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Anyone willing to guess how many “regulars” on this forum use a vest?
Hi, 63. They prescribed the Smart Vest to me right away, as soon as I was diagnosed. I didn't use it for about the first six months, but then started using it. Actually, I really like using it. I know a lot of people do not, but I do. I don't nebulize, tho. My doctors have never talked about using a nebulizer. I am on the Big 3 tho. Every Monday, Wednesday and Friday. Trying to kill off those little booger bacteria. I keep my shower hose and nozzle dry and clean ( actually I use a copper nozzle to kill off bacteria). I also stopped using my waterpik. That may sound stupid, but I figure it's just another aerated water source and it's in my mouth….. maybe not a wise thing to do. So, I don't.
Oh, as for the cost of the Smart Vest, I didn't pay anything…. it was prescribed…..I would ask my doctor about that for yourself. See about the possibility of getting and using one. Being as my lungs harbor a lot of mucous, the Smart Vest is to break it up and help move it out of my lungs. So it's a medical device and was covered by Medicare. Hope this helps! Toni
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Thanks Toni for getting back with answers to my post. Also I sleep in a bite guard (one of the hybrid ones). When I take it out in the morning I use a toothbrush and scrub it with Peroxil, rinse and put Peroxil in the cupped side before putting it in the case till evening. I figure that the hydrogen peroxide ingredient should kill bacteria. I know I could just use hydrogen peroxide but I do a mouth rinse at the same time so it's convenient. Comments anyone.
Good idea. Peroxil. I too, have a night guard but haven't been using it. We're always having to stay on top of everything ! I'm just curious, did anyone out there think about going to the convention in Philly in May? I'm bummed that we won't be able to attend this spring. I thought it would be a good place and opportunity to learn from others. Toni
Thank you, Kate
I got rid of our WaterPik over 40 years ago over concern about how to keep it clean, long before bronchiectasis and MAC were on my radar. I'm reading the discussion regarding peroxide as a disinfectant with interest. What bacteria are you concerned about eliminating? I can't seem to find evidence that peroxide or colloidal silver will kill NTM or MAC in devices. I have always wished I could use a WaterPik again because flossing is difficult for my arthritic hands, so I would love to find a simple way to sanitize all the parts.
@sueinmn I also have not used my WaterPik in years. The conversation just made me wonder if running vinegar through it would be enough to disinfect the tubing. That's what is recommended for shower heads and at least it's non toxic. Hmmm, something to think about.
Did you apply you own Velcro straps or did you get yours that way? I find my fasteners hard to manage to with having RA.
My vest came with the straps…..
No, but add me;I'm being fitted tomorrow.
@flib, Hey there Flib! How are YOU feeling these days? Are you able to totally isolate through this virus situation? I hope so. Just curious, what state do you live in?
No soreness, but I’ve had moments when I’ve sorta wondered what it was doin’ to my brain
@thumperguy You are SO funny. Thank you for that much needed chuckle!
So, I got my vest. Had some difficulty. My hands are not strong enough to snap open the three chest straps. I found it quite heavy. But, I'm going to soldier on because I'm so tired of being tired.I think manufacturers do not think of older people when they design and women usually do not have hands as strong as men. I also wonder if all the shaking is entirely good for one. . It's noisy, and not totaly unpleasant but I've only just started so I'll stick with it to see if it makes a difference. That and the nebulizing take quite a chunk out ot the day…worth it if it improves breathing. Flib
I hear you @flib! My hands are so weak now that it is pitiful. No more popping champaigne bottles for me!
I use the Smart Vest and have been using it diligently for about 1 1/2 years. I love it, to tell y'all the truth. I use the time to read and relax. If I secure it too tightly, yes, it can hurt. If that happens, I pause it, loosen the tabs just a bit and then restart it. I'm not familiar with VibaLung. sounds interesting. Do they work in a similar fashion?? Everyone keep safe. Personally, I'm home and don't go out anywhere except to take myself for a drive once in awhile. Just me, myself and I in my car. Blessings to everyone ! Toni
@toni1132 I am so glad that you are isolating. I am too.
Thank you for that suggestion, Bill. My concern is the tubing that connects to the tank growing bacteria and then jetting that into my mouth. I do miss using my Waterpik !!
@toni1132 You can run vinegar through it several times, let the vinegar sit in the line for a couple of hours. Then use distilled water. (I would think)
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