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Anyone willing to guess how many “regulars” on this forum use a vest?
I got rid of our WaterPik over 40 years ago over concern about how to keep it clean, long before bronchiectasis and MAC were on my radar. I'm reading the discussion regarding peroxide as a disinfectant with interest. What bacteria are you concerned about eliminating? I can't seem to find evidence that peroxide or colloidal silver will kill NTM or MAC in devices. I have always wished I could use a WaterPik again because flossing is difficult for my arthritic hands, so I would love to find a simple way to sanitize all the parts.
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Sue, I would think that the cleaning grade of vinegar would work to run thru it. I clean my coffee maker that way.
Thank you for this suggestion, Kate. I was putting hydrogen peroxide in the tank filling it and flushing it through when I finished but didn't know it this was accomplishing anything. The water sitting in the tube is what concerned me. Thank you for your input, Kate. Keep safe ! Toni
@toni1132 I've been thinking more about the water pik and killing the MAC. Perhaps running saltwater through at the end and allowing it to sit in the plastic tubing would kill any potential MAC.?? I am attaching research that indicates that MAC cannot live in a saline solution of 7% or greater. (check the chart) I think I will start doing this. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4850692/ I was never sure if colloidal silver would kill it but feel good about the saltwater.
@windwalker Terri, I suspect that you are right, but I think I'm maxed out on devices and things I need to worry about keeping clean. So I think I'll just have to keep flossing .
Hello Sue, I quit waterpiking and went back to flossing as well. BUT it seems to me that if you buy a new waterpik unit and ONLY put in boiled water then MAC has no way to get established so it should not be necessary to take special measures to kill it. Boiling water is just too much trouble for me hence back to flossing. Bill
New to this forum. I just started to use the smartvest. I have bronchiectasis. Recently diagnosed back in Dec 2019. Took two years to discover this illness. But any way, hi. My name is Mikel. Funny incident with the smartvest. During the first few treatments. I set the machine up on 85%. Yes it was shaking the cheap out of me. The machine have me vertigo. Learn my lesson. Start low. I initially had fun with the higher setting. Signing and making strange sounds to my dog who was amused by my silliness. But getting vertigo was not nice. Anyway hope everyone gets better.
This is Mikel again, I should have proof read my post. Typos, sorry.
Hi Mikel, when I got my Smartvest in December 2018, someone came out to my house and set it up. Last fall, when everything got worse for my breathing, I set another weaker program which I have used most of the time rather than the one set by the Smartvest rep. I assume it is the coronavirus stopping anyone from coming out to help set you up with a program. 85% is way WAY to strong for me but I am old and have several lung diseases. My highest is 55%. The purpose of the vest is to shake loose sputum caught in our airways so whatever setting does that without causing side effects is different for each of us.
I also enjoy making sounds when I'm on it which my dog sleeps through.
Maybe Thumper, our resident vest expert, will chime in. Rita
That’s funny😂😜😂. I can’t even imagine 85%! I can’t even get higher than 45% yet without starting to feel sick. Kudos to you! Feel well!
Kate, I'd feel better using cleaning grade vinegar. We know for sure that kills it. I do not know what percentage of salinity is in the ocean, but mac can be found there as well.
@windwalker …Thank you Terri!! When you say cleaning grade do you mean the white vinegar off the shelf at the grocery store?
Update. I had to play around with the setting. So I went low and worked up. Due to me getting vertigo from a high setting when I first got the machine, I was a bit nervous. Trial and error. So a comfortable setting now is 40%. Which still gives me positive results and not getting vertigo. Best of luck to all the other folks dealing with this or any other illness. Stay safe.
It looks like no one else has a doctor who introduced the VibraLung as an excellent alternative to the Smartvest, especially for small women. As the Mac specialist and the pulmonary therapist explained to me in the hospital, vests can leave soreness and have to be cleaned. The Vibralung produces the same results without those. Cystic fibrosis patients, whose lives depend on mucus clearance, found this device worked well for them.
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