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giller198
@giller198

Posts: 30
Joined: May 15, 2018

Paralyzed Diaphragm

Posted by @giller198, Jul 3, 2018

My name is John and I was diagnosed this past January with a paralyzed right diaphragm. Phrenic nerve damage has been ruled out because of the amount of time between my heart valve surgery and when this started. I still cannot figure how this happened, I have a couple of ideas but nothing conclusive. I have seen two pulmonary doctors and both say there is a surgical procedure that can be done but no guarantee that it will work. I would like to know if anyone out there has been diagnosed with a paralyzed diaphragm and if they had it fixed.

Liked by usmccam

REPLY

@giller198

Lisa, Looked at a site from Cedars Sinia about this procedure and the outcome depends a lot on the physical condition of the patient. Works best for patients with just one diaphragm paralyzed (unilateral). I need to do some more research.

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@giller198 I saw you other post first in the Phrenic Nerve Damage thread and I had some suggestions that I posted there based on my experience with physical therapy for breathing problems.

@jenniferhunter

@giller198 I saw you other post first in the Phrenic Nerve Damage thread and I had some suggestions that I posted there based on my experience with physical therapy for breathing problems.

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Thank you, I will check it out. I'm still working some exercises, paced breathing,

@giller198

Thank you, I will check it out. I'm still working some exercises, paced breathing,

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Hope everyone has a nice Thanksgiving.

@giller198

Hope everyone has a nice Thanksgiving.

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How thoughtful you are. Happy Thanksgiving to you!
Think about reading the book Happiness by Dr Amit Sood.
This book helped give me improve my quality of life through relaxation and paced breathing. It tokk practice but has been well with the time!
Best

@llwortman

How thoughtful you are. Happy Thanksgiving to you!
Think about reading the book Happiness by Dr Amit Sood.
This book helped give me improve my quality of life through relaxation and paced breathing. It tokk practice but has been well with the time!
Best

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I ordered the book through Amazon, couldn't get for my Kindle. Thank you. Still doing my breathing exercises. I found out that if I do to much of the breathing exercises and try to swim the same day, I struggle in the water more. Hope everyone had a nice Thanksgiving, Christmas just around the corner. Ho, Ho, Ho

@llwortman

How thoughtful you are. Happy Thanksgiving to you!
Think about reading the book Happiness by Dr Amit Sood.
This book helped give me improve my quality of life through relaxation and paced breathing. It tokk practice but has been well with the time!
Best

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Got the book yesterday, Wednesday, started on chapter 1 today

@giller198

Got the book yesterday, Wednesday, started on chapter 1 today

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Wishing everyone a Merry Christmas and a better New Year, take care

I was diagnosed in 2014 with left hand side paralyzed diaphragm, i have had lots of tests including the Phrenic nerve test and this was ruled out as the cause, apart from breathlessness on exertion and walking a distance i have no other symptoms. i am looking for any advice on whether my weight is a part of the problem as i am very overweight, has anyone lost weight and found there breathing has become better and is there any other advice for that can help with better breathing

@cazzy1958 – Welcome to Mayo Connect, I'm glad that you have found us. I have Lung Cancer and when I was overweight I found that my breathing was much more labored. Please ask your doctor about this. Being overweight can cause a lot of problems, which I'm sure that you know. Have you had lung cancer? Do you have a cough? What brought you to the doctor for this?

@merpreb

@cazzy1958 – Welcome to Mayo Connect, I'm glad that you have found us. I have Lung Cancer and when I was overweight I found that my breathing was much more labored. Please ask your doctor about this. Being overweight can cause a lot of problems, which I'm sure that you know. Have you had lung cancer? Do you have a cough? What brought you to the doctor for this?

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Thank you for the speedy reply, i am sorry to hear you have lung cancer, i have had various x-rays and scans and there was no sign of cancer, this condition started when i was in work i bent down to pick a box up and found i was very breathless i went to see my doctor who ordered lots of tests but they came back fine, the hospital has no explanation and say it may right itself or may not, i was diagnosed with very mild COPD which doesn't bother me at all.

@cazzy1958 – Wow, you must have been scared to death! What kind of doctor do you go to for this?

@lisalucier

Hi, @giller198. Thanks for sharing this diagnosis of a paralyzed right diaphragm, plus your background with heart valve surgery and what has been ruled out so far. I can understand your wanting to know how this might have happened, and I applaud your persistence in trying to figure this out.

I'd like to introduce you to @wsh66, who has talked about paralyzed diaphragm, and @jmmb has also talked about diphragmatic issues and may have some thoughts on your condition and on potential surgical repair. @jgreg1954 @allisonsnow @kariulrich @kdubois @hopeful33250 also may have insights for you.

@giller198 — what would you say have been your biggest challenges thus far with this condition?

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I am a U.S. Marine amputee with left lower lobe loss. I was able to exercise, walk with a prosthesis, drive a car and could breathe without any assistance other than inhalers and a nebulizer for bronchiectasis. However, in 2014, I was diagnosed with lung cancer and underwent surgical removal of the tumor in the right upper lobe. Since surgery, I have not recovered at all. I am on 6 LPM of oxygen, cannot walk, cannot lay flat or bend over, cannot take any deep or full breaths at all. I walk 2-3 steps and I have no air and cannot breathe at all. Feels like someone is sitting on my chest and I have to sit down and let my pulse come down. I was told by another Veteran that I have diaphragm paralysis. Can anyone shed some light on this, please? I am desperate and totally disgusted not being able to have any sort of normal life, let alone being able to simply BREATHE! Thank you, in advance, for any help in this matter.

Hello @usmccam
I can certainly understand your frustration at having to deal with another physical problem. You certainly have dealt with a number of problems already.

What has your doctor said about diaphragm paralysis?

@hopeful33250

Hello @usmccam
I can certainly understand your frustration at having to deal with another physical problem. You certainly have dealt with a number of problems already.

What has your doctor said about diaphragm paralysis?

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Hi @teresa My NP suggested this might be the issue and wants to do a pulmonary test to rule out on the 23rd. Meantime, breathing has become very difficult now regardless of the position I am sitting. They did start me on BiPap but I have stopped it as it made me suffocate and start to choke. All of my research into this possible dx points to it exactly as my symptoms are identical and I feel it was surgically caused. Thank you for your reply.

@usmccam

Hi @teresa My NP suggested this might be the issue and wants to do a pulmonary test to rule out on the 23rd. Meantime, breathing has become very difficult now regardless of the position I am sitting. They did start me on BiPap but I have stopped it as it made me suffocate and start to choke. All of my research into this possible dx points to it exactly as my symptoms are identical and I feel it was surgically caused. Thank you for your reply.

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I am glad to hear that you will have a follow up on the 23rd so that you can know for sure about this possible diagnosis, @usmccam. I pray that you will get some answers.

I see that you were started on a BiPap but had problems with it. In case you would be interested in looking into this now (or after your appointment on the 23rd), I would like to invite @johnbishop, into this conversation. John is a Connect mentor who facilitates discussion groups on C-Pap and he may be able to direct you to discussions on use of the BiPap. Often there are adjustments you can make with these machines so that they can be used more comfortably.

I hope your appointment on the 23rd gives you some answers. Will you post again with an update after the 23rd?

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