Where to start with multiple conditions? Symptoms don't add up

Posted by Lacy @lacy2, Jan 21 10:37am

Honestly I am at a loss how to proceed.
History of depression anxiety; cancer of cervix and pelvic radiation damage; tinnitus and other ear issues; ibs-d or ?; glaucoma and probably a few other issues mabt of which shared on this site am happy to say I founhd a few week ago, and so helpful.
On and off for half a year on top of almost daily diarrhea (take Imodium and have poor diet)… and on top of occasional tinnitus and ear pain – for which I was given antibiotics a few times for pain, when it was NOT infetction in ears (internet docor as have no family doctor he left town). Thing is I am getting suddenly during day any time what I can only describe as a very woozy, but not dizzy, feeling in my head – like pressure…mostly ear area.
Half an hour ago, sitting at computer desk which I rarely do now, to sort out some photos.. after about half hour, both at same time I had another quick visit to the bathroom for another pasty b.m. and my ears and the area around them gets so painful, have the pressure in same area, yet also have soreness and pressure inside rectal area. Its like sides of head in a vice… 2 problems at the same time?
The last time I checked the end of the bowel and ears/head are not connected!
Years ago I read that vagus nerve can cause problems like tingling in head (which I also get, but when mentioned to my doctor in passing at that time he almost laughed at me so I never brought it up again.
i am fighting my way out of depression but it seems almost every day "something" hurts or scares or happens to me physically and it seems to bring me right back down. I have waiting over 6 months to again see one of our only two ENT's where I live; I turned down a colonoscopy 2 years ago as honestly at that time felt too ill to have it done. Last one was 2008…he said all ok. Is there another site on here that might have some suggestions for me? I had C.Diff (after 6 antibiotics in 6 months) 2018 and never been the same… but what about the ear/area pain and pressure – just a horrible .co-incience? The pains last for hours now…. and every day I get up trying my best, then this happens often… I keep checking but cant seem to find a cause or solution.
Sorry to be so vague and trying to keep short but like many have quite a history of illnesses (am now 77) Any help would be sincerely appreciated. J.s

It is surely possible to have two different problems at the same time. It seems unlikely that the two are related, and that you need a comprehensive evaluation. If you have been ill for some time, perhaps it is time to seek an appointment at a multi-disciplinary clinic like Mayo or one at a University near you.
Here is some info from Mayo about dealing with C-Diff: https://www.mayoclinic.org/diseases-conditions/c-difficile/symptoms-causes/syc-20351691
Sue

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@sueinmn

It is surely possible to have two different problems at the same time. It seems unlikely that the two are related, and that you need a comprehensive evaluation. If you have been ill for some time, perhaps it is time to seek an appointment at a multi-disciplinary clinic like Mayo or one at a University near you.
Here is some info from Mayo about dealing with C-Diff: https://www.mayoclinic.org/diseases-conditions/c-difficile/symptoms-causes/syc-20351691
Sue

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Thank you so very much for replying…. yes I have been ill for a while with many issues..I sure wish I was close to the Mayo Clinic. There used to be a similar type of small clinic in Toronto many years ago but does not do the comprehensive evaluation now. Yes, I just feel like going somewhere and saying: here is my body, can you please sort it out?!! I will read the info you mention, perhaps I can find a clue there about the south end of my body and later about the north end!!! I am amazed by the information on this web site … from those discussing symptoms, to remedies, to support, and Mentoring: appreciated so much. JS. (Ontario)

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Interesting article on C.Diff… I was diagnosed with it after 6 antibiotics in 5 months for UTI's…. but although I feel I am a "clean" person and obviously washed hands after washroom and before cooking; when out could have been shopping and then maybe bought a donut or ate something with my hands and hadnt washed them; I am very very careful now not only for this but other germs and covid etc. Imagine what we have touched while in a mall or office building or anywhere, then pick up food, cookies etc. with our dirty fingers! Anyway, I was not hospitalized and I was very ill with it at home and had a very hard time constantly wiping everything in site with bleach and water etc…long story. I think I may go to the walk-in clinic next week with my "list" again and let them try and figure me out! Like an old car, as one piece gets fixed, another breaks. Thanks again, J.

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Allergies are widespread and can have really weird effects on your body. See a Board Certified Allergist

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@kb1942

Allergies are widespread and can have really weird effects on your body. See a Board Certified Allergist

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thanks for suggestion, had some simple arm test allergies checked a few years ago nothing showed but he said not allowed to test this way for cigarette smoke or mould / mold !

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…thanks, I did, a long time ago think about vagus nerve as had radiation and surgery to pelvis but my fam doctor just said: not its not! but before having to run to bathroom, diarrhea, i got tingling in head.. like a warning sign so…. will never find out…. yes probably just a coincidence

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I have been experiencing this going through my thyroid storm. But I have the vagus nerve impinging in my thoracic spine or my diaphragm which goes to your digestive system. I’ve been experiencing vasovagul symptoms. The vagus nerve is called the wondering nerve. Read about it. Hopes this helps.

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Neurologist if you can get an apt. There are neurosurgeons who do surgery on vagus nerve in the head. I’m dealing with this at this time. Mine is overactive at this time causing problems for my digestive tract.

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…glad you are getting problem looked at… not one doctor I have seen or spoken to about this even asks me questions … I do all the asking and then appear to be a know it all…. isn't it THEIR job to investigate my symptoms? ugh

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@mfratt

I have been experiencing this going through my thyroid storm. But I have the vagus nerve impinging in my thoracic spine or my diaphragm which goes to your digestive system. I’ve been experiencing vasovagul symptoms. The vagus nerve is called the wondering nerve. Read about it. Hopes this helps.

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oh thanks mrratt.. I wish the doctor/s I mentioned this too had read about it! Yes I am also hypothyroid and from a few articles I have read, have seen vagus nerve discussed but no doctor I have seen has ever mentioned its existence or possibility it could be involved in my many problems…am getting too old and tired to do their work for them any more…..and kudos to the doctors who are on the ball and bottom line is helping their patients get better! J.

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@mfratt

I have been experiencing this going through my thyroid storm. But I have the vagus nerve impinging in my thoracic spine or my diaphragm which goes to your digestive system. I’ve been experiencing vasovagul symptoms. The vagus nerve is called the wondering nerve. Read about it. Hopes this helps.

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thanks … may i ask how you found out abut your vagus nerve? i had radiation to pelvic 1985 for cancer and in those days the "rays" were quite spread out and am sure affected many areas of pelvis, dr once said my bladder was "fried" … but now am a Senior I get the feeling from drs. and even myself that whats done is done and just try and cope as best we can as cannot go through invasive tests and treatments, should have years ago……. thanks again J.

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@lacy2

thanks … may i ask how you found out abut your vagus nerve? i had radiation to pelvic 1985 for cancer and in those days the "rays" were quite spread out and am sure affected many areas of pelvis, dr once said my bladder was "fried" … but now am a Senior I get the feeling from drs. and even myself that whats done is done and just try and cope as best we can as cannot go through invasive tests and treatments, should have years ago……. thanks again J.

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same with me we have to keep going and stay strong as we can Barb BAKER

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