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Moderator

Pancreatic Cancer Group: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, Dec 3, 2019

Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Pull up a chair. Let's start with introductions.

When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

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56pan | @56pan | 4 days ago
In reply to @tomrennie "@gamaryanne What is the difference between a gene mutation and genetics? I personally get confused about..." + (show)
Profile picture for Turkey, Volunteer Mentor @tomrennie

@gamaryanne What is the difference between a gene mutation and genetics? I personally get confused about them. I think gene mutations are environmentally influenced where genetics are something you are born with? Am I close?

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@tomrennie I believe gamaryanne is referring to "somatic" mutations which are picked up during a person's life, and "germline" mutations which you are born with. My acinar cell pancreatic cancer is definitely due to a germline mutation. From what I've read, the verdict is still out on which type of mutation causes more cancer. I would welcome any information to further clarify the issue. Mine as BRCA 2 and both my sons were tested and neither had it. My next oldest brother had the BRCA 2 mutation and is battling prostate cancer. My oldest brother did not have the mutation and had the whipple surgery for ductal cell pancreatic cancer 16 yrs. ago and is still with us. I wish I had the medical background to understand the issue further.

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leileitun | @leileitun | 1 day ago

My sister, 47 years old lady from Myanmar with advanced pancreatic adenocarcinoma with multiple liver metastasis, now in Bangkok hospital oncology ward ,on chemotherapy 3rd cycle (Folfirinox regime) , CA19-9 is > 4000 before 1st cycle, then >5000 before C2, then >6000 before C3.
Plan to take PET Scan before C4. Her results show that KRAS G12V mutation . No mutation in BRCA1 & 2. MSI Stable. Tumor Mutational Burden is Low,6 mut/Mb. Is there any chances for her targeted therapy?

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