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Pancreatic Disorders Group: Introduce yourself and connect with others

Posted by Lisa Lucier, Moderator @lisalucier, Oct 14, 2025

Welcome to the Pancreatic Disorders support group on Mayo Clinic Connect. This group is designed to be a welcoming, safe place where you can meet people living with pancreatic disorders or caring for someone diagnosed with one. Let’s share stories about living with a pancreatic disorder, how we've coped with issues and challenges, and exchange tips so we can feel our best and live our best lives.

Please browse the existing discussions or start a new one.

Let’s start with introductions.

What is your pancreatic disorder story? When were you diagnosed, and what symptoms have you experienced? What helps you?

Interested in more discussions like this? Go to the Pancreatic Disorders Support Group.

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Lisa Lucier, Moderator | @lisalucier | Jun 30 11:20am
In reply to @lrpallcorp "70 year old male diagnosis with autoimmune pancreatitis type 2 diagnosed in February 2023 at MSK..." + (show)
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70 year old male diagnosis with autoimmune pancreatitis type 2 diagnosed in February 2023 at MSK in New York. Secondly diagnosed with pernicious anemia in February 2026. I was on the table to have a WIPPLE procedure when a very skilled surgeon had my pancreas in his hand and determined it wasn’t pancreatic cancer. I Had my gallbladder removed than responded well to steroids post surgery. Now I’m juggling the long term effects of prednisone use, DM, and possible pancreas scarring. My blood sugar and my digestion improves with 5mg of prednisone daily but I have acute episodes where more steroid use is needed I have an excellent GI specialist but it’s hard to find a endocrinologist who has experience with these diagnosis’s. I’d like to keep my health span as close to my lifespan as possible. So what does a person do? There’s not many of us with AIP TYPE 2 . Larry

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Hi @lrpallcorp - welcome to Mayo Clinic Connect. That is a relief that you don't have pancreatic cancer. But dealing with long-term effects of prednisone use, DM and possible pancreas scarring is a lot.

I wanted to suggest you might check out this discussion in the Connect Autoimmune Diseases support group:

- Autoimmune Pancreatitis https://connect.mayoclinic.org/discussion/autoimmune-pancreatitis-1/

This discussion has been ongoing for some years, and I think that fellow members there would understand some of what you are experiencing.

You might also like to take a look at the posts and potentially post yourself in this discussion on pernicious anemia, another discussion that has continued throughout several years:

- Pernicious anemia https://connect.mayoclinic.org/discussion/pernicious-anemia-1/

Sounds like the prednisone has been helpful to you, but you are concerned about long-term side effects? Have you experienced any side effects from the prednisone use thus far? Also, since there are so many acronyms in medicine, confirming when you talked about DM that you meant diabetes mellitus?

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janefh1 | @janefh1 | 3 days ago

I was just diagnosed with Pancreatitis the diagnosis was completed after 2 MRI’s with and without contrast. Supposed to leave on vacay in a few days; I am told I might not go. So disappointed and lots of negative feelings. A new difficult adventure. Diet, meds, etc

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Becky, Volunteer Mentor | @becsbuddy | 3 days ago
In reply to @janefh1 "I was just diagnosed with Pancreatitis the diagnosis was completed after 2 MRI’s with and without..." + (show)
Profile picture for janefh1 @janefh1

I was just diagnosed with Pancreatitis the diagnosis was completed after 2 MRI’s with and without contrast. Supposed to leave on vacay in a few days; I am told I might not go. So disappointed and lots of negative feelings. A new difficult adventure. Diet, meds, etc

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@janefh1 Did the doctor say definitively that you couldn’t go? Are there any changes, moderations you could make to make the trip do-able or would you be so miserable if you went? What is your mode of transportation? Is this a family trip or are you going with friends?
I think if you do lots and lots of brainstorming to, maybe, change your mind. Don’t give up yet!

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