Husband with Parkinson in memory care: We've never been separated

Hi, I moved your question to the Caregivers and the Parkinson's Disease support groups so you can connect with other caregivers who understand, like @trishaanderson @methel @ret2tus @elisabv2u @jmg60 @cmk1952 and others.

@marcusandgizmo, it must be so hard to be separated from your husband for the first time. How long has your husband been in memory care? Does your husband have a diagnosis of dementia as well as Parkinson's?

He has been in memory care since March, I live with my Daughter! My husband and I have been married 19 years. He is still my love no matter what. He was diagnosed about 3-4 years ago. He has progressively has gotten worse. I have disorder as well! I was his caregiver until 1-30-25. He fell and was unconscious and we began our journey then!

He was diagnosed with both!

I don't understand why I'm being redirected to this group. My husband doesn't have Parkinsons. He has Alzheimers.

Hi, I do not understand why I am being redirected to this group? First, my husband is at home he’s not in memory care. Second, his primary diagnosis is vascular or multi-infarct dementia, and finally, I can’t tell what comment you moved or from what Support group? Thank you.

I did not move you! I’m new to this group!

@marcusandgizmo I was not replying to you, I was replying to @colleenyoung , the Connect Director who moved several members comments. Sorry, this is all very confusing and I am considering leaving these support groups as a result.

@ret2tus @elisabv2u, please allow me to explain. I moved only @marcusandgizmo's original post to the Caregiver: Dementia support group (as well as the Parkinson's support group) as it was originally in the wrong group. To help her connect with other kind members to support her I also @mentioned certain member like yourselves who may have understanding and possibly similar circumstances. To unsubscribe from this discussion, click the bell icon to the bottom right on the original message.

@marcusandgizmo, back to you. Thank you for sharing more of your and your husband's journey. It is so hard to see your loved one get progressively worse. It must've been so scary when he fell and was unconscious. I'm glad that you are able to be with your daughter and that you're not alone. How are your visits with your husband?

My visits are mostly good. There are times with him is hard. He suffers with sundowning and you never know how he will be. It is very hard to see him like this, but I try to make each time pleasant. He use to be a strong man and I can see how he has changed.

@marcusandgizmo Welcome to Mayo Clinic Connect ! I’m sorry that your husband is in memory care, but with your good attitude, I’m sure he’ll do OK.
Tell us a little more about your husband. When did you first notice that things weren't quite right?