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mzpattilyn
@mzpattilyn

Posts: 4
Joined: Oct 26, 2018

Parkinson's and Cannabis Oil

Posted by @mzpattilyn, Fri, Oct 26 4:09pm

I have heard that Cannabis Oil is helpful for tremors control in Parkinson's. I am having some adverse reactions to some medications and have been told that Cannabis Oil does not have adverse side effects. Is there a specific strain that works better than another?

REPLY

Hi, I was diagnosed 4 years ago. I have bad stenosis as well, so something always hurts somewhere.
If you look at the Endocanabinoid system, you will find the CB1 receptor which seems to control much of the chemicals we care about.
Essentially, you need THC to stop the tremors.
I am a Canabist for about 2 years now. There are thc,cbd,cbg,cbn thcv,thca and cbda, and 15 terpinines. most is unknown, but I know I have taken NO pain pills for 2 years, exercise, and work. I smoke a few times intill my pain goes away and then micro dose (see Dr Barbara Harris UTUBE)

If you are really interested see:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4404240/

Thank you for the information.

Hello @mzpattilyn and welcome to Mayo Connect and especially to the discussion about Parkinson's.

You mention your diagnosis and that the meds you have taken have had side effects. If you care to share more, how long ago were you diagnosed? What therapies were tried for your symptoms? (I'm thinking about physical therapy, water exercise, range of motion exercises, etc.) What meds did you try that resulted in side effects?

Please share this information as you are comfortable doing so. I look forward to hearing from you again.

@nyparkie

Hi, I was diagnosed 4 years ago. I have bad stenosis as well, so something always hurts somewhere.
If you look at the Endocanabinoid system, you will find the CB1 receptor which seems to control much of the chemicals we care about.
Essentially, you need THC to stop the tremors.
I am a Canabist for about 2 years now. There are thc,cbd,cbg,cbn thcv,thca and cbda, and 15 terpinines. most is unknown, but I know I have taken NO pain pills for 2 years, exercise, and work. I smoke a few times intill my pain goes away and then micro dose (see Dr Barbara Harris UTUBE)

If you are really interested see:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4404240/

Jump to this post

Hello, I was diagnosed c12 mo ago. Since then the tremor (in my arm) has gotten worse but remains manageable. My objective presently is to postpone drugs as long as sensible. To that end I exercise and take CoQ10, per my neurologists advice. Separately, having seen growing references to the biome being a key suspect as the source of PD, I am working on a gluten free, low carb and sugar etc diet. And I am trying heavy doses of vitamin B1.
I have come across papers commending Cannabis for cancers and thankyou nyparkie, I was most interested to learn of the NCBI study. Good to see the interest even if the conclusion seemed a bit weak. Also 2015 and so perhaps science has moved on? There seems to be a vast range of Cannabis products and it must be important to target the right one. I wonder if others have views on this? I am interested generally but especially in promising ones that are a) legal and b) available in the UK

@hopeful33250

Hello @mzpattilyn and welcome to Mayo Connect and especially to the discussion about Parkinson's.

You mention your diagnosis and that the meds you have taken have had side effects. If you care to share more, how long ago were you diagnosed? What therapies were tried for your symptoms? (I'm thinking about physical therapy, water exercise, range of motion exercises, etc.) What meds did you try that resulted in side effects?

Please share this information as you are comfortable doing so. I look forward to hearing from you again.

Jump to this post

Hi, I was diagnosed 7 months ago and the main symptom that took me to a neurologist was tremors in my hands. I was put on Topiramate, it worked well and calmed down the internal tremors and my restless legs. One of its side effects though is glaucoma, and I was having pains in my eyes. I am scheduled to see an Ophthalmologist.

I am sorry to hear about the eye problem, @mzpattilyn
Have you tried any physical therapy of exercise program for your PD symptoms?

@hopeful33250

I am sorry to hear about the eye problem, @mzpattilyn
Have you tried any physical therapy of exercise program for your PD symptoms?

Jump to this post

No, have not had PT specifically for Parkinson'. We have a pool, so when it was warm, that was great.

@mzpattilyn

No, have not had PT specifically for Parkinson'. We have a pool, so when it was warm, that was great.

Jump to this post

Yes, walking and moving in water is great, @mzpattilyn, I do that as well. There are specific PT programs for PD, one of them is called LSVT Big. Almost all PT centers have at least one person trained in "Big." It is very helpful. Here is some information regarding it,
https://www.lsvtglobal.com/

Consistent movement is important for all PD patients. If I go a few days without some type of exercise, my balance, gait and range of motion decline. Give it a try!

I would like to hear from you again. Will you post if you try some PT or other exercises?

@mzpattilyn

No, have not had PT specifically for Parkinson'. We have a pool, so when it was warm, that was great.

Jump to this post

Hi Teresa my last back surgery was done last year, and nothing helps my pain at all. I still have the same pain now that I had before I had the lumbar L5-S1 disk fused, but the pain meds or physical thairpy doesn't even help the extreme pain go away.

@catherinelewis

Hi Teresa my last back surgery was done last year, and nothing helps my pain at all. I still have the same pain now that I had before I had the lumbar L5-S1 disk fused, but the pain meds or physical thairpy doesn't even help the extreme pain go away.

Jump to this post

Hi @catherinelewis

I am sorry to hear that you have been experiencing this kind of pain. What does your doctor say can be done for your pain? Does he/she have any suggestions at all? Have injections into the area been tried?

Teresa@hopeful33250No injections haven't help at all, but sometimes they help for about a hour, but the pain always comes back with a ventents. My doctor just tells me to continue to take the pain meds as directed.

@catherinelewis

Teresa@hopeful33250No injections haven't help at all, but sometimes they help for about a hour, but the pain always comes back with a ventents. My doctor just tells me to continue to take the pain meds as directed.

Jump to this post

Have you sought a second opinion, @catherinelewis?

@nyparkie

Hi, I was diagnosed 4 years ago. I have bad stenosis as well, so something always hurts somewhere.
If you look at the Endocanabinoid system, you will find the CB1 receptor which seems to control much of the chemicals we care about.
Essentially, you need THC to stop the tremors.
I am a Canabist for about 2 years now. There are thc,cbd,cbg,cbn thcv,thca and cbda, and 15 terpinines. most is unknown, but I know I have taken NO pain pills for 2 years, exercise, and work. I smoke a few times intill my pain goes away and then micro dose (see Dr Barbara Harris UTUBE)

If you are really interested see:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4404240/

Jump to this post

Interesting. Does the oil help with PD symptoms? Balance, coordination, writing, etc.? Do you have to smoke it? I tried smoking it years ago and it made me nauseous and burned my throat. Can you put it in food. Thx.

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