Husband with Parkinson in memory care: We've never been separated
My Husband has Parkinson’s and in a memory care facility. The doctor has requested this. My Husband and I never been separated, so this very hard! I see him regularly and I love him dearly. In the last year he has gotten worse! I just need to know how everyone handles this?
Interested in more discussions like this? Go to the Parkinson's Disease Support Group.
Hi, I moved your question to the Caregivers and the Parkinson's Disease support groups so you can connect with other caregivers who understand, like @trishaanderson @methel @ret2tus @elisabv2u @jmg60 @cmk1952 and others.
@marcusandgizmo, it must be so hard to be separated from your husband for the first time. How long has your husband been in memory care? Does your husband have a diagnosis of dementia as well as Parkinson's?
He has been in memory care since March, I live with my Daughter! My husband and I have been married 19 years. He is still my love no matter what. He was diagnosed about 3-4 years ago. He has progressively has gotten worse. I have disorder as well! I was his caregiver until 1-30-25. He fell and was unconscious and we began our journey then!
He was diagnosed with both!
@marcusandgizmo, thank you for sharing more of your and your husband's journey. It is so hard to see your loved one get progressively worse. It must've been so scary when he fell and was unconscious. I'm glad that you are able to be with your daughter and that you're not alone. How are your visits with your husband?
My visits are mostly good. There are times with him is hard. He suffers with sundowning and you never know how he will be. It is very hard to see him like this, but I try to make each time pleasant. He use to be a strong man and I can see how he has changed.
@marcusandgizmo Welcome to Mayo Clinic Connect ! I’m sorry that your husband is in memory care, but with your good attitude, I’m sure he’ll do OK.
Tell us a little more about your husband. When did you first notice that things weren't quite right?
I noticed his tremor in his right hand 4 years ago and it was very mild then. He was seen by his heart doctor and he felt his fine! The 3 years ago it got worse❤️He was then seen in neurology and he was diagnosed with Parkinson’s!