Pancreatic Cancer Daraxonrasib skin rash: What actually helps?

Posted by aparrish01 @aparrish01, Sep 6 2:58pm

Does anyone know what actually works for the rash on the head, face, chest and back?

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Turkey, Volunteer Mentor | @tomrennie | Sep 21 9:28am

In reply to @aparrish01 "My husband has been on it 53 days now and the skin rash is the only..." + (show)

@aparrish01 That's great. Good for you folks. That is inspiring. If you could recommend one or two things to others on the treatment to help manage their side effects, what may they be?

aparrish01 | @aparrish01 | Sep 21 10:53am

He is the 1st patient that his Dermatologist has treated under this new medication so at this point he is a guinea pig! He’s using Triamcinolone 0.025 % for chest and back and also Ivermectin Cream 1%. Scalp solution is Clobetasol Propionate Topicsl Solution, USP 0.05 %. Pimecrolimus Cream 1% for his face. For all over the body wash Ketoconazole 2% Sha Anip. LACROCHE-POSAY has partnered with Revolution Medicine the Company that came up with Rasonque and a pharmaceutical Rep at the cancer center here said the gentle foaming cleansing oil, triple moisturizing cream and their Sunscreen. So far everything seems to be helping. I hope this information helps.

nbcesq | @nbcesq | Sep 21 11:10am

In reply to @casey1959 "@tomrennie My husband might have to start this med. I am very concerned about its side..." + (show)

@casey1959 I think you can be glad if your husband is prescribed this medication! Yes, there are side effects, but I find them less onerous than those with chemo. We thank God that this medication became available just when I needed it! Wishing you both well with whatever treatment your husband undergoes!

joyful23 | @joyful23 | Sep 21 11:46am

My husband has been taking Rasonque since September 8. He has the rash, which started a few days ago, which is being managed with the prescribed medication and creams. However, he is extremely tired. Is anyone experiencing extreme fatigue?

Good luck to all on this Rasonque journey.

aparrish01 | @aparrish01 | Sep 21 12:00pm

In reply to @nbcesq "@casey1959 I think you can be glad if your husband is prescribed this medication! Yes, there..." + (show)

@nbcesq Ty!

Turkey, Volunteer Mentor | @tomrennie | Sep 21 2:55pm

In reply to @aparrish01 "He is the 1st patient that his Dermatologist has treated under this new medication so at..." + (show)

@aparrish01 Thank you for the information. As this is a newly FDA approved treatment, every little bit helps. Please keep us posted on his progress. Thanks again!

Turkey, Volunteer Mentor | @tomrennie | Sep 21 3:00pm

In reply to @nbcesq "@casey1959 I think you can be glad if your husband is prescribed this medication! Yes, there..." + (show)

@nbcesq Thanks for the feedback and words of encouragement. If I recall correctly, you started your Daraxonrasib around the 4th of July correct? How have you been feeling overall since you started?

aparrish01 | @aparrish01 | Sep 21 5:08pm

In reply to @tomrennie "@aparrish01 Thank you for the information. As this is a newly FDA approved treatment, every little..." + (show)

@tomrennie sure!

casey1959 | @casey1959 | Sep 28 1:47pm

In reply to @aparrish01 "My husband has been on it 53 days now and the skin rash is the only..." + (show)

@aparrish01 I've read this drug is for advanced Pancreatic cancer with spreading. That a a patient post Whipple who's had successful tumor removal wouldn't benefit from it. Anyone have thoughts or input.