Mayo Clinic Connect
Has anyone suffered or is suffering from PLMD?
Welcome to Connect, @krissyelkins07,
Here’s what I found –
Periodic limb movement disorder (PLMD) is characterized by twitching, flexing, and jerking movements of the legs and arms during sleep. The movements occur every 20 to 40 seconds and may last for minutes or hours throughout the night. People with PLMD don’t know their limbs are moving, and are unable to control or stop them. https://emedicine.medscape.com/article/1188558-overview
Researchers don’t know the exact cause of this disorder. Some think it may be related to low iron levels or a problem with the nerves in the limbs caused by another condition. It’s important to note that PLMD is not the same as restless legs syndrome (RLS). The majority of patients with RLS have PLMD, but the reverse is not true.
You might be interested in viewing this Connect discussion, where several members have shared their experiences:
– Peripheral neuropathy, RLS and PLMD https://connect.mayoclinic.org/discussion/peripheral-neuropathy-rls-and-plmd/
I’m also tagging @johnhans @barbarn @johnbishop @baumgrenze @usafretired15 @clayhere, as they might be able to shed more light on this condition. @krissyelkins07, could you share a few more details? When did this start? Have you consulted a doctor or sleep therapist?
Hello @krissyelkins07, I would like to add my welcome to Connect along with @kanaazpereira. I would also echo Kanaaz's question and ask have you discussed the periodic limb movement disorder with your doctor or sleep therapist? From what I have read about it, PLMD is associated with sleeping. Here are a few references I found.
National Sleep Foundation – Periodic Limb Movement Disorder (PLMD)
Medical News Today – Periodic limb movement disorder: Symptoms and treatment
Liked by Kanaaz Pereira, Connect Moderator
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Thank you for all of the detailed information. I've had PLMD and RLS since I was about 14. I can handle the RLS it's the PLMD that I am constantly fighting. The twitching during the day but mostly at night. The acking and pain in them is unbearable sometimes. I've been on every medication possible until my body doesn't respond to it. I finally did an EEG which came up fine and sleep study. The sleep study came up that I have severe PLMD and RLS and to take 1200 MG of Gabapentin and 600 MG of Mirapex. I work in finance and theres on way I could function that. My doctor never went over my my sleep study he just said over the phone what I told you. I'm wondering how severe is it? What do the PLMD arousal number mean. Will this keep getting worse? I have to take mirapex throughout the day because insurance doesn't like to cover time release. When I was on different insurance they covered Nuepro patches. Those worked so well. My doctor at the time referred me to Seattle doctors after 6 months of seeing him. No one in Seattle specialist in PLMD. Are there other people out there going through what I am? Are there different medications that help better so I don't have off time. Any help would be appreciated. Thank you
@krissyelkins07 — @kanaazpereira mentioned low iron levels may be related to the PLMD condition. I did find some treatment information and it was mentioned along with other nonpharmacology therapy.
UpToDate – Treatment of restless legs syndrome and periodic limb movement disorder in adults
Have you made any lifestyle changes in your diet to see if they help? I did see that caffeine-containing products such as chocolate, coffee, tea, and soft drinks should be avoided. Also, many antidepressants can cause a worsening of PLMD in many patients and should be reviewed, discussed and replaced by your doctor. This was mentioned in the Cleveland Clinic PLMD information here:
@krissyelkins07 I'm sorry I didn't see your question about what does the PMLD arousal number mean. I think it means the following — The PLM Index (PLMI) is calculated by dividing the total number of PLMs by sleep time in hours. Periodic Limb Movements Index of more than 5 and less than 25 is considered mild; PLMI of >25 and <50 is considered moderate and >50 is severe. Here's the source:
Thank you so much for all of this valuable information!
Liked by John, Volunteer Mentor
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