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Jean123
@jean843

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Joined: Apr 11, 2015

Endocrine surgeons with expertise in parathyroid disease?

Posted by @jean843, Apr 21, 2015

Parathyroid question. Are there endocrine surgeons with expertise in parathyroid disease at the Mayo Clinic?

REPLY

I also have parathyroid disease .

DR, DAVID FARLEY FROM MAYO IS AN EXCELLENT THYROID SURGEON….THE BEST, AS FAR AS I AM CONCERNED, BEING ONE OF HIS FORMER PATIENTS……

Being a thyroid surgeon does not mean he is experienced in PARA thyroid surgery . Did he operate on your PARA thyroid glands ?
If one is having PARA thyroid surgery it is of utmost importance to have a Board Certified Surgeon who has done many successful PARA thyroid surgeries. Need a highly experienced surgeon in para thyroid surgeries

@jmbjar

Being a thyroid surgeon does not mean he is experienced in PARA thyroid surgery . Did he operate on your PARA thyroid glands ?
If one is having PARA thyroid surgery it is of utmost importance to have a Board Certified Surgeon who has done many successful PARA thyroid surgeries. Need a highly experienced surgeon in para thyroid surgeries

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my surgery was for nodules on my thyroid and was done by the expert surgeon, Dr. David Farley…..I have hyperparathyroidism…..Agreed that it must be an expert who has done it many times, and thus I was lucky enough to have Dr. Farley…..

Oh sorry allegro, I wasn’t aware that you also had parathyroid disease. Yes , you are indeed very fortunate to have had an experienced surgeon . I’ve read some horror stories from some who have had botched pt surgery
I live in Northern Canada and not so fortunate to have access to a surgeon who has pt surgical experience
You say you have hyperparathyroidism ? Were you not cured or do you have 2ndary hpt as well ?
How long between diagnose of PHPT to your pt surgery ? Have you suffered any consequences of the disease ( other organs ) or was your pt surgery done before it affected any other organs ?

Also – Sorry @allegro , By the time I got a reply I had forgotten that another had asked
” Parathyroid question. Are there endocrine surgeons with expertise in parathyroid disease at the Mayo Clinic? ”
Now your reply makes more sense to me as per “EXCELLENT THYROID SURGEON”

i was referred to the Mayo Clinic by my endocrinologist after a year of problems with my thyroid….including the excess of calcium in my blood, and three stress fractures. Dr. Farley was my surgeon in Mayo and he was so encouraging and wonderful to me. The day of my surgery I was able to go out to dinner that same evening. He removed two nodules and I do not even have a scar that is visible .I would never go anywhere else. I wish you luck and success with your problem.

Liked by jmbjar

@allegro

i was referred to the Mayo Clinic by my endocrinologist after a year of problems with my thyroid….including the excess of calcium in my blood, and three stress fractures. Dr. Farley was my surgeon in Mayo and he was so encouraging and wonderful to me. The day of my surgery I was able to go out to dinner that same evening. He removed two nodules and I do not even have a scar that is visible .I would never go anywhere else. I wish you luck and success with your problem.

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You were/are very fortunate @alleregro as so many patients with this disease have struggled for many yrs before they are properly diagnosed . Then there are those like myself which still boggles my mind as to why the surgeon even bothered to do sestamibi scan. I was diagnosed as “mild”PHPT . The surgeon I was referred to ran a scan, 1.8 cm pt adenoma showed up but yet he said pt surgery was too risky and seeing as my labs were “mild” pt disease could not be the cause of my symptoms. Why he did a sest. I will never know. That was in 1999. I live in a very northern small Canadian town where we do not have access to real Dr’s .
This disease is slowly killing me . No quality of life and not able to work for almost a decade now.

@allegro

i was referred to the Mayo Clinic by my endocrinologist after a year of problems with my thyroid….including the excess of calcium in my blood, and three stress fractures. Dr. Farley was my surgeon in Mayo and he was so encouraging and wonderful to me. The day of my surgery I was able to go out to dinner that same evening. He removed two nodules and I do not even have a scar that is visible .I would never go anywhere else. I wish you luck and success with your problem.

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JIMBJAR” It disturbs me to hear you say that the disease is slowly killing you…please look farther into finding a doctor who will listen to you and will give you a solution for your problem…There are so many wonderful doctors at the Mayo clinic that it would be worth you while to travel there….Because you live in Canada is no reason for you to be suffering with an illness because of the lack of proper care. Please continue to look for help elsewhere.YOU ARE WORTH IT!!!!

If I had known what I do know today about this disease allegro , even 6 yrs after diagnose I would have had the funds to go out of country. But I believed what the endo and surgeon told me for 10 yrs. ( before I started researching and getting copies of scans/labs )
I am mostly home bound now and have been for about 3 yrs now

@jmbjar

If I had known what I do know today about this disease allegro , even 6 yrs after diagnose I would have had the funds to go out of country. But I believed what the endo and surgeon told me for 10 yrs. ( before I started researching and getting copies of scans/labs )
I am mostly home bound now and have been for about 3 yrs now

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I am so very sorry to hear this. You deserve to be treated, with or without the funds . No one has to suffer because of lack of money. I sincerely hope that you can get some help from somewhere and not give up on yourself. I will pray for you and your recovery. Hang in there……….

I had parathyroid surgery at the Norman Parathyroid Center in Tampa FL in 2004. I believe I had the tumors a long time. Dr Norman said come to me and you will never have complications or have to have it redone. 10 years later I needed more parathyroid surgery. I went to Mayo in Rochester MN this time around. I do not believe I was cured at the Norman Clinic. So far I appear to be cured after having surgery at Mayo but time will tell. I have no idea if I have had permanent damage. It is not too late to take action jmbjar.

@upnorthnancy

I had parathyroid surgery at the Norman Parathyroid Center in Tampa FL in 2004. I believe I had the tumors a long time. Dr Norman said come to me and you will never have complications or have to have it redone. 10 years later I needed more parathyroid surgery. I went to Mayo in Rochester MN this time around. I do not believe I was cured at the Norman Clinic. So far I appear to be cured after having surgery at Mayo but time will tell. I have no idea if I have had permanent damage. It is not too late to take action jmbjar.

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I belong to a support group and have heard of quit a few who were not cured at Norman Parathyroid Center. Sad, the promises made .
If I had only done my research on this disease instead of listening to unknowledgeable surgeon /endo ( which I believed for 10 yrs ) I would have had surgery . But now it is impossible for me to come up with the funds as obviously I have to go out of country.

jmbjar ~ Check with Mayo they may have a program you could qualify for where they help with funding the operation.

Thank you upnorthnancy,. I was in contact with them a few yrs back and nothing available to me at that times

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