Pancreatic Disorders Group: Introduce yourself and connect with others

@j18
I have been lucky enough to have pancreatic and hepatobiliary clinics nearby me. I see that UCSF has one if you are able to go there, or you can reach out to them for a nutritionist that they recommend. Although, through experience, if you aren't a patient they often cannot give recommendations as it can be a liability. If you have a pancreatic specialist they should be able to recommend one. I also suggest checking out the National Pancreas Foundation website, pancreasfoundation.org . On the NPF website there is nutrition information and a cookbook. The NPF also can help find providers that are reputable. There is a ton of information there. I used it for so many issues. Also, if you have YOUTUBE there are lectures from Mayo, John Hopkins, Oxford, and so many other reputable institutions to get information and there are also videos from same on nutrition. Hope you find someone to help guide you through this as it can be difficult to navigate alone.

Wow! Thanks so much for the vital information. I am a patient at UCSF and my PCP is at CPMP. I tried a few private places and no one knew anything about EPI. I will follow your advice and check out the NPF. Many, many thanks!