Teresa, Volunteer Mentor
@hopeful33250
@hopeful33250
Posts: 10722
Joined: Mar 28, 2016
Parkinson's and Sleep Problems
@chrisj2491 @caryp43 @denie57 @johnjames @trouble4343 @tntredhead @aperob @hdruss @retairforceman @macbeth. Hello all! I just read a post from one our Parkinson’s spouses about extra activity at night and it got me to wondering how many others out there have very vivid dreams at night that might disrupt sleep and cause problems. If you have, please feel free to share your experiences. If you have found a good way to deal with it (meds, etc.) we would like to know about that as well.
Liked by Colleen Young, Connect Director
sainath aidoor
@sainath
@sainath
Posts: 5
Joined: Jan 26, 2018
Hello @jetquack9
I am the volunteer mentor for the Parkinson’s discussion on Connect and I would love to have you join our discussions. The link that Colleen sent you for the presentation on sleep problems and Parkinson’s is an excellent one. I believe you will benefit from it. Please check out all of the topics in the Parkinson’s discussion and join in whenever you can.
I would be interested in knowing how long you had symptoms of PD before it was diagnosed? For many of us it was many years before a doctor put all the symptoms together and made a diagnosis. I would also like to hear what meds have been most helpful and any exercises that work well for you. Many of us are in the Pedaling for Parkinson’s program, @mariemarie, can speak to that. We also engage in other exercise programs. My favorite is Dance for PD (all the dance moves are done seated with music in the background). Tai Chi has also been very helpful for me in achieving better balance.
I’m looking forward to hearing from you and getting to know how you are dealing with this disorder.
Teresa
Thanks for your email. /sorry for the late response as i have limited access to emails as i am presently touring.
The first signal i got was of change in my hand writing. I had a very beautiful handwriting. This started getting into a trickle..My notes were not legible to me this is did not give me any inkling that i could be suffering fromPD. I normally go for my annual check up. During one of the checkups my GP found that i was having a slight tremor in my left hand. He advised me to check up with a neurologist. The neurologist examined me thoroughly and concluded after several exercising test test that i am suffering from PD.
It is now almost 5 years i am under treatment but i presume as an after thought that i may be suffering at least 2 to 3 years prior that is in alll 7 to 8 years till today ie March 2018.
I am on Levodopa And Carbidopa Tablets I.P (carbidopa Anhydrous 25 mg Levodopa 100 mg ) 1 – 1 – 1 – 1 since 2016
For sleep disorder i am prescribed Qutan 25 mg (Quetapine Fumarate) 0-0-0-1 daily.
I am also prescribed Donepezil 2.5 mg 0 -0 – 1 – 0
Fo exercise i walk about 8000 steps daily including stationary cycling.
I am doing ok but some times i feel tremors in my left hand giving me difficulty in buttoning my jeans.
I am 65 years old
Regads
Sainath
Liked by Teresa, Volunteer Mentor
Teresa, Volunteer Mentor
@hopeful33250
@hopeful33250
Posts: 10722
Joined: Mar 28, 2016
Hello @jetquack9
I am the volunteer mentor for the Parkinson’s discussion on Connect and I would love to have you join our discussions. The link that Colleen sent you for the presentation on sleep problems and Parkinson’s is an excellent one. I believe you will benefit from it. Please check out all of the topics in the Parkinson’s discussion and join in whenever you can.
I would be interested in knowing how long you had symptoms of PD before it was diagnosed? For many of us it was many years before a doctor put all the symptoms together and made a diagnosis. I would also like to hear what meds have been most helpful and any exercises that work well for you. Many of us are in the Pedaling for Parkinson’s program, @mariemarie, can speak to that. We also engage in other exercise programs. My favorite is Dance for PD (all the dance moves are done seated with music in the background). Tai Chi has also been very helpful for me in achieving better balance.
I’m looking forward to hearing from you and getting to know how you are dealing with this disorder.
Teresa
Hello @sainath
I'm glad that you posted again. You are certainly doing a lot to help yourself. Exercise is a very important part of PD therapy. Between the walking and the exercise bike you are keeping stronger. What does your doctor say about the tremors?
I look forward to hearing from you again.
Teresa
@hopeful33250
@lsdemspey Steve: That is great that you are keeping a journal to try to understand the night sweats. I would be interested to know if you come up with any targets for this phenomenon.
Teresa