Myoclonus

Posted by CTANDY1271 @ctandy1271, Mar 23, 2012

I have been living with Myoclonus for about 14 years. It has gotten worse over the years and I have tried a vareity of medicines and nothing helps. Does anyone else have this problem and have you had any success with controlling the jerks.

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Dear CTANDY1271 -
Mayo Clinic does have some information available online here: http://www.mayoclinic.com/health/myoclonus/DS00754

If you are intersted in seeing a Mayo Clinic physician in AZ, FL, or MN, please click on the “Request an Appointment” button on the upper right hand corner of your screen. This will help start the process.

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@alexsimon

Dear CTANDY1271 -
Mayo Clinic does have some information available online here: http://www.mayoclinic.com/health/myoclonus/DS00754

If you are intersted in seeing a Mayo Clinic physician in AZ, FL, or MN, please click on the “Request an Appointment” button on the upper right hand corner of your screen. This will help start the process.

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I see you are a Community Advocate what does that mean? I am on the fence about requesting an appointment. I tried once and could not afford it. Do you have Myoclonus?

REPLY
@alexsimon

Dear CTANDY1271 -
Mayo Clinic does have some information available online here: http://www.mayoclinic.com/health/myoclonus/DS00754

If you are intersted in seeing a Mayo Clinic physician in AZ, FL, or MN, please click on the “Request an Appointment” button on the upper right hand corner of your screen. This will help start the process.

Jump to this post

hello – I’m a Community Advocate because I work for Mayo Clinic in the public affairs department. I do not have Myoclonus.

REPLY
@alexsimon

Dear CTANDY1271 -
Mayo Clinic does have some information available online here: http://www.mayoclinic.com/health/myoclonus/DS00754

If you are intersted in seeing a Mayo Clinic physician in AZ, FL, or MN, please click on the “Request an Appointment” button on the upper right hand corner of your screen. This will help start the process.

Jump to this post

Thank you for your reply.

REPLY
@alexsimon

Dear CTANDY1271 -
Mayo Clinic does have some information available online here: http://www.mayoclinic.com/health/myoclonus/DS00754

If you are intersted in seeing a Mayo Clinic physician in AZ, FL, or MN, please click on the “Request an Appointment” button on the upper right hand corner of your screen. This will help start the process.

Jump to this post

Can you please tell me if I can btring my sick cousin to the Mayo, she lost her ins. because her husband got laid off. She’s dieing because she can’t pay up-front costs to the Cancer Treatment Centers of America. Will you help her if we can get her there in time? She lives in Washington,she has children and we need help!!

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I have had this for two years. The neurologist I was seeing put me on an epilepsy drug, which upset my stomach. I don’t think it helped much. When I told him about the symptoms, he acted like he didn’t believe me, so I don’t see him anymore.
The only time I have a real problem with it is when I am horizontal. If I could sleep standing up I would be fine. Muscle relaxers seem to help, and Ambien is a miracle for me. Once I am asleep I either don’t have them or don’t feel them. I am worried about dependency, but I have to sleep sometime, and the jerking is what keeps me awake. Wonder if anyone has had good results from Mayo?

REPLY
@alexsimon

Dear CTANDY1271 -
Mayo Clinic does have some information available online here: http://www.mayoclinic.com/health/myoclonus/DS00754

If you are intersted in seeing a Mayo Clinic physician in AZ, FL, or MN, please click on the “Request an Appointment” button on the upper right hand corner of your screen. This will help start the process.

Jump to this post

I have RLS and myoclonus and the only thing that has helped me for years is the seizure drug clonazepam I have been at the same 2 mg dose without having to increase.

REPLY
@alexsimon

Dear CTANDY1271 -
Mayo Clinic does have some information available online here: http://www.mayoclinic.com/health/myoclonus/DS00754

If you are intersted in seeing a Mayo Clinic physician in AZ, FL, or MN, please click on the “Request an Appointment” button on the upper right hand corner of your screen. This will help start the process.

Jump to this post

I am glad you were able to find some relief. I have tried Clonazpam with no luck. I wonder by my symption is what I am having is Pyshogenic tremors. Hopefully I will find relief too.

REPLY
@alexsimon

Dear CTANDY1271 -
Mayo Clinic does have some information available online here: http://www.mayoclinic.com/health/myoclonus/DS00754

If you are intersted in seeing a Mayo Clinic physician in AZ, FL, or MN, please click on the “Request an Appointment” button on the upper right hand corner of your screen. This will help start the process.

Jump to this post

Hi Honestlygrey -
The best information i can give you is to click on the request and appointment button on the upper right hand corner of your screen. They will be able to intitate your process and let you know about Mayo Clinic’s appointment process and insurance.

REPLY
@alexsimon

Dear CTANDY1271 -
Mayo Clinic does have some information available online here: http://www.mayoclinic.com/health/myoclonus/DS00754

If you are intersted in seeing a Mayo Clinic physician in AZ, FL, or MN, please click on the “Request an Appointment” button on the upper right hand corner of your screen. This will help start the process.

Jump to this post

Have you tried pain medication such as Alprazolam or methadone. I have bodily jerks of an unknown cause and it works for me. It slows them down, but does NOT stop them all together

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Myoclonus of an unknown cause fairly common or relatively rare? Do you think the Mayo Myoclonus Clinic can help me?

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