bathroom at home, then you do not have avium mycobacterium lurking in your pipes. The pink bacteria outranks the mac variety. This is according to Dr. Joseph Faulkinham who is a microbiologist at Virginia Tech University. I have been collecting statistics on mac patient's occupations too, so I am glad that you mentioned that you are a teacher. I have found that the majority of mac patients have worked as nurses or in the medical field (I would say about 80%). Second to them is teachers. The correlation that I see between the two is that both occupations expose you to many people and their germs year after year. The other correlation I see is that hospitals and schools use commercial cleaning products. It is possible they are creating super bugs.. These are just my observations from reading so many posts here over the years.

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@windwalker
Terri
That's very interesting about NTM patients working in nursing and teacheing field.
I was working in a medical clinic in Urgent Care when I got so sick I finally had to retire. I just kept getting sickier and sicker. It was probably the worst place to be because just about everyone that came in had a virus, cold or some kind of bacteria. Yuck
Dont know how I lasted as long as I did.
Shari

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@windwalker

@brigby Hi Brenda. Supposedly, if you have the pink bacteria in your bathroom at home, then you do not have avium mycobacterium lurking in your pipes. The pink bacteria outranks the mac variety. This is according to Dr. Joseph Faulkinham who is a microbiologist at Virginia Tech University. I have been collecting statistics on mac patient's occupations too, so I am glad that you mentioned that you are a teacher. I have found that the majority of mac patients have worked as nurses or in the medical field (I would say about 80%). Second to them is teachers. The correlation that I see between the two is that both occupations expose you to many people and their germs year after year. The other correlation I see is that hospitals and schools use commercial cleaning products. It is possible they are creating super bugs.. These are just my observations from reading so many posts here over the years.

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@windwalker Hi Teri, well bummer, then, I guess, that our water residue is orange instead of pink! LOL

I regularly culture m. Abscessus in both my sinuses and lungs, along with MAC, MAI, HIBB, and now this last sputum sample shows AFB positive, that’s new, along with some fungi: Penicillium series, aspergillosis, and MUCOR.

But I am blessed and lucky to be functioning really well & able to work right now. Have not had to start Big 3. Like you, I take a prophylactic (inhalant) antibiotic daily.

Stay well!

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@pfists

@windwalker
Terri
That's very interesting about NTM patients working in nursing and teacheing field.
I was working in a medical clinic in Urgent Care when I got so sick I finally had to retire. I just kept getting sickier and sicker. It was probably the worst place to be because just about everyone that came in had a virus, cold or some kind of bacteria. Yuck
Dont know how I lasted as long as I did.
Shari

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@pfists @windwalker Count me in. I have worked in Hospitals and Clinics since 1974.

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@brigby

@windwalker Hi Teri, well bummer, then, I guess, that our water residue is orange instead of pink! LOL

I regularly culture m. Abscessus in both my sinuses and lungs, along with MAC, MAI, HIBB, and now this last sputum sample shows AFB positive, that’s new, along with some fungi: Penicillium series, aspergillosis, and MUCOR.

But I am blessed and lucky to be functioning really well & able to work right now. Have not had to start Big 3. Like you, I take a prophylactic (inhalant) antibiotic daily.

Stay well!

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@brigby
Its great that your still able to work with what your dealing with!
I understand the time it takes to get ready in the morning, I can barely get out of the house by noon.
There's the duo nib salt nib and now Tobi nib plus 1/2 hour on the Vest.
I was just curious though what (prophlactic antibiotic inhalant) you are using daily.
Seems we have a lot in common. I had abcessus along with a lot of different asperigillus.

Shari

Liked by pfists

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@brigby and @pfists I cannot get out of the house before noon either due to 3 inhalant treatments I have to do. It is such a drag.

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@windwalker Teri, I know the treatments are so time consuming…when I think I can’t do it again, I try to remind myself we are benefiting from many who have gone before us who had NONE of the treatment options we enjoy. My prayer is we can help those who come after us in any small way. Hang on girl and keep moving, when you can. I’m sorry for all you go through, and I’m grateful for your leadership in this forum. Brenda

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@brigby

@windwalker Teri, I know the treatments are so time consuming…when I think I can’t do it again, I try to remind myself we are benefiting from many who have gone before us who had NONE of the treatment options we enjoy. My prayer is we can help those who come after us in any small way. Hang on girl and keep moving, when you can. I’m sorry for all you go through, and I’m grateful for your leadership in this forum. Brenda

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@brigby Thank you for bringing me back down to earth! You are absolutely right. How lucky we are to have the meds that we do nowadays. You have reminded me to think back to the days years ago when my drs didn't know how to treat this, and how sick I was. I am sitting here now huffing on my tobi and feeling grateful for it.

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@windwalker Atta girl! I’m not sick right now, so of course it’s easy for me to be grateful! We”ll see how my attitude is next time I’m down sick! Might need you to snap me out of it!

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@windwalker

Yes Jan. I will send yours as well. Thank you.

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@windwalker….terri…did l reply to this two years ago? to be part of the group with pink slime….we have it is our shower…on the walls where the water lands….I live in SE Wisconsin.,,..,Washington county,,,,west Bend….tdrell aka terri

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Is this still an active post. I have the pink mold in my bath room. I recently remodeled bathroom. Replaced shower pan, showerhead, retiled. But the pink mold grew again in my new tile. If it is in the waterheater that could explain the reason it grew back . I have bronchiectasis/ Mac. Could I contact gentleman at Virginia tech.

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@pfists

@brigby
Its great that your still able to work with what your dealing with!
I understand the time it takes to get ready in the morning, I can barely get out of the house by noon.
There's the duo nib salt nib and now Tobi nib plus 1/2 hour on the Vest.
I was just curious though what (prophlactic antibiotic inhalant) you are using daily.
Seems we have a lot in common. I had abcessus along with a lot of different asperigillus.

Shari

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Do neb while doing the vest.?

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@chattey2

Is this still an active post. I have the pink mold in my bath room. I recently remodeled bathroom. Replaced shower pan, showerhead, retiled. But the pink mold grew again in my new tile. If it is in the waterheater that could explain the reason it grew back . I have bronchiectasis/ Mac. Could I contact gentleman at Virginia tech.

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Hi @chatty2, if I'm correct the pink mold is not a bad thing. I believe that when the pink mold is present the MAC doesn't like it so it lets the pink mold hold court. I have pink mold and I couldn't be happier. But to confirm there are many on this site that might want to chime in….@windwalker for one. She's our leader. Nan

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@chattey2

Do neb while doing the vest.?

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I do it that way….my pulmonologist says it’s fine as long as I can tolerate it.

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@windwalker

Yes Jan. I will send yours as well. Thank you.

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@windwalker Terri, Responding to your pink slime question. Yes, I see it here in my bathrooms. Not a lot but certainly pink slime. I am in Vero Beach, FL.
Kate

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