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Pelvic congestion syndrome

Posted by maggie4919 @maggie4919, May 1, 2025

I’m having a pelvic venous embolization due to faulty veins in the pelvis. I have many varicosities and will also have my perineal region worked on along with my left leg. It is a 3 hour procedure. Anyone have similar procedure and if so please share your recovery without frightening me. I’m already anxious about an outpatient surgery. Thanks so much

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aggie104360 | @aggie104360 | Feb 20 11:20am
In reply to @pur1rucha "@aggie104360 Thank you for sharing. Was your venegram=EV doppler ultrasound? I am new on this. Is..." + (show)
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@aggie104360 Thank you for sharing. Was your venegram=EV doppler ultrasound? I am new on this. Is your pain localized on the left side (where the left ovary dilated veins are?) or does it ever radiate to the right side? I ask you this, due to my pain localized mainly on the right side, which could mean a totally different issue (?) not sure? 🙁 I made an appointment with my GP for early next week to ask her for the doppler ultrasound, should that be Endo vaginal doppler ultrasound? I am in Canada and I hope the GP can request it or refer me to a Gynecologist specialist. Thank you.

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@pur1rucha If you haven't had an ultrasound yet that's what ti start with. It has to be an ultrasound externally and vaginally to look at blood flow. If problems are indicated then venegram which is using a catheter under twilight sedation. You need a referral to a vascular surgeon not gynagologist if ultrasound finds any reflux. The vascular surgeon gets an Interventional Radiologist to do the venegram. At least that's how it works here. Ultimately venegram gold standard. In my case compressions ie: May Turner and Nutcracker should have been checked for before embolization. It used to be the thinking to embolise reluxing ovarian veins first but now they shoukd be checking fix what's causing it/them to reflux and fix that first. I don't have pelvic pain I have saddle pain with a lot of pain sitting. Definitely vascular not gyno referral. If it's not venous then other causes have to be looked at I suppose with gynagologist.

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behopeful4 | @behopeful4 | Mar 2 10:24am

Yes, I have this. I was diagnosed with pelvic congestion. Syndrome or venous insufficiency. It reeks havoc in your life to say the least. How did your surgery go?

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lmprap | @lmprap | Mar 3 7:53am
In reply to @aggie104360 "@pur1rucha If you haven't had an ultrasound yet that's what ti start with. It has to..." + (show)
Profile picture for aggie104360 @aggie104360

@pur1rucha If you haven't had an ultrasound yet that's what ti start with. It has to be an ultrasound externally and vaginally to look at blood flow. If problems are indicated then venegram which is using a catheter under twilight sedation. You need a referral to a vascular surgeon not gynagologist if ultrasound finds any reflux. The vascular surgeon gets an Interventional Radiologist to do the venegram. At least that's how it works here. Ultimately venegram gold standard. In my case compressions ie: May Turner and Nutcracker should have been checked for before embolization. It used to be the thinking to embolise reluxing ovarian veins first but now they shoukd be checking fix what's causing it/them to reflux and fix that first. I don't have pelvic pain I have saddle pain with a lot of pain sitting. Definitely vascular not gyno referral. If it's not venous then other causes have to be looked at I suppose with gynagologist.

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@aggie104360 may I ask, what is saddle pain? Is it a heavy pull down feeling?

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aggie104360 | @aggie104360 | Mar 3 2:04pm

Yes, like a heavy ball

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