After Hep C Treatment

Posted by bobuloops @bobuloops, Dec 11, 2014

post harvoni treatment how did you feel before and how do you feel now

My name is not Bob lol I’m female 59 yrs old. CA. I am so glad you feel good ! How long after treatment finished did you start to feel good like you so
now?

Liked by airtruck54

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As soon as i got. The results from my bloodwork. That told. Me. I was clear of the virus i felt. Good! I fi ished all of my harvoni pills 1. A day that is the beauty of harvoni! You should start to feel ready. After. Your treatment get active and forget about your disease! It is over. Live life love. Life!

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I love to hear stories like this . Wish I could say the same.

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Bob. I noticed after. My. Treatment. The skin on my face. Started to glo! I feel alive again. And i dont take. Pain pills anymore! Cheer up and keep on fighting! I live. Outside. Of boston.

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I have had hepatitis C for almost 20 years , I went through interferon and Ribavirin treatment a few years ago , after five months I was clinically depressed and had to go on antidepressants . After six months I stopped with no positive results , ( I wouldn’t do it again ) then this year my doctor looked me in my eyes and told me he could cure me with Harvoni, i’m down to my last 10 days and have had two blood tests both showing viral load undetectable . I still don’t feel great but I know that the disease is dead , and I plan on living my life the best I can . I’ve been sober since March 18, 2004 and my life is great on most days . I hope this helps somebody .

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@rkz06 Welcome to Connect and thank you for sharing your story. It’s great to have you in this community.

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@daveniles

I’m Taking Harvoni for almost 3 weeks.Dont feel any change yet, but I am hopeful. Does anyone have any knowledge on that?

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I completed treatment in April 2015…..you won’t feel any changes, at least I didn’t. But I was never sick from hep c….didn’t even know I had it. However I had it so long I developed cirrhosis. So hopefully my liver will start healing.

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@afterthetreatment

Hi Bob, I had Sovaldi and Ribo for 6 mo. My platelets dropped to 10 prior to treatment and had to have my spleen taken out. 2 yrs later, treatment. I felt lethargic ALL the time prior to treatment, now 3 mo after treatment tired 40 percent of the time. I also was so foggy minded, I could not think straight before treatment, now I am starting to get my brains back ! I had no detection of Hep C at 3 weeks into my therapy. I have to get blood work this week to see how it’s going 3 mo after treatment. It’s been a very heavy cross to bear, praying this new yr will give me a chance to feel well. I am genoType 3 . Insurance wouldn’t cover harvoni for me. How about you? C

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I took harvoni beginning Jan 2015…12 weeks was cured. I’m wondering if you have had any other health problems, such as cyst/tumors on pancreas,liver or lungs. I only know of one other person that took harvoni and we both developed tumors…could be a coincidence…I don’t know him personally (friend of a friend) I just had to have part of my pancreas and spleen removed. I’m trying to find out if it had anything to do with the drug ???? Please let me know.

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@afterthetreatment

My name is not Bob lol I’m female 59 yrs old. CA. I am so glad you feel good ! How long after treatment finished did you start to feel good like you so
now?

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Did you take harvoni ? If so, have you developed any other health issues ? I’m trying to see if there is a connection with my issues. Please reply.

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@colleenyoung

Hi @afterthetreatment.
I do not have Hep C. I’m the Community Director of Connect. When I moved your thread here, I was hoping that past members @airtruck54 @daveniles @bobuloops might return to share with you. I will continue to look for people who have Hep C and will join this discussion.

Hang in there!
Colleen
Connect Community Director

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Colleen…..Do you know of anyone that developed any serious heath issues after taking harvoni. I took it last year and developed a tumor on my pancreas, don’t know for a fact that it’s related. But I know of someone else that has the same problem. Could be a coincidence but sure would like to know.

Liked by linda

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@colleenyoung

Hi @afterthetreatment.
I do not have Hep C. I’m the Community Director of Connect. When I moved your thread here, I was hoping that past members @airtruck54 @daveniles @bobuloops might return to share with you. I will continue to look for people who have Hep C and will join this discussion.

Hang in there!
Colleen
Connect Community Director

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Hi @pagegirl, I did a very quick google search and found several mentions of a potential link between harvoni and liver damage and possibly liver cancer. I found no mention of pancreatic tumours. Has your cancer team suggested that it might be related? Would this influence what type of treatment you would get for the pancreatic tumor?
These are questions I would want to ask my cancer care team.

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@colleenyoung

Hi @afterthetreatment.
I do not have Hep C. I’m the Community Director of Connect. When I moved your thread here, I was hoping that past members @airtruck54 @daveniles @bobuloops might return to share with you. I will continue to look for people who have Hep C and will join this discussion.

Hang in there!
Colleen
Connect Community Director

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Hi @pagegirl,
I’m Kanaaz Pereira, and I moderate the Infectious Disease group as well. I see that Colleen did reply to you, and I also wanted to follow up by introducing you to other members who have taken Harvoni, and may be able to offer more information. Please meet @airtruck54, @cldreif330, @bobuloops, @rkz06, and @peakbagger.

@pagegirl, what is your doctors’ opinion about the side effects of Harvoni?

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@sharonmsmith

I have been diagnosed with Hepatitis C and want to know more about good foods to eat and natural remedies to combat this disease without drugs if possible. Also want to consider any info you have on Harvoni Medication?

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I went through Harvoni treatment a year 1/2 ago .It will get rid of hep c , but there are many side affects ….some deadly. Although it hasn’t been proven….as of yet. I developed cancerous tumors. One on my pancreas, liver, 3 on my lungs. I have read many testimonials today of people with the same issues. Also I only know of 1 other person that has taken the drug, and he is having the same issues, only he’s in worse condition than me. I had to have part of my pancreas removed, along with my spleen. Now I am seeing a specialist about the cyst on my lungs. I am now seeking legal advice.

Liked by linda

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@colleenyoung

Hi @afterthetreatment.
I do not have Hep C. I’m the Community Director of Connect. When I moved your thread here, I was hoping that past members @airtruck54 @daveniles @bobuloops might return to share with you. I will continue to look for people who have Hep C and will join this discussion.

Hang in there!
Colleen
Connect Community Director

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I actually didn’t put 2 and 2 together until this week. A man (friend of a friend) whom had also taken harvoni, had developed the same issues I did. Only he’s in bad shape. @ months ago I had my spleen and part of my pancreas removed, luckily the tumor was at the tail of my spleen. So now I am diabetic. I go back to see my surgeon next week. I’m going to take this information with me. You should google “Can Harvoni give me cancer” and check this out for yourself. It’s scary ! Wish I had.

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@afterthetreatment

My name is not Bob lol I’m female 59 yrs old. CA. I am so glad you feel good ! How long after treatment finished did you start to feel good like you so
now?

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I have obtained the listing of all side effects reported to the FDA via a FOIA request. You name it and it ha been reported. There have been issues with pancreas and pretty much every other organ in the body. There have been a dozens of reported deaths as well from such things as respiratory failure, cardiac arrest, brain hemorrhage, etc.

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